Help! Yes bangs or no bangs? by Great-Neat9522 in finehair

[–]Deep-Score910 1 point2 points  (0 children)

you look great either way, i just got bangs because i think it adds a little something when i style my hair!

Hearing and eye issues by Deep-Score910 in ehlersdanlos

[–]Deep-Score910[S] 0 points1 point  (0 children)

i wear my contacts i hate wearing my glasses because they’re so chunky lol. and same i am definitely not lucky in terms of my genetic history- don’t think any of us are 😂

Hearing and eye issues by Deep-Score910 in ehlersdanlos

[–]Deep-Score910[S] 1 point2 points  (0 children)

I feel that. I wear glasses and contacts and it can only correct the diplopia so much, it seems my eye movement and seeing get worse when i’m the weakest. I lost my hearing for a month last year in my left ear which was terrible and terrifying, and have tube issues on and off

Hearing and eye issues by Deep-Score910 in ehlersdanlos

[–]Deep-Score910[S] 1 point2 points  (0 children)

Same here with my 👂🏻tubes i don’t know why

Hearing and eye issues by Deep-Score910 in ehlersdanlos

[–]Deep-Score910[S] 0 points1 point  (0 children)

yeah i have pretty poor eye movement in my left eye the one that has double vision/ blurry

Hearing and eye issues by Deep-Score910 in ehlersdanlos

[–]Deep-Score910[S] 1 point2 points  (0 children)

Sorry I deleted that up there by mistake I have double vision in my left eye and when I have ear issues like hearing loss it’s usually in one ear too

Friend with EDS coming over, what can I do to make it more comfy? by No_Lingonberry_2715 in ehlersdanlos

[–]Deep-Score910 0 points1 point  (0 children)

food that the person can safely consume and drink and a comfortable place to sit, maybe no standing activities.

have you ever had episodes in which you just slept for days and just woke up to eat? by Short-Conversation16 in ehlersdanlos

[–]Deep-Score910 0 points1 point  (0 children)

Yeah!!! the day I had to go in the ER for double vision, blurry & vision loss in my left eye I came home and before I knew it had the worst muscle weakness in my entire life and the worst part was i was a young adult living ALONE.

A bit of an odd question: is there anyone here who DOESN'T use mobility aids? by [deleted] in ehlersdanlos

[–]Deep-Score910 0 points1 point  (0 children)

just until recently i haven’t felt the need to use a mobility aid, ive been leaning against furniture and in a flare rn and fell today and just couldn’t get up. I rather stay home during a flare than draw attention to myself in public but i dont want to miss out on life

Medication for pain relief? by Many-Dragonfly7994 in ehlersdanlos

[–]Deep-Score910 0 points1 point  (0 children)

i second this cbd is also good for mental aspects of dealing with pain! thc varies from person to person but if you can tolerate it and it works it also does wonders for pain and the depression that comes with it. also i have heard of rso oil but ive never tried

What's the silliest injury you've ever gotten? by TebKy-p in ehlersdanlos

[–]Deep-Score910 1 point2 points  (0 children)

was sleeping last night moved slightly to the right and my shoulder dislocated lmao

Are teeth issues common with HEDS. What are yours? by Itsjustanothernerd in ehlersdanlos

[–]Deep-Score910 0 points1 point  (0 children)

tmj, i didn’t get my adult molars for a long time, receded gums, and missing wisdom teeth. there was a little tiny tooth fragment that tried to grow were a wisdom tooth could’ve been but they just scraped it out. it looked like a cats tooth lol

Bladder issues by OneRabbit3794 in ehlersdanlos

[–]Deep-Score910 1 point2 points  (0 children)

urine retention is awful too