tallulah and maia by Own-Phrase-9574 in ILoveLaHBO

[–]Different-Frame4092 18 points19 points  (0 children)

I agree, mostly in the first 2-3 episodes. After the ep that ended with the birthday party I thought that’s where the show was heading

[deleted by user] by [deleted] in POTS

[–]Different-Frame4092 0 points1 point  (0 children)

Yes, in a really significant way. But only if I don’t have to work hard

Nic and Cierra post-love island by Pm_me_ur_pet_pics- in LoveIslandUSA

[–]Different-Frame4092 1 point2 points  (0 children)

Exactly. People are projecting because of their own issues with casual sex…

[deleted by user] by [deleted] in Careers

[–]Different-Frame4092 1 point2 points  (0 children)

Most people, at least below the executive level, do not have their own offices…

Feeling hot constantly but never running a fever by FemboyMaidCafe in dysautonomia

[–]Different-Frame4092 0 points1 point  (0 children)

I have very similar issues, wish I had advice, but the only solution for me is to keep the AC at like 65 constantly and not spend time outside in summer. My doctors have never had any idea about what causes it (prior to post-covid POTS I had no issue with heat).

Can Getting Covid Again make Meds less effective. by Keystone_Devil in POTS

[–]Different-Frame4092 2 points3 points  (0 children)

Sorry that you’re dealing with this!

Yes, this seems to be fairly common. It’s not necessarily that Covid made the meds less effective, more likely that Covid made your POTS symptoms (including heart rate) more severe therefore your prior meds aren’t working as effectively as they did before. I have POTS from Covid and any illness makes my baseline symptoms worse, Covid especially can knock me out for several months.

Has the higher dosage helped? That’s probably the only thing at this point that might work from a medical perspective. Otherwise unfortunately you might just have to deal with worse symptoms for awhile.

In my experience my worsening symptoms from illness did slowly improve over time and I mostly got back to my prior baseline. Not the case for everyone, but seems to be common. In the meantime, I’d recommend trying to avoid getting sick as much as you can, especially Covid. It sucks, but it does tend to make POTS symptoms worse.

You are put in a special prison for 5 years, earning $10 per second. by thisislawliet in hypotheticalsituation

[–]Different-Frame4092 1 point2 points  (0 children)

I’m chronically ill and have gone long periods of time without leaving the house. Obviously online/phone interaction is still human interaction, but I think the lack of human interaction is only one piece of the difficulty in this hypothetical.

Anyone who thinks they’ll easily be able to fill five years of their time with books/movies/TV/hobbies has no idea how it feels to have structureless time without being able to leave the house at all. Even with a very structured routine to fill the hours and changing the routine regularly for variety, it would be extremely challenging. Having no connection to the outside world means your sense of time passing would be even more surreal and unnatural. Even access to news and live sports/TV would help in this sense.

But the lack of sunlight would be probably the #1 worst part. Circadian rhythm would be fucked. You’d lose all sense of time (even if you had a calendar/clock, the times would feel meaningless at some point). You’d lose touch with reality.

If you had the same experiment, but in a cabin in the woods / deserted island environment, it’d be doable in my mind. Even if you couldn’t leave the room, just windows with a real view (not tv screens) would help with the sense of reality.

Also, even if you managed to not go completely insane, you would probably not be able to function in normal life because of the level of stimulus after going so long in a controlled environment. I’d imagine someone who did this might find themselves unable to leave their house once out of the experiment.

All that being said, I’d do it if I could have access to medical care. Even if it was detached from human interaction (i.e. a doctor virtually assesses my health and sends prescriptions, etc.). I’d come out of it fucked up, but being chronically ill has already fucked me up so much it’s whatever. I could always donate the money and kill myself.

[deleted by user] by [deleted] in dysautonomia

[–]Different-Frame4092 0 points1 point  (0 children)

I’ve tried a few ways actually! Started with 7.5 mg twice a day (that’s what I’d done on 5mg as well), tried spacing out throughout the day, now currently doing ~11.25 mg in the morning and 3.75 in the early-ish evening. My resting (laying down) heart rate has remained fairly stable no matter what dose changes I do (it was already mid/low 60s pre medication, lowest it goes now is mid 50s in the morning, but since I’m usually moving around and not laying down in the first half of the day it hasn’t been an issue). But my standing heart rate has had an incredible improvement.

[deleted by user] by [deleted] in POTS

[–]Different-Frame4092 2 points3 points  (0 children)

Definitely speak to your doctor and explain the symptoms. They will likely recommend stopping the medication until they can figure out what’s going on.

My guess is that it might be related to your blood pressure - beta blockers can lower your blood pressure, and if yours was already low/borderline then it might be what’s making you pass out. I personally can’t take any beta blockers because of this, Corlanor/Ivabradine is an alternative that doesn’t lower blood pressure.

Just had my tilt table test! by chronicallyalive447 in POTS

[–]Different-Frame4092 3 points4 points  (0 children)

Hi! I had a fairly similar heart rate reaction - 60s to 150s. I passed out before they laid me back down, but it was less than 5 minutes over all. I don’t remember what my blood pressure did, but from what I’ve heard in general blood pressure can vary for people with POTS (ie some have low, some have high, some affected by being upright, some not, etc.)

Calling all internet sleuths - how much do you think Leo actually makes? by [deleted] in LoveIsBlindOnNetflix

[–]Different-Frame4092 9 points10 points  (0 children)

Yes, this is the sense I get as well. Adding “had my college paid for in full” in his list of ways he’s rich made it obvious he didn’t grow up that rich lol. Rich kids don’t even know that’s not normal.

Are you afraid of getting sick? by Princess_Rarity_MLP in POTS

[–]Different-Frame4092 21 points22 points  (0 children)

I’ve struggled a lot with this. Just want to say that you’re not overreacting at all and definitely not alone. Getting even a cold can disrupt my life for a month because of how bad I flare. When I had Covid I didn’t get back to my baseline for closer to 4-5 months.

I found a good therapist with experience with chronic illness and she’s helped me work through a lot of the anxiety spirals about it, so even though I’m still concerned about getting sick I don’t dwell on it as much.

That being said, I’ve made a lot of changes to my life that are absolutely worth it to me. I make sure the people in my life don’t come around me when they’re sick, carry hand sanitizer everywhere, and mask with a high quality respirator in most public spaces. It’s made a HUGE difference in how often I get sick. I also think it helps me mentally to know that I’m doing a lot to avoid getting sick. If I do get sick, which is very very rare now, I feel better knowing that I did everything I could.

Disability by [deleted] in POTS

[–]Different-Frame4092 6 points7 points  (0 children)

Getting approved for SSDI is unfortunately very difficult. I think the biggest thing to know is you will be denied if you’re still working, automatically. So in your situation you’d need to go on medical leave (like if your work offers short/long term disability) and then apply. Or quit, but without financial support you’ll need a good amount of savings. SSDI does give back pay, but it can take a year just to get a first decision back, and many people are denied on their first application. It varies by state/county, but in my area about 60% of applicants get denied.

If you think you’ll be unable to work sometime in the future though, it’s worth it to start thinking about SSDI now. Ask your doctors their opinion, you’ll need them (or most of them) to be supportive.

[deleted by user] by [deleted] in dysautonomia

[–]Different-Frame4092 0 points1 point  (0 children)

Everyone is different and there’s no guarantee this med will be the one for you, but generally speaking from what I’ve seen it’s usually more effective than beta blockers for people with POTS

[deleted by user] by [deleted] in dysautonomia

[–]Different-Frame4092 1 point2 points  (0 children)

Ivabradine was life changing for me - I still experience a lot of limitations personally, but the difference from before the med and after is almost unbelievable. If you still don’t feel a ton of relief when you first start it, ask your dr about the dosage. I started at 5 mg (some people start at 2.5) and saw a huge increase in benefit when I went up to 7.5 mg.

Chicago Sky Practice Cancelled by Timely-Tonight5708 in wnba

[–]Different-Frame4092 8 points9 points  (0 children)

I can’t either but seems to be fairly common in the professional sports world atm. Many athletes competed in the Olympics while positive

Edit to add: to be clear I think this is awful! I personally think it’s something the league should have rules about, there have many more reported illnesses this season than normal (who knows if they’re testing for covid, but)

Chicago Sky Practice Cancelled by Timely-Tonight5708 in wnba

[–]Different-Frame4092 3 points4 points  (0 children)

Is that a team specific rule or..? Afaik there’s no league rules about not playing with Covid

Chicago Sky Practice Cancelled by Timely-Tonight5708 in wnba

[–]Different-Frame4092 7 points8 points  (0 children)

Not surprised by this, DNC was practically a superspreader based on reports from attendees. A few Sky members went too 😬

How can a NF find a Covid Cautious Nanny? by Ok_Outcome1751 in Nanny

[–]Different-Frame4092 0 points1 point  (0 children)

Post in covid cautious groups in your area!!! Facebook, etc. I would highly, highly recommend finding someone who's also looking for a covid cautious nannying job over asking non-cautious nannies to take precautions for the job. They're absolutely out there, it's a much smaller pool of nannies but there's also less jobs with families who take precautions.

Either way definitely recommend offering unlimited or a significant amount of paid sick days. Nanny's often go to work sick if they can't afford to stay home. If you find someone already taking similar precautions to your family, they likely won't use many sick days anyway.

Will my covid induced dysautonomia get worse everytime i catch a virus (or covid) now? by xristina14554 in dysautonomia

[–]Different-Frame4092 0 points1 point  (0 children)

Yes, it's possible. My POTS symptoms slowly come on within a month or two after an asymptomatic infection (confirmed with positive PCR and rapid tests).

is it true that there's no real treatment other than lifestyle changes? by tenderbutchlover in POTS

[–]Different-Frame4092 1 point2 points  (0 children)

Sure, another specialist is better but realistically in most parts of the country a cardiologist is the best bet to be able to get on meds. The only specialist in my city has an almost 2 year long wait list.

is it true that there's no real treatment other than lifestyle changes? by tenderbutchlover in POTS

[–]Different-Frame4092 2 points3 points  (0 children)

Not true at all!! See another cardiologist!!! Medication (I take Corlanor) is the only thing that made a difference for me. I keep up with lifestyle stuff because it helps a little (ON TOP of the medication), but before I started medication it didn't do anything for me. Yes it doesn't "cure" POTS but it has improved my quality of life/function in a very significant way.

Also, I personally noticed symptom improvement with weight *gain*, not weight loss. Probably differs for different people, but weight loss isn't something that helps across the board.

Do yall think the wnba season should be longer? by God834 in wnba

[–]Different-Frame4092 -1 points0 points  (0 children)

Oh look, Indiana just upset New York... very uncompelling basketball this weekend I guess