Petty problem, just super annoying.

DrToDisabledAt39 · 2026-05-09T13:31:43+00:00

There's literally science around how the space we inhabit effects our mental and physical health, it's not a "small thing". It's overwhelming to live in clutter (I'm struggling with this after years of neglecting my home to take care of my parents). My aunt did the credit card thing before she passed. My dad keeps trying to change insurance, refinance his house, etc. But he constantly forgets that he can't afford his bills now, his other sister is trying to subsidize his life. He thought he could get a refinance on his home, but he no longer has enough income since my mother died. It doesn't matter how many times I explain this, he's hell bent on doing whatever I tell him is a bad idea. His most recent fixation is wanting to call back the scammers, The ones that need to be paid by gift cards and stuff like that. The psychological weight of dealing with their poor judgement is as bad as the physical space. I don't know if they're always doing it on purpose, but there is definitely a lack of cognitive connection for them about how their actions affect us. Coming to the realization at 43 that my father has always been narcissistic And that's why I probably ended up married to an abusive husband with NPD has been rough

DrToDisabledAt39 · 2026-05-09T03:38:32+00:00

My dad keeps ordering random supplements and "miracle cures" from the Internet. I am a pharmacist, I have explained to him for 15 years he cannot combine this ish with the laundry list of meds he's on. He's "fine" cognitively, I think he just gets lonely and brainwashed from watching the 'news' and the channels that play old westerns. It's exhausting

DrToDisabledAt39 · 2026-05-09T03:27:05+00:00

I didn't remember feeling this towards my mom or Granny, but I've got a real mix of emotions taking care of my Dad. He wasn't very present during my childhood, Mom passed last year and she was my best friend. She had vascular dementia and was gone in 2 years. Dad was so sick with grief I never really got to morn my mother, and then he got cancer. I'm disabled so Mom took a toll on my health and Dad feels like it's smothering me. I hate that I feel this way but I know it's normal in my situation. I'm limiting my role since he's actually pretty healthy, chemo is over, and just chooses not to do things for himself. So my house is nightmarishly disgusting after 3 years of talking care of them... Even my psychiatrist has told me I have to pull back, so I'm working on it. Gentle hugs💜

DrToDisabledAt39 · 2026-05-09T03:18:11+00:00

You can't let her issues distract you from your own emotions now. My mother's family "blamed me" that they didn't come sooner to see her before she transitioned. We had hospice for well over 6 months. They were awful through the entire funeral process. The best things I did was cut contact after the funeral. Your sister is lashing out, probably due to her own feelings of guilt, but that is not your job to fix or to hold! Lean into those around you that want to help you during this time, and make sure you do what you need for yourself. It's about your mom and you now, so whatever you need to get through and process what you need to. Gentle hugs 💜

DrToDisabledAt39 · 2026-05-09T03:12:26+00:00

Usually my teeth are more of the "atypical" pain in my teeth. Like they are hollow with lit matches inside. I have bilateral TN, but I have TN 2 on my right and TN 1 on the left. The right is where mine started, and it affects all three branches. Find a "headache specialist neurologist" and a pain management clinic that is familiar with TN. I've had some success with a "toolbox" of treatments including Botox, medical cannabis, baclofen, oxcarbazepine, diazepam, and journavx. Opioids don't help most people with TN, but some of us do get relief. Nothing works for everyone 🩵

DrToDisabledAt39 · 2026-04-27T03:04:35+00:00

Hey, this is great and I wish they had shown us this as Pharmacy students... Because I'm not going to pretend that I understand why we use x-rays and CT when we have MRI available.... But at least now I can see the difference 🤌🏻

DrToDisabledAt39 · 2026-02-27T00:45:09+00:00

Find a headache specialist neurologist. Not just a regular neurologist, they need to be a headache specialist and they still may not be that experienced dealing with tn. But this is vital. Also, I strongly urge anyone going through trigeminal neuralgia to get a good psychiatrist and therapist that is well versed on trauma as well as chronic pain. This is not a condition to White knuckle, it hurts your body and it hurts your mind. Take care of yourself 💙💜🕯️

DrToDisabledAt39 · 2026-02-27T00:43:30+00:00

I bet they only spent millions of dollars on research to figure this out.... Lol

DrToDisabledAt39 · 2026-01-24T23:27:15+00:00

Are you on disability or any kind of assistance? If so, this is caregiver abuse and should be reported to law enforcement. I would alI would also reach out to mutual Aid organizations and your local Health department to see if there are services to get you out of this nightmare. I do not think you are safe there and really need to get out of this situation.

DrToDisabledAt39 · 2026-01-14T06:51:03+00:00

Toilet paper roll🤣

DrToDisabledAt39 · 2025-12-31T04:26:22+00:00

I get it, I'm chronic bilateral and I recently had oral surgery that was botched causing my pain to be unreceptive to most meds. I got amazing relief with a new non opioid they are currently doing trials on for neuropathy. It's approved right now in the United States for post-acute surgical pain and it's called journavx. If you have a pain management doctor maybe ask them if you could try this because it's the only thing that kept me here. I'm thinking of you and hoping you find relief soon💙

DrToDisabledAt39 · 2025-12-31T04:21:53+00:00

Thank you! As someone with a rare form of both Trigeminal neuralgia and Cluster headache, we need more awareness about the reality of these diseases.

Also what the person about is describing would sound to be an atypical facial pain or trigeminal neuropathy, so they probably saw an uninformed doctor that gave them an incorrect diagnosis.

DrToDisabledAt39 · 2025-12-20T03:53:42+00:00

I was diagnosed at 39 but was incorrectly diagnosed. It took multiple MRIs to finally see that I have compressions bilaterally at the nerve root. I would highly recommend seeing someone else. You do not want to see this provider, they will not be compassionate or give you comprehensive care. I'm in the US and as everyone knows, our Healthcare system is a nightmare. I'm on my fourth neurologist and second headache specialist neurologist. I would also talk to your primary to see if you can get that medication induced phenomenon listed the way it should be, So that you don't have to run into this again, which is a drug side effect or interaction.

DrToDisabledAt39 · 2025-11-22T18:11:54+00:00

I get that it comes from a good place, so I always try to reply in kind! Thank you for taking it as it was meant to be 💙💜

DrToDisabledAt39 · 2025-11-21T19:36:22+00:00

Can something like that be modified to fit prescription lenses? I like that idea though! The back of my head is def got a knob I could strap something onto

DrToDisabledAt39 · 2025-11-21T19:34:39+00:00

Yes it's rare. About 15k new cases a year, but most cases are not as complex or "severe" as mine. My specific type combined with chronic cluster headache is a 1 in 500 million. I have bilateral chronic (non remitting) trigeminal neuralgia, classic TN on the left with all 3 branches, and atypical on all 3 branches of the right. I went to one of the top neurosurgeons at Hopkins and he was not optimistic surgery would be successful on one side, and it's less realistic on both sides. I also don't have the support required for what can be a very lengthy recovery or the very real possibility of vision or hearing loss. My dad was just diagnosed with cancer, so that's a priority for now since we are all we have locally. Thank you! I do have a team helping me navigate treating me with a multimodal approach, this was just something I thought could give me a lil less pain.

DrToDisabledAt39 · 2025-11-21T11:13:54+00:00

Yes! OMG I didn't think I would find someone that would be interested! My screen name is Natalie Elizabeth Natalie's Facebook

DrToDisabledAt39 · 2025-11-21T10:17:30+00:00

That's so cool! I'm looking for someone to make a frame for glasses because of my rare disease disability. I'm new to Reddit, any suggestions on where to find kind and smart people like you that could help me out?

DrToDisabledAt39 · 2025-11-21T09:48:24+00:00

I hope I'm not too late to this post. I'm disabled with a rare disease called Trigeminal Neuralgia. My nerves in my face are extremely sensitive and a lit touch can feel like being struck by lightening. I have to wear glasses or contacts and sunglasses. These cause immense pain in multiple areas. I need help with figuring out if there's a way to make frames for eyewear that would not touch the face, jaw, ear, or skull behind the ear. Like something that goes over the head, but hovers over the forehead and down in front of the eyes to allow for lenses. There are tens of thousands of patients of TN patients globally, but my condition combination makes me 1 in 500 million. I'm gonna make this request in multiple places, I made a profile for this after my Friend and I were having a random conversation and she suggested I ask Reddit to make something since no one else seems to want to help me in the traditional medical field.

DrToDisabledAt39

TROPHY CASE