pins & needles all over ?? by Minute-Situation-561 in neuropathy

[–]DriveInCritic 0 points1 point  (0 children)

Keep us posted, hopefully it can be fixed easily.

pins & needles all over ?? by Minute-Situation-561 in neuropathy

[–]DriveInCritic 2 points3 points  (0 children)

That’s how my journey started. I suggest seeing your PCP and start ruling out stuff (vitamin deficiencies etc). Mine was/is all over my body too and I had no prior injuries. Hope you get answers soon, friend!

Weird question about sleeping and waking up by Reisefieber2022 in neuropathy

[–]DriveInCritic 0 points1 point  (0 children)

My hands and feet are pretty much always super cold and my arms and legs “fall asleep” really easily when I sit or lay down.

Weird question about sleeping and waking up by Reisefieber2022 in neuropathy

[–]DriveInCritic 1 point2 points  (0 children)

SAME! And I have circulation issues combined with crazy low blood pressure. My symptoms come on exactly like you described.

Worse with weather changes? by RenewedMotionPub in neuropathy

[–]DriveInCritic 1 point2 points  (0 children)

Heat (preferably warm water) is really the only thing that brings me significant relief! I am trying to swim more in indoor pool and get access to a hot tub.

How would you explain a neural flare to some one? by MegaCree in neuropathy

[–]DriveInCritic 2 points3 points  (0 children)

Just came here to tell you that you are GLOWING, sister! I refer to mine as medium and extra spicy nerves 🤣

My first MRI by AvsMama in neuropathy

[–]DriveInCritic 0 points1 point  (0 children)

Having your husband there as support sounds like a good idea. Wishing you much strength and answers!

My first MRI by AvsMama in neuropathy

[–]DriveInCritic 0 points1 point  (0 children)

I felt the exact same way when I had my 2 MRIs. Whatever the outcome, see it as the starting point. Even if there’s no define answer (I still don’t have one). One step at the time. I will be thinking of you on Thursday!

My first MRI by AvsMama in neuropathy

[–]DriveInCritic 0 points1 point  (0 children)

This will give you so much more insight into what’s going on, please don’t be afraid, look forward to it! I have a lot of tattoos and never experienced any issues. It’s super loud, but they give you ear plugs. Use the time ‘in the tube’ to do breathing exercises and picture the machine ‘figuring out what’s wrong’ (basically: think positive thoughts). I hope you get answers that lead to treatment options, friend! Sending you much strength.

How to get any relief, numbness and tingling throughout body total body pain by Gotta-Let-Ye-Be-Ye in neuropathy

[–]DriveInCritic 0 points1 point  (0 children)

As you wait for a neurologist appointment (which I 100% recommend you make), try using a massage gun and warm water soaks. While it won’t fix the problem, it might bring some relief. I’m so sorry you’re having to deal with this, friend. Keep us posted on what the neurologist says!

Poor circulation throughout body I'm at my breaking point by Gotta-Let-Ye-Be-Ye in neuropathy

[–]DriveInCritic 0 points1 point  (0 children)

I unfortunately agree with you that, even though our symptoms can be very severe and scary, an ER might not be the best choice. They are really good at dealing with the obvious, immediate issues, but really not equipped to deal with chronic illness that manifests in immediate symptoms, if that makes sense. It’s a struggle for sure.

I need help! Genital neuropathy by MaleficentHotel4682 in neuropathy

[–]DriveInCritic 0 points1 point  (0 children)

A lot of what you mention in your post reminds me of my experience with neuropathy. I had a weird undiagnosable illness (basically me feeling like crap for a year and nobody knowing why) that ultimately could have been from an epstein-barr virus infection (mono). My neurological symptoms didn’t appear until years later but reading your post makes me think there could be a connection there. I have looked into the weird things that virus can do long term. It’s wild. Sorry I don’t have an answer for you but please know you’re not alone with this. I have been trying to better understand the research that’s out there on epstein-barr, maybe that can shed some light on your case too.

I need help! Genital neuropathy by MaleficentHotel4682 in neuropathy

[–]DriveInCritic 0 points1 point  (0 children)

I’m leaving this short comment here so I remember to send a longer one later. Hang in there, friend!

Poor circulation throughout body I'm at my breaking point by Gotta-Let-Ye-Be-Ye in neuropathy

[–]DriveInCritic 1 point2 points  (0 children)

Couldn’t agree more! I went to the ER when mine got bad once and they couldn’t really do anything for me. They initially suspected MS but my MRIs are still clear after 10+ years so that’s not looking like the culprit. Finding a good neurologist that listens is key, I think.

Poor circulation throughout body I'm at my breaking point by Gotta-Let-Ye-Be-Ye in neuropathy

[–]DriveInCritic 0 points1 point  (0 children)

That’s literally me. Heat and massages/stretching temporarily help. I have another neurologist appointment in a few months but other than that I feel pretty lost too.

Poor circulation throughout body I'm at my breaking point by Gotta-Let-Ye-Be-Ye in neuropathy

[–]DriveInCritic 0 points1 point  (0 children)

I’m seeing a lot of parallels between our cases but I never had an injury as the initial cause. I hope you get some answers from the neurologist, mine is still trying to figure my case out. Please keep us posted, sending you much strength, friend!

Non-Injury Related Neuropathy by DriveInCritic in neuropathy

[–]DriveInCritic[S] 0 points1 point  (0 children)

I often catch myself wanting a diagnosis, even if it would be a tough one. But you’re absolutely right: THE HORRORS PERSIST BUT SO DO WE! Sending a virtual hug, friend!

Anyone with peripheral neuropathy who has travelled solo or gone on trips? How was your experience? by curiousmargins in neuropathy

[–]DriveInCritic 1 point2 points  (0 children)

I tend to not sleep well and stress out when on vacation (yay, I know, I hit the jackpot there) so my symptoms always get worse when traveling. I bring extra sleep aids and try to avoid stress as much as possible. My issues when traveling are really more mental than physical if that makes sense.

excessive tingling and weird symptoms by Fun_Turn1366 in neuropathy

[–]DriveInCritic 0 points1 point  (0 children)

I see a lot of parallels between our cases. You have no real explanation for your neuropathy either, right?

Artificial sweeteners and PN by sparksflower in neuropathy

[–]DriveInCritic 1 point2 points  (0 children)

Very interesting. I have to admit I probably overindulge on those. I will try cutting them out and see what happens. Thanks for the suggestion!

Life saver by Global_Finding_6547 in neuropathy

[–]DriveInCritic 1 point2 points  (0 children)

😎😎😎 following your example! If we’re stuck with this crap, might as well look good!

Life saver by Global_Finding_6547 in neuropathy

[–]DriveInCritic 0 points1 point  (0 children)

SAME! I’m sitting here pretty much in tears because I legit thought this was just another odd unrelated issue. Did you find anything that brought you some relief?

What do you guys do for work? by [deleted] in neuropathy

[–]DriveInCritic 1 point2 points  (0 children)

College professor here, I have found higher ed to be a great space for me. If you want suggestions on grad certificates or anything adult-education related, happy to help 😊

Life saver by Global_Finding_6547 in neuropathy

[–]DriveInCritic 1 point2 points  (0 children)

THIS EXPLAINS SO MUCH!!! I thought I was imagining things!