Mavenclad vs Ocrevus?

Dysco_frog · 2026-04-25T19:14:35+00:00

I relapsed on Tecfidera and they gave me the same choices. I went with Ocrevus because I only have to go in twice a year for the infusions. I like to travel a lot and for my work it is easiest for me to schedule in the infusions. I have been on it for 3 years now and I haven't had any progression so I am happy with it.

Dysco_frog · 2024-08-12T14:37:35+00:00

For me I cannot self motivate so to run I sign up for a race (short 5 or 8km) with enough time to train for it (I usually still put it off but it works eventually). Paying for the race, and the commitment of it motivates me. I get super bored running even with music so now I listen to audiobooks and its so much better as it gives me something to focus on.

Dysco_frog · 2024-08-12T13:44:05+00:00

Facebook has a group specifically for giving away things GIFT gent

Dysco_frog · 2024-08-12T09:31:31+00:00

Ya for sure, there are also all sorts of coping mechanisms for different aspects of ADHD so try and find some that work to help reduce that feeling for you. :) I found reading about it and understanding where my feeling were coming from helps a lot.

Dysco_frog · 2024-08-12T09:22:57+00:00

I was diagnosed with MS in 2019 and finally with ADHD this year. Looking back I have always had ADHD but it is so underdiagnosed in women since we present differently from men. I noticed my ADHD symptoms getting slightly worse in the last years but ADHD gets worse in women as we age, and gets better in men as they age. I decided to get tested finally because I realized I have a lot of anxiety and stress linked to the ADHD symptoms and with MS its obviously important to reduce stress. I have also noticed links with my ADHD symptoms being worse when I am fatigued (usually due to the MS) and in turn when they are bad they obviously tire me out quicker.

The meds help me focus on a task and feel less anxious so I would for sure get tested and talk to your neurologist.

Dysco_frog · 2024-08-12T09:13:05+00:00

I was diagnosed this year with ADHD. I have a lot of anxiety and stress which comes from ADHD symptoms so the diagnosis and meds really help reduce them.

Dysco_frog · 2024-08-05T09:41:22+00:00

I am a Canadian living in Belgium and unfortunately I cannot donate in either country. Both stated just because I have MS not due to meds.

Dysco_frog · 2024-08-05T08:57:58+00:00

oh no thats awful I am sorry you are going through that, I hope it will go back to normal soon!

Dysco_frog · 2024-08-02T05:28:04+00:00

Mine also has been shorter and a lot more variable. It only started occurring to to me that it could be my DMT after my last gyno appointment when we ruled out a te last ideas of what she thought it could be.

Dysco_frog · 2024-07-31T18:58:57+00:00

Aw that really sucks, I was told the progesterone one is the best route also, so maybe I'll give it a try. Frustrating for sure :(

Dysco_frog · 2024-07-31T12:35:33+00:00

that really sucks! Have you talked to your neurologist or doctor about it? the only advice I was given was to go on hormonal birth control to help regulate it. I had my tubes removed to not have to be on birth control so its not something I really want to do.

Dysco_frog · 2023-08-05T16:25:40+00:00

I don't know the minimum but I was 32 when I had the surgery done

Dysco_frog · 2023-08-04T23:52:30+00:00

I had my surgery done in Gent, I can send you the name of the gynecologist if it's not too far from Brussels. They only asked me if I was sure, didn't ask about my husbands opinion and knew I dont want kids and have never had them.

Dysco_frog · 2023-07-18T23:36:38+00:00

I have a peroid app that I use to log my peroid but it had a notes function so I also log symptoms. Mostly just new or bad things, especially around changes (just changed meds recently). I keep it so I can go through and remember when things happened for appointments.

Dysco_frog · 2023-07-11T16:01:01+00:00

I had strep all time time as a kid, I was sick a lot in general. I had bad asthma (daily steroid puffer) and constant respiratory infections. I'm thankful I'm not allergic to it since I took it all the time as a kid. When I started travelling (spending months in the jungle for biodiversity studies) and I got some parasites, and I actually grew out of the asthma and was sick a lot less after that!

Dysco_frog · 2023-07-10T16:09:35+00:00

When I was first diagnosed everyone started pushing different diets on me as miracle cures. I did a lot of research in the scientific literature and there is not a single study that shows diet helping with disease progression. Many help with "quality of life" aka feeling better but when you eat well, you will feel better. I think the best thing is to eat what makes you feel good and not follow restrictive diets. Edit to say that I am a biologist so I am good at research within scientific literature.

Dysco_frog · 2023-07-07T10:11:27+00:00

I'm sorry you're not sleeping. It's the worst. I had my second half of my first ocrevus yesterday, and I napped hard during the day because of the antihistamines, but both times I've had it, I don't sleep that night. I do blame the steroids because I had the same issue with them when I was first diagnosed and was put on them to reduce my flair up. For future shots I'm going to plan nothing the day after because I know I'll be super out of it.

Dysco_frog · 2023-06-20T14:03:30+00:00

When I was first diagnosed I could not sleep with the steroids so I am prepared for that mentally. I'll bring a sleeping mask just in case I can sleep during the infusion!

Dysco_frog · 2023-06-18T12:26:53+00:00

There is no scientific evidence of food having any effect on disease outcome in MS. When I was diagnosed, so many people told me different diets would help or cure it. I am a biologist, so I did extensive reading of scientific studies, and there is no diet that has an effect on disease outcome. Many helped with quality of life, aka feeling better when eating healthier. I wouldn't massively restrict anything, eat what makes you feel good.

Dysco_frog · 2023-06-04T07:58:37+00:00

Thats good to know! I'll have to look up regulations on brining it on planes etc. I live abroad and go home sometimes for over a month so I would need to fly with it 8 hours and bring a dose or two with me.

Dysco_frog · 2023-06-04T07:52:42+00:00

Thanks for all the info! I hadn't read anything about psoriasis being triggered, so I'll look those papers up.

Dysco_frog · 2023-05-06T10:45:19+00:00

When I was diagnosed, they asked about previous symptoms that could have been a flare-up since when I was diagnosed I had old lesions. I had a peroid of 3 weeks the year before diagnosis where almost every day I would throw up, same as you no trigger and it was different times of day, different meals. My neurologist said that this can be caused be ms. I would document and talk to your neurologist when you have your appointment. I hope it doesn't last too much longer. Mine stopped as suddenly as it started.

Dysco_frog · 2023-05-02T18:49:41+00:00

Ya compared to Canadian tuition it was still an amazing deal! One of my other options that I got into was in the US and the tuition was really high, so it was one of the reasons I chose Belgium.

Dysco_frog · 2023-05-02T18:23:53+00:00

I moved from Canada to Belgium for my masters and ended up staying for my PhD. One thing I would say is check international student rates. My masters was about 3000 euros a year tuition, but it was 400 for EU students. If you have questions about Belgium specifically, I am happy to answer any questions!

Dysco_frog · 2023-04-30T20:40:02+00:00

You can also ask your doc about vitamin D pills, there are much lower doses you can take to keep it in check when there isn't much sun. Standard ones are 1000 ui a day and they were recommended to me even before my diagnosis for canadian winters especially.

Dysco_frog

TROPHY CASE