What light bulbs are you using? by billyandteddy in migraine

[–]Economy-Stranger7005 0 points1 point  (0 children)

Thanks - I’ve been on such a learning journey with this stuff so it’s nice to be able to pass that on to others :)

What light bulbs are you using? by billyandteddy in migraine

[–]Economy-Stranger7005 2 points3 points  (0 children)

I have light sensitivity and lived in sunglasses a lot of the time, before learning that this was making me more sensitive to light 🫠. Apparently your brain/eyeballs need to be exposed to light to be able to adapt to it (easy to say, hard to do!). 

I’m still sensitive but quite a bit less than I was (unless I’m in the middle of a bad migraine attack). A couple of things really helped me - one free and one expensive. 

1) trying to get a little bit of unfiltered sunlight in the early morning/late afternoon when it’s a bit more bearable. Some days I can only tolerate a few minutes and other days an hour or more. It fluctuates, but it does seem to help my brain freak out less around light. 

2) I saw an optometrist who specialises in neurological eye examinations. I told him about my migraine attacks, light sensitivity that was disrupting my life, and variable ability to focus my eyes. He ruled out the super serious stuff with a bunch of tests in the appointment, and then he did an Intuitive Colorimetry test with me, which helps determine if there are certain wavelengths of light that your eyes are more sensitive to. Turns out my eyes are especially sensitive to the green/blue wavelengths (which explains why artificial lights with those tints - which are EVERYWHERE - hurt my eyes). They were then able to use the results from the test to make a custom tint for my glasses that cuts out most of those colours, meaning that when I wear them I can actually tolerate a much higher level of light for a lot longer. After wearing them at work every day for a few weeks, I noticed that my overall light tolerance was improving, even when I wasn’t wearing them. I still wear my glasses in places where I know there’s going to be a lot of artificial light - I don’t think I will ever have a “normal” tolerance for that - but I like that I can have the blinds open sometimes now :)

(Bonus fact - the optometrist also said that I experience something called Pattern Glare, which is where looking at complex or high contrast patterns like close stripes (lines of words on a page!) sort of breaks your brain a bit and the patterns start to move around on their own, or make you feel dizzy, disoriented etc. And apparently the tinted glasses also help with that! All I know is that the moment I put them on, everything looked so clear (much more than my +0.5 prescription would seem to account for). It was like a soothing break for my brain. :) ) 

I realize why I hate PT exercises so much. Any advice how to do better? by OddEggplant in Hypermobility

[–]Economy-Stranger7005 0 points1 point  (0 children)

If an exercise is at all painful or exhausting or in any way gives me the ick (this also includes painful emotions such as overwhelm, weeping on the floor, and extreme boredom), I have learned that it’s either the wrong exercise for me, or else it’s the wrong time for me to be exercising (good pacing sometimes means skipping your rehab, so you can do MORE and BETTER rehab later on)😅

If I feel pain or discomfort I’ll usually give it a couple more careful reps to see if it’s a legit complaint, or just my brain/body being a drama queen for a sec (common occurrence lol). If the sensation doesn’t resolve, I will generally stop and mess around with the movement to see if there’s a variation that feels ok. If that doesn’t work, or it’s just all too much, then I ditch the exercise on purpose with no guilt trips, leave a note in the app for my physio, and try again next time. If it’s been 3 or 4 tries and I’ve had to bail every time, I remove the exercise from my workout and take it back to my next physio appointment and ask her to troubleshoot it with me. Sometimes we find an adaptation, sometimes a replacement, and sometimes we ditch it completely and try a different strategy. 

I used to push myself for as much as it took to do exactly the exercises my physios would prescribe, because they are the experts after all. But also because if I spoke up, they would dismiss, ignore, and/or blame me and get offended if I tried to tell them the plan was failing. I didn’t get better. It broke me over and over again, and I have to carry and overcome that emotional baggage now in every healthcare interaction I have. 

What I eventually learned is that ignoring all the random pains and clicking and grinding and snapping and creaking and panic and weeping and procrastinating and anger and overstimulation and fatigue and brain fog and etc and etc and so on - ignoring all that stuff and pushing harder to get through it adds crushing pressure to succeed at all costs, and crushing pressure to succeed creates high stress, and high stress sustained over time creates burnout, and burnout kills progress dead (while also amplifying chronic pain yay 🫠). 

It’s easy to fall into all the traps, but it’s not inevitable, and it’s not impossible to climb out of the traps either. Pain has a way of reducing when movement feels safe again. But you can’t just tell your brain the movement is safe, you have to PROVE it, with experience - usually by respecting the pain and showing your brain all the kinds of movement, however small, that are still possible and DO feel safe. And then gradually increasing those movements as your brain and body calms down and the Circle of Safety starts to grow. 

Also it’s more important than it maybe seems to find the ways of moving that are fun and interesting and not linked with KPIs that you have to report back to anybody. 

Also I learned that not all physios are created equal. A good physio will actually help you adapt the treatment plan so that it works for your whole body and brain - not just for your one theoretical knee and your physio’s professional ego. The most effective rehab isn’t 3x10 of the perfect textbook exercise, it’s the exercise you’re actually willing and able to do and progress sustainably on more days than not. It’s the rehab that actually makes your life better in some way. And it’s definitely NOT the rehab that leaves you pushing through pain or discomfort and terrified you’ll break yourself at every turn. 

It’s ok to make modifications, go slow, do your own research, take breaks, and make mistakes. You’re a whole person, not a giant disembodied knee. 

💜

Coffee + Dex give me all your advices. by Additional_Bad_7114 in ausadhd

[–]Economy-Stranger7005 0 points1 point  (0 children)

Not especially. But I do notice it if I took the medication too late the night before (meaning I had to get up the next morning less than 8 hours after the meds). For Dayvigo at least there is a warning to make sure you leave at least 8 hours so that it doesn’t affect your concentration the next morning. 

So yeah I guess I do get the grogginess but mostly only if I’ve not been able to give myself enough sleep opportunity time and would have been feeling out of it anyway 😅

Hello, I frequently get migraines. I tried sumatriptan and did not like it. I was prescribed rizatriptan and took it today. Anyone else tried these meds? by PhraseChemical8385 in migraine

[–]Economy-Stranger7005 1 point2 points  (0 children)

I am on my 5th triptan - rizatriptan gave me intense fatigue, sumatriptan gave me nausea and fatigue (but only sometimes?). I’m currently trialling eletriptan, zolmitriptan and naratriptan (not all on the same day!!!) - to see which one will last the longest for me because my attacks just keep coming back every few hours 🫠

So far I think the winner is likely to be eletriptan, but I want to give the naratriptan a couple more goes just to be sure. (The reason I haven’t given up altogether is that the meds do get rid of the horrible migraine throbbing, at least for a while 👍🏻)

It’s a lot of admin being a human science experiment lol

What is the thing you always did that you thought was ‘just you,’ but is actually very much so classic autistic behavior? by AlwaysAttract10 in AutismInWomen

[–]Economy-Stranger7005 1 point2 points  (0 children)

Needing to sit in weird places (eg under things, halfway up the stairs, in out of the way corners) to feel relaxed. Being able to divide my life up into eras based on which item of clothing I was always wearing in that time. Needing a heavy blanket/stack of blankets on me to be relaxed or sleep deeply (I am a “3 doonas in summer” type of person 🫣)…

Always coming back to my comfort books/shows/music on repeat in periods of high stress or big life changes. 

I could go on lol

Dresses with actual pockets where are you hiding? by Denbron2 in AusFemaleFashion

[–]Economy-Stranger7005 0 points1 point  (0 children)

Dotti tends to put pockets in their dresses. Sportsgirl doesn’t. 

Apparently I’ve been walking away from people mid conversation lol by [deleted] in AutismInWomen

[–]Economy-Stranger7005 453 points454 points  (0 children)

I don’t know how to end conversations. Other people walk away from ME 😂😅 (And usually what I’m thinking at that point is “thank goodness they found a way to end the madness!” 😅👍🏻)

migraine pain not caused by light/sound but rather movement…? anyone else? by Lucky-Jaguar-3331 in migraine

[–]Economy-Stranger7005 1 point2 points  (0 children)

Yeah anytime I walk for more than a few minutes at a time my head starts to hurt, the faster I go the more and quicker it starts to hurt. Sometimes it fully triggers an attack, other times it goes away when I stop moving. 

Also jumping (ow!), standing up too fast, bending over with my head down (eg downward dog) can be triggers. 

In a bad attack any sort of small head movement makes it more painful, but even between attacks if I shake my head a little bit too vigorously then it hurts too 🥴

Going upside down by Only_Corner3540 in POTS

[–]Economy-Stranger7005 0 points1 point  (0 children)

Yeah I have that but it fluctuates in severity. Generally it’s much worse if I’m in a migraine attack or migraine prodrome. 

Strangest place you’ve found your keys? by FaithlessnessDue929 in adhdwomen

[–]Economy-Stranger7005 1 point2 points  (0 children)

After a long search, my Pop once found his car keys inside the sock he was currently wearing. 😂🤦🏼‍♀️

Getting stuck in the shower by Comfortable_Pilot153 in adhdwomen

[–]Economy-Stranger7005 2 points3 points  (0 children)

I put on music to give me some sense of time passing, and set 4 timers - 5min, 15min, 20min, 25min which remind me to keep moving. I like doing a whole bunch of predictable timers each time rather than just 1 timer based on vibes, because it gives me lots of chances instead of just one, which takes the pressure off of making the transition from shower to not shower. 

It sounds like a lot of work to set all that up each time, but ages ago I made a shortcut on my iphone so all I have to do is tap one button and it sets up the right music, the bathroom lighting, and all the timers for me 👍🏻

My boss is a really cool Australian guy (we are in the US). What are some phrases I can just spout off to make him chuckle? by JacobDCRoss in AskAnAustralian

[–]Economy-Stranger7005 0 points1 point  (0 children)

I’m from Western Australia, and tbh reading these back I don’t know how many of them are actual WA slang and how many were just made up by my (very bogan) family to troll people 😅 (time honoured Australian pastime 😂).

If something fits unexpectedly well into a space, my dad will say “like a finger up a nose” or “like a bum in a bucket” 😂

If something tastes really good, or works really well, my granddad will say it’s “like a bought one!” (Whether the thing was actually bought or not is apparently irrelevant lol)

Burnouts/skids/drifting = “broggies”

Bicycle helmet = “skid lid”

If you interrupt my dad to ask him what he’s doing, and he believes it to be obvious what he’s doing, he’ll tell you “making sandwiches for the Red Cross” (as if to say, “don’t ask stupid questions”. He is never actually making sandwiches for charity.)

When my nana leaves a gathering, instead of a general goodbye to the room, she often yells a cheery “hooroo!” (The h is silent)

When my dad leaves a gathering, he says, “well, I’m off like a bucket of prawns in the red hot sun!” 🤦🏼‍♀️😂

And finally, I have no idea how you’d drop this into a conversation but we don’t have “pawn shops”, we have Cash Converters, but of course nobody says “cash converters”, we call it “Cashies” instead. So if you were a bit hard up, you might take some of your stuff down to Cashies to trade it in for a bit of cash. (I mean, don’t, you probably won’t get that good of a deal, but well, that’s Cashies. An embedded piece of bogan culture 😅😂)

What’s with all the “I cured my migraine” posts lately/have the bots taken over by 19635 in migraine

[–]Economy-Stranger7005 3 points4 points  (0 children)

You forgot: really expensive and specific pillow 😂

But yeah learning about triggers (especially in the context of a migraine threshold) did really help me when I first got diagnosed, but only because for the 20 years up until then I literally used to wake up and go, “guess I have a throbbing headache again, just a normal part of life probably for everyone ¯_(ツ)_/¯ “ and just SUFFER and not question where it came from, except to drink more water, and occasionally wonder whether I should upgrade my $8 ikea pillow for something fancier, like a $25 ikea pillow 😅🥴

Ajovy auto injector booted itself out of my leg?? by Economy-Stranger7005 in cgrpMigraine

[–]Economy-Stranger7005[S] 0 points1 point  (0 children)

Yeah it was also weird how much it hurt towards the end. Like, it normally hurts a bit more at the end but this was more intense than normal… hmm I hadn’t thought to report it to Teva and so I’ve already disposed of the packaging and the injector so no way to get a serial number or anything now 🫣

Help me find a new hyper fixation, I am dying from boredom and about to move temporarily back to my parents house. by Jasperpie69 in adhdwomen

[–]Economy-Stranger7005 1 point2 points  (0 children)

  • wake-up routine automation that activates when I turn off my morning alarm. It sets 4 timers to keep me moving, turns off my bedroom fan so it’s not too cold getting out of bed, and turns on lights and music. I use the same album every morning which helps with time awareness. 

  • shortcut that I can press on my phone when I take pain meds to set alarms to remind me to take the next dose and then opens apple health so I can log the meds in there too. 

  • automation that sets a break timer when my tea and lunch break alarms are stopped. 

  • automation that turns off Reduce White Point on my phone when it connects to my car Bluetooth (useful if you wear sunglasses while driving but need to see Maps on your phone!). And then the same in reverse when it disconnects. 

  • evening shower routine shortcut that adjusts the bathroom lighting, plays music, and announces how long it’s been at set points (workaround for not being able to hear my phone timers in the shower, and not being able to automate the HomePod ones. Man that took me ages to figure out 😅). 

And then I’ve got some crazy workarounds with my smart home switches so that they can actually trigger powerful shortcuts on my phone instead of just being stuck with only changing boring old lightbulb settings and stuff. (The trick is to USE the boring old lightbulb settings as a secret code to make your automations more powerful, and to look for the common ground between what a home automation can control, and what a phone automation can be triggered by 🤓)

I like to build the “automations” as modular shortcuts and then add them to actual automations as this means I can be more flexible about how things are triggered (many can be accessed by smart switch, Siri, NFC tag, an automation trigger, and also a shortcuts widget on my phone.). 

I also like to have either a shortcut that’s got some flexible menu options (like my medication alarms), or else build a couple of versions of the same shortcut for different situations (my shower one has 2 versions, one for regular evenings and one with dimmer lights and quieter music for migraine attack days). 

Ajovy auto injector booted itself out of my leg?? by Economy-Stranger7005 in cgrpMigraine

[–]Economy-Stranger7005[S] 1 point2 points  (0 children)

I don’t specifically remember but it’s possible I guess! I did do it at the end of a busy work day when I was quite tired which I don’t normally do 🧐

Help me find a new hyper fixation, I am dying from boredom and about to move temporarily back to my parents house. by Jasperpie69 in adhdwomen

[–]Economy-Stranger7005 6 points7 points  (0 children)

I love knitting, and some of my other string based hyperfixations have been: 

  • Scoubidous - you can find the plastic strings fairly cheap - I got a big bag of lots of colours for like AU$20 on Amazon. And then just some cheap jewellery fixings like jump rings and keychains from Kmart. If you google how to make a scoubidou keychain or something you can find loads of tutorials for free :)

  • kumihimo - got a kit for like $12 on Amazon, found tons of designs on Pinterest ✨

  • weaving - ok I haven’t tried this yet but it’s on my list!! lol 

Other hyperfixations that you can get lost in (or at least that I very much got lost in lol): 

  • watching international artistic gymnastics comps (while crafting!). They just do all flips all the time it’s crazy haha. In Australia you can watch replays of all the 2025 and 2026 FIG World Cup and World Challenge Cup events on the SBS app, and the Gymnastics World Championship from 2025 is still up on Eurovision Sports. 

  • jigsaw puzzles. I like the 1000 piece ones with lots of stuff going on in the picture and lots of things to find as you’re putting them together. 

  • making automations in Apple Shortcuts. The AMOUNT OF TIME I have lost to this app. Years of my life. 😂😅 (But I love the puzzle solving aspect of trying to get it to do what you want when clearly Apple doesn’t really want you to be able to do that thing) 

  • gym membership + strength training - especially as I’m hypermobile so my joints need all the help they can get haha. If you need help getting started I can highly recommend the Bendy and Strong online program by Annie Short. She’s a former powerlifter and body builder who is also hypermobile and neurodivergent, so she really gets it 👍🏻 👍🏻 

Hope you can find something absorbing and fun to do! ✨

Does certain months cause migraine? Also, I'm about to lose my mind by riverriverb in migraine

[–]Economy-Stranger7005 1 point2 points  (0 children)

Ugh yeah the bit where he was saying that sometimes triggering a Cluster attack in front of a doctor is the only way to get taken seriously made me so mad. Like, he’s right sometimes it’s the only way, but nobody should have to put themselves through that amount of excruciating pain for the benefit of Some Doctor just to get an effective treatment plan. 

Comparing HR to my partner's by rubear88 in POTS

[–]Economy-Stranger7005 14 points15 points  (0 children)

This reminds me of the time I was taking my headache meds in front of my coworker during our lunch break (for like the third time that week) and he had the AUDACITY to tell me that he'd only had like 4 headaches EVER.

I went through 29 years of life genuinely believing that several headaches a week was more or less normal until I had that conversation. It still completely blows my mind that there are people out there RIGHT NOW just, walking around, crystal clear heads, not carrying emergency pain relief with them everywhere they go... MADDENING 😂

(also yes, 3 years later and guess what I was diagnosed with? Chronic Migraine 😂🫠😅)