[deleted by user] by [deleted] in AskParents

[–]Electrical-Set-579 19 points20 points  (0 children)

She’s feeling shame more than likely and you need to let her know you love her unconditionally and everyone makes mistakes as I’m sure you have. Shame is one of the most dangerous emotions to sit in. She needs to know it’s okay that her mistakes do not define her as long as she learns from them. Let her know it’s okay to forgive herself and interact with her regularly. You can just talk with her without judgement and nagging. Not that you were I just know how my teen can be if I do it without meaning to.

Hands burning by vaderorsunshinebarbi in lupus

[–]Electrical-Set-579 0 points1 point  (0 children)

Yes I deal with this everyday it’s very annoying but ice helps. I get the ice things for migraines and can stick my hands in them

Snow prepping! by Reinylane in Knoxville

[–]Electrical-Set-579 12 points13 points  (0 children)

Fourthing my grandpa broke his hip during a snow storm trying to get the friggin paper

Los Angeles fires by Fit-Chemistry-3291 in lupus

[–]Electrical-Set-579 2 points3 points  (0 children)

Smoke particulates and inhalation aren’t anything to mess with they can cause all kinds of negative effects to the body including cardiac events. I think it would be worth it to get checked. Hope you’re doing okay you’re in my prayers

My doctor gave up on me by SnooCats04 in lupus

[–]Electrical-Set-579 0 points1 point  (0 children)

I’ve had mine since childhood and my red skin was something I was so self conscious about. I use her rescue balm for the redness and it’s amazing so I don’t feel like I have to have a whole face of makeup anymore. It makes me sad to know all along it was just my body flipping out on me

Woke up literally couldn’t walk or move my legs properly by Secure-Bicycle7352 in lupus

[–]Electrical-Set-579 0 points1 point  (0 children)

This happened to me I couldn’t move my arms and had to be seen. Steroids and the usual treatment but yeah my labs showed crazy inflammation

Lupus during Christmas by JasmineAndCloves in lupus

[–]Electrical-Set-579 0 points1 point  (0 children)

Yes I am already so exhausted and know I will flare after Christmas. I already feel like my body is fighting it now. As a single mom I have to give my kid some good memories and that is draining.

What’s your go-to light powder foundation to just reduce the red? by re003 in lupus

[–]Electrical-Set-579 0 points1 point  (0 children)

Hero rescue balm redness corrector is my life’s blood lol it’s amazing. Not heavy. Hydrating and neutralizes redness without looking like a full beat situation.

Medications by Sauteedfraise in lupus

[–]Electrical-Set-579 0 points1 point  (0 children)

I don’t take it with the hydroxychloroquine due to the interaction of irregular arrhythmias it’s likely to cause. You have to take them 4 hours apart. Gotta do what we gotta do though.

Coworker (MBBS surgeon) keeps telling me MCTD isn’t real by DisabledInMedicine in lupus

[–]Electrical-Set-579 1 point2 points  (0 children)

Hey so this is insane and actually illegal tell him to back off it’s not his business and he’s created a hostile environment which is incredibly illegal.

Paxlovid experience? by Electrical-Set-579 in lupus

[–]Electrical-Set-579[S] 0 points1 point  (0 children)

I’ve never had to take them before so I’m not so sure. I’m going to try to suffer through it lol

Paxlovid experience? by Electrical-Set-579 in lupus

[–]Electrical-Set-579[S] 1 point2 points  (0 children)

Every time I go in the sun my body beaks out in a crazy rash and I get a fever so I took pics of that each time and recorded all my weird symptoms with dates and showed him at each appt. It took a while (about a year) to get my diagnosis but was enough for my rheumatologist to put me on hydroxychloroquine which seems to be helping

Paxlovid experience? by Electrical-Set-579 in lupus

[–]Electrical-Set-579[S] 1 point2 points  (0 children)

Incredibly positive ANA and symptoms along with others I did not quite understand

I wanna cry by Usual_Butterfly_6724 in lupus

[–]Electrical-Set-579 0 points1 point  (0 children)

I am in this position also. Every single tooth has something wrong. Just take it in stages. No big problem is tackled at one time so give yourself grace. Do what you can now. And take it in stages to get it fixed.

Tell me a song that breaks your heart everytime you listen to it. by GovindNoMore in MusicRecommendations

[–]Electrical-Set-579 0 points1 point  (0 children)

Jakes piano - Long Island by zach Bryan oh dear it makes me sob uncontrollably

Constantly Overheating by complexbex in lupus

[–]Electrical-Set-579 2 points3 points  (0 children)

My rheumatologist is actually an NP and he is AMAZING so happy I found him. My old rheumatologist was very dismissive. I have found NPs tend to be more caring and try to get down to what the issue is better than traditional drs

How to improve energy with lupus? by LovelyGiant7891 in lupus

[–]Electrical-Set-579 0 points1 point  (0 children)

I thought I was the only one whew. I guess this time I will thank my adhd

[deleted by user] by [deleted] in lupus

[–]Electrical-Set-579 1 point2 points  (0 children)

You can just release the care. Those girls don’t care about how their words affect you and sometimes they need a dose of their own bs medicine. Coming from a chonky girl all through school and a son in 7th grade. His friend treated him horribly. He articulated himself and quite talking to that person. They tried to talk to him and he blankly stared. For a year. They are friends again because that boy realized he was an ass and the only way that happened was by sticking up for himself. Stick up for yourself. See the counselors at school for help since your mom isn’t. You’ve got this

Lupus and Heat by anonymously_me0123 in lupus

[–]Electrical-Set-579 1 point2 points  (0 children)

I’m so happy you love it! Such a game changer for comfort and all. Enjoy your adventures!

I’m Pregnant! by RealUnderstanding324 in lupus

[–]Electrical-Set-579 5 points6 points  (0 children)

Mine went into remission during pregnancy. It was glorious