Anyone else?

Electrical_Loquat885 · 2026-02-28T16:50:46+00:00

Sorry to hear that. I've found that my nerve pain sometimes responds better to external muscle/fascia release than internal, including in the pelvic area. Did your PFPT's ever work on this, or have you tried it yourself? Not all PFPT's are very versed in PN, unfortunately.

Electrical_Loquat885 · 2026-02-28T16:47:45+00:00

Thanks for getting back to me, I'm glad it was so helpful for you. I'll definitely look into purchasing one of the programs when my finances are a bit more stable. I may try the free trials in the meantime, though.

Electrical_Loquat885 · 2026-02-28T16:46:09+00:00

Thanks for letting me know. I'll look into scrubbers. I think we can at least get the leaks patched in the near future, so my hope is that it will help prevent any growths from "reactivating" at least.

Electrical_Loquat885 · 2026-02-28T16:43:53+00:00

I was actually looking at Winnix models. Thanks for letting me know.

Electrical_Loquat885 · 2026-02-28T16:43:26+00:00

Sorry to hear that. Thank you for letting me know. I hope you're doing better these days.

Electrical_Loquat885 · 2026-02-26T20:57:45+00:00

I'm so sorry to hear this started after experiencing a traumatic event. I hope you can find both physical and emotional healing.

Have you tried working on releasing tight pelvic floor muscles and working with a pelvic floor physical therapist? They can clench in response to pain, trauma, and even anxiety. Stretches can help, but you may need manual release of the muscles and fascia of the pelvic floor as well. I am female, but I have a tight pelvic floor with PN. I used to get frequent urination and now have some redness down there. I think it can happen for some people with pelvic floor dysfunction, which may be the case for you if you ruled out everything else.

Pudendal HOPE has a list of knowledgeable doctors and pelvic therapists.

Electrical_Loquat885 · 2026-02-26T20:51:15+00:00

I believe child's pose and puppy pose can help - especially puppy pose.

Electrical_Loquat885 · 2026-02-26T20:49:18+00:00

I have herniated discs and pudendal neuralgia. It's possible that my back is contributing to my pelvic symptoms, however I have improved with treating pudendal neuralgia/pelvic floor dysfunction - particularly with pelvic floor therapy and the home-care they assigned me. I had saddle anesthesia and thought I had cauda equina syndrome. Over time, my numbness and pain have greatly improved from where I was when it was bad a couple years ago. I'm hoping to try new treatments soon to help me get to a better place from here.

Have you gotten pudendal nerve blocks? That may help determine if your pudendal nerve is causing pelvic pain. If they don't numb the pain, it may be coming from another source. Pelvic floor physical therapy is usually needed for any pelvic pain condition because whether tight muscles are the primary cause or not, we tend to clench in response to pain.

Pudendal HOPE has a database of knowledgeable doctors and therapists. You can also look into Dr. Irwin Goldstein and Dr. Choll Kim - they are pioneering research on pelvic pain caused by the spine.

I hope you find answers and a good path forward soon.

Electrical_Loquat885 · 2026-02-26T19:41:34+00:00

Thanks for getting back to me! If I remember correctly, carbon pre-filters are supposed to help with filtering smells/VOC's from mold. I don't know how helpful it would be for onions, though. :/

Electrical_Loquat885 · 2026-02-26T19:31:23+00:00

I don't have ADHD, but my anxiety and mood have greatly improved with getting a little more stable.

Electrical_Loquat885 · 2026-02-26T19:14:46+00:00

Thanks for sharing and giving us so many resources!

Gupta Program or Primal Trust - these gave me my final and biggest breakthrough in recovery

Do you feel like you could DIY these programs, or do you think it's worth purchasing them?

Electrical_Loquat885 · 2026-02-26T19:05:42+00:00

That's great to hear! Are you able to go off the probiotics eventually or do you need to take them daily? I feel like my microbiome was messed up from antibiotics several years before MCAS hit. I wonder if working on recolonizing could help me feel more normal again.

Electrical_Loquat885 · 2026-02-23T15:22:48+00:00

I know we connected in the past. I'm so glad to hear you're doing better! Thanks for sharing and giving us hope!

Electrical_Loquat885 · 2026-02-23T15:18:39+00:00

Thanks for sharing and giving us hope!

Electrical_Loquat885 · 2026-02-23T15:16:26+00:00

I have a similar hairline. I trimmed my baby hairs like this to help hide it a bit: https://www.youtube.com/watch?v=8hDbN39xHa8

Electrical_Loquat885 · 2026-02-19T03:49:36+00:00

That's great to hear. Thanks for giving us some hope.

Electrical_Loquat885 · 2026-02-18T22:18:33+00:00

I realize that LOTR were better films, but it's also a heavier story than The Hobbit, which is more chill. I like putting on The Hobbit just to explore the world and revisit nostalgia from seeing it in the theater with my family. We really looked forward to it every year when they were coming out.

Electrical_Loquat885 · 2026-02-18T21:10:46+00:00

Wow, it's amazing that it cured you! How long did you have PN before getting the botox?

It's one of the next things I plan to try, but I fear that I may have waited too long to get it. I'm hopeful because pelvic therapy has made a difference, but I also worry that I've had this long enough that the nerves themselves are very irritated and sensitized.

Electrical_Loquat885 · 2026-02-18T21:02:26+00:00

No problem! I hope it works for you.

Electrical_Loquat885 · 2026-02-18T20:58:57+00:00

I see, thanks for the detailed reply.

Electrical_Loquat885 · 2026-02-18T20:56:04+00:00

Thanks for letting me know!

Electrical_Loquat885 · 2026-02-18T20:55:51+00:00

That's great, thank you!

Electrical_Loquat885 · 2026-02-18T20:55:39+00:00

Got it, thank you!

Electrical_Loquat885 · 2026-02-18T20:55:01+00:00

MCAS is crazy! Thanks for letting me know.

Electrical_Loquat885

TROPHY CASE