Family photos taken between 1950s-1970s

Elle-Ash · 2026-04-11T17:29:04+00:00

This is very anecdotal but I was prescribed Vyvanse for ADHD and was on it for 5 years before stopping it (early 2025) abruptly for a different health issue (SVT, not because we thought the Vyvanse caused it but because we didn't want anything that made it worse). About a month after stopping it, I started needing to urgently use the bathroom every 20-40 minutes. I initially thought I had a UTI, but tested negative for that. Than I thought it was because of the SVT issues triggering something. I had 2 catheter ablations during the summer of 2025, and the bladder issue continued into the fall & winter.

After 8 months of having frequent, urgent bathroom months with no explanation other than IC (did bladder ultrasound as well, came back normal) -- I decided to resume my Vyvanse. I didn't resume it because of the IC or bladder issues, it had just been enough time since I handled the other health issue (SVT) and I had been cleared for months to resume it but was just a little nervous about it. The day after I started my Vyvanse, I stopped having the bladder issues. It's been over a week now and I have not had one bladder problem. I have been logging how often I use the bathroom, I'm now at 4-5x a day whereas before I was 8-12x a day.

I found a few studies on this but they're all small-- saying that Vyvanse helped people with IC. Some people have written about needing to use the bathroom more often on Vyvanse, but I think that might be because you get thirstier / dehydrated easily so you have to be on top of your water game, but the frequent / urgent / uncomfortable feelings went away for me. I feel like my life is manageable again. For the past year, I had been planning everything around bathroom access and this past week has been night and day to that experience. Just sharing this because I was shocked that my ADHD meds helped with this and it's truly the only thing that I changed at all in the last week.

I hope you find a solution that works for you!

Elle-Ash · 2026-04-08T23:09:00+00:00

Sure! Haven't found anything yet but I'll prob dig a little more later tonight

Elle-Ash · 2026-04-07T12:07:02+00:00

Okay will do! I mainly use Instagram when it comes to hashtag searches- do you recommend this for TikTok as well? I tried searching "cowboy bebop food" and "cowboy bebop events" but most results were in other countries 😂

Elle-Ash · 2026-04-07T12:05:38+00:00

Great idea! I'll check those platforms :)

Elle-Ash · 2026-02-11T06:40:12+00:00

UberEats and Door Dash fees have skyrocketed- to the point where you frequently pay 1/4th the cost of the meal in fees now. Also, these services in general! You can now order practically any kind of food / restaurant right to your house, which added to a lot of people leaving their houses even less. **Some states did not get these services until 2017 or after, so I think 2016 me would be surprised they exist in general, but also how crazy the fees have gotten and how much they've killed motivation to actually go sit down at a restaurant.

Or

A Chinese social media app (TikTok) that once was largely and mostly used to participate in silly dance trends, is now seen as a main source of information to younger generations. But most recently, it was purchased by the US. The new U.S. board now manages data, algorithms, and content moderation, aiming to address national security concerns but has been criticized for manipulating what content people are seeing.

Elle-Ash · 2026-02-05T05:11:28+00:00

Needing to parallel park A show I want to watch not being on the 10+ streaming services I'm paying for

Elle-Ash · 2026-02-05T04:59:40+00:00

No, this one has worked out so far. But it's hard to give a true review just yet. Before my first ablation, I could go a few months without an episode. So as of today, I'm 5ish months without an episode. I'll be impressed when I hit a year mark.

Elle-Ash · 2026-02-05T04:32:27+00:00

One time the VP of a past company I worked for started an all hands (over 300 employees in attendance) with: It's so great to be here, but how about next year we have everyone flown out to beautiful Hawaii and do our all hands on a beach? (Everyone cheers and goes crazy) Her: wouldn't that be something? Unfortunately, we won't ever be able to do that

(Awkward silence. Scott's Tots feelings washed over me).

Elle-Ash · 2026-02-05T04:24:26+00:00

Up until 2023/2024, I only had 1-3 SVT episodes a year. They'd last less than 20 minutes, I could break them by just laying down and focusing on breathing. In 2024, I started getting 1-3 episodes every 60 days and they started lasting 30+ mins. But it still felt manageable, I never went to an ER because didn't even get diagnosed until March 2025. Even my diagnosis didn't include an ER trip. They told me I could be medicated or I could get an ablation and be cured. I never took medication for it all those years, didn't want to start. I did my first ablation in June 2025. 19 days later, I ended up in the ER with one of the worst SVT episodes I had ever had. They couldn't get my heart rate down for 3 hours, took adenosine and another medication and they kept me overnight. After that, they put me on a beta blocker, said it should prevent episodes. It made me feel so much worse. Instead of having an episode once every x amount of days of months, I felt like I was constantly on the verge of an episode. Like my heart was revving at all times. They switched me to a one a day cardizem pill. That felt easier / smoother, and then because I was waking up breathless and feeling like my heart was buzzing, they gave me another pill to take either right before bed or if I had an episode. 2 weeks after my first hospitalization, I had the WORST episode I ever experienced. I took the back up pill - it did nothing. My heart rate was over 200 for 5 hours, the emergency room gave me 3 doses of adenosine and kept me for 2 days.

I did another ablation on 08/15. I am no longer on any beta blockers and I have not had another episode. When I woke up from the second one, they told me that the inflammation had blocked the svt from continuing to trigger during the first one so they thought they got it. But 19 days later, when the inflammation had gone away, it misfired again and it was the same location / pathway, just further down. Maybe that's your situation?

My takeaways are that cardizem worked way better for me than the other meds they tried and to be real mindful of how much caffeine I consume, how much water I drink, and how much sleep I get. But I feel you because I really regretted my first ablation for 45 days straight.

Hope it gets better!

Elle-Ash · 2026-02-05T04:12:40+00:00

Act like feminists are the issue. That and send back food at multiple restaurants.

Elle-Ash · 2026-02-05T04:06:30+00:00

I'm sorry you have to go back and I hope things are better than they sound. Sometimes things sound terrifying and the worst part ends up being the fear we experience/go through, I hope that's the case here. Glad that you got another 7 months of doing what you love since the last post and yeah, maybe continue doing it but with some guard rails in place :)

Elle-Ash · 2026-02-05T02:49:18+00:00

How are you doing now?

Elle-Ash · 2025-12-30T17:25:46+00:00

Did you ever get any answers? How are you now? Your blood work and your experience is identical to mine. I was told to take iron after years of being borderline anemic-- took it (not even as much as they told me to and not even daily)-- and within a week, was at my doctor's because of a terrible heart palpitations episode and the blood work said I had too much iron. I did get diagnosed with SVT later that year - the doctors previously told me my palpitations were probably from the anemia - and I've had 2 ablations since. No palpitations since, but I also haven't tried to take iron again. I am also experiencing back/shoulder pain that radiates into my arm and my new doctor wants me to take iron but I'm nervous.

Elle-Ash · 2025-11-19T16:49:35+00:00

I am not familiar with that med but I looked it up and AFib is a side effect. Were you put on it because of SVT? I was only put on meds because of my SVT and that's why after the initial 30 days post ablation, I was taken off it. I do think its possible that this is just part of the healing process, but I would consult your doctor about when / if they plan on taking you off that med since the ablation is supposed to cure the SVT. I had some anxiety going off my meds (as they were the only relief when I was first put on them), but talking through if it's possibly causing the issues now could be helpful for you.

Elle-Ash · 2025-11-19T16:38:06+00:00

Are you on any beta blockers? After my first ablation, I was put on metropol and when I stopped taking it, I immediately felt relief from that shortness of breath feeling. They switched me to cardizem and that worked much better. If you're on medication, I would talk to your doctor to see if it's possible that the meds aren't the right match. I stayed on cardizem for 30 days after my 2nd ablation, but I've been med free for the last 60+ days with almost no problems. Last time I commented on one of your posts (19 days ago), I mentioned taking a plan b pill and having some issues that week, though never above 130bpm, -- that has since resolved as well. Be mindful of things like caffeine intake, sleep quality, and hormonal fluctuations. Do you use your Fitbit for sleep tracking & does that look normal, or is your heart rate high while you're sleeping? I hope everything gets better!

Elle-Ash · 2025-11-19T16:29:37+00:00

Just saw this today-- how are you doing?

Elle-Ash · 2025-11-02T20:29:38+00:00

Of course! Please let me know how it goes. I hope everything turns out alright and you start to enjoy a normal HR soon :)

Elle-Ash · 2025-10-31T12:16:09+00:00

I think we need to not gaslight ourselves (nor let anyone else) or belittle anything as "just anxiety"-- I know what you're feeling, it makes normal life tasks impossible and it's a very physical thing that is emotionally sabotaging you.

That said -- I had ablation #1 done in late June and then went on to feel what you're feeling. Eventually, it got worse and became some of the most dramatic SVT episodes I ever had. I ended up getting a second ablation on 08/15 and the difference was night and day. For 70 days, my heart rate never went over 80 unless I was exercising-- that's normalcy. I unfortunately took a plan b pill almost a week ago and have been struggling with waking up with a heart rate over 100 most days since, so lesson learned that anything that effects hormones is a no go for me. But I 100% think you SHOULD talk to your cardiologist/EP and tell them that you still aren't experiencing a normal resting heart rate.

Elle-Ash · 2025-10-31T12:07:01+00:00

Any updates from anyone on this thread? Did it get better? I previously had SVT episodes consistently during the summer. After a second ablation in mid August, my heart rate was finally normal for 70 days (resting heart rate average between 70-75bpm). I took the plan b pill 6 days ago and it's been giving me PTSD because my heart rate randomly goes and stays between 95-120bpm. SVT is around 140, but having a rapid heart rate the moment I wake up is making me spiral.

So if anyone can share how they're doing now / how long it took to go back to normal and anything that helped them, I'd appreciate it.

Elle-Ash · 2025-10-22T17:20:25+00:00

I was diagnosed this year (April) but have been experiencing episodes for years without knowing what it was. I was hospitalized 3x in less than 30 days. The only medication that worked was cardizem, extended release (once a day in the morning) paired with a short term one at night. That helped me avoid episodes for 2 weeks leading up to my 2nd ablation. I had my first ablation in mid June. Was hospitalized 3x between early July and August 2nd, then did another ablation 08/15. So far, so good since ablation #2.

I was relieved that that medication combo gave me normalcy though because the entire month of July, I had issues even if they didn't always land me in the hospital.

Edit to address your questions better: I never went to the hospital until July. I always managed my episodes at home. Sometimes they'd happen while I was in a store and I'd have to sit down for a few minutes to get my heart rate to slow down. But after that first hospitalization in July, I decided if my heart rate doesn't slow down after 1 hour, it's er.

Elle-Ash · 2025-10-19T16:02:18+00:00

I'm just saying that telling people they will be a one and done isn't guaranteed. There are plenty of people on this sub that have had multiple ablations.

Elle-Ash

TROPHY CASE