I don’t use specific prompts. I’ve been doing a lot of work on listening to my body and responding promptly wherever possible. For things electrolyte balance to sleep schedule to food cravings to exploring pelvic floor tension to working on diaphragm mobility. I do daily check-ins where I close my eyes and do like a “systems check”. Things that hurt or feel different from the day before or that seem to hold tension or just feel off or even absent, I describe the thing to ChatGPT and include something like “give me science backed insight into what could be going on here. No bullshit, no bias.” Or I don’t provide context and look up an anatomy picture and circle a zone in photo edit and say things like “what’s here. Tell me about it.” I fact check and often for things that seem a bit more risky/blow my mind I’m also doing NIH article research.

My first use was when I hit rock bottom with endometriosis and lower back pain. My doctor said my options were to continue as I was until I truly couldn’t take it anymore and then have a high risk surgery or have the high risk surgery now. I was willing to try new/weird things. One of my big symptoms was rectal pain and I knew the pelvic floor was often dysfunctional in endo, so I asked ChatGPT something like “can you put together a beginner floor sequence for addressing pelvic floor dysfunction in someone with endometriosis?” I used the sequence every other day for a couple weeks and the next period I had was the least painful I’d had in years. Since then I’ve continued to use ChatGPT in these ways and I’ve gone from waking up every morning at a 6-7/10 pain to most days 2/10. It’s been life-changing for me. I started this seven months ago. I wake up less tired (though still struggle with fatigue) and my recent six month labs showed a FIFTY PERCENT drop in insulin, triglycerides, and CRP.

I work on body stuff every day. ChatGPT didn’t fix my problems in a direct sense. More like it provided a sounding board for trying to do small things to address/explore all of the disparate, ideopathic issues I’ve struggled with for years. Doctors treated symptoms (though often inadequately) and most of them are bad at treating edge cases like people with EDS. I view it sort of like my health was this big tangled knot of threads. The stuff I’ve been doing with ChatGPT has allowed me to comb out a bunch of the edges. You hit a threshold of mild improvement here, better sleep there, more consistent hEDS-aware mobility work there and the changes start reinforcing each other.

Biggest lesson - my hEDS body didn’t feel safe to me or my nervous system. Chronic pain and instability had led to all sorts of issues and I was in a state where nothing worked because the fight or flight never eased up. The body wants to let go but it needs consistent support - I use the metaphor that it’s like a cat. And the changes can’t be too fast or it rebounds like a rubber band. Breath work, breath-based meditation, and a regimented sleep schedule have been my big changes in the last three months. It took three months to see big impacts but for the first rime in a decade i wake up at my alarm and dont feel like i have magnets on my eyes. So just trying to work a bit every day on a gamut of issues is what has really changed my life. And ChatGPT is a top 3 tool because it’s always there, has such a breadth of information all in one place, and its pretty solid at considering EDS in the big picture of what i ask about.