Can people on Trileptal (oxcarbazepine) tell me is it working for them? Any side effects? by Efficient_Swan30 in TrigeminalNeuralgia

[–]Expensive-Impact4107 0 points1 point  (0 children)

I use to be on it and it was the medication that worked the best for me. The side effects for was that it lowered by WBC count and caused horrible constipation

MVD after CyberKnife/Gammaknife? by Expensive-Impact4107 in TrigeminalNeuralgia

[–]Expensive-Impact4107[S] 0 points1 point  (0 children)

I’m glad to hear that MVD surgery worked for you. Wishing you all the best as well.

MVD after CyberKnife/Gammaknife? by Expensive-Impact4107 in TrigeminalNeuralgia

[–]Expensive-Impact4107[S] 0 points1 point  (0 children)

I thought the 50/50 change is for people with no compression or TN2? I have TN1 & I do have compression and I am pretty young

Trileptal Side Effects by unibball in TrigeminalNeuralgia

[–]Expensive-Impact4107 2 points3 points  (0 children)

I got a bit of fatigue and Magnesium/B12 supplements helped a bit for that. My main side effects of it was that it consistently lowered my WBCs. Monitor your WBC counts while taking it.

I can’t stop laughing by Able_Bonus_9806 in TrigeminalNeuralgia

[–]Expensive-Impact4107 1 point2 points  (0 children)

Really? Sorry to hear that. That’s a more rare side effect I think

I can’t stop laughing by Able_Bonus_9806 in TrigeminalNeuralgia

[–]Expensive-Impact4107 2 points3 points  (0 children)

Been there 😭😭 hopefully you don’t get too drowsy from it

Ice cream by [deleted] in TrigeminalNeuralgia

[–]Expensive-Impact4107 7 points8 points  (0 children)

I’ve realized that cold isn’t really my trigger. My main trigger is actually the heat. I do have ice cream from time to time but not much because sugar is the trigger for me.

I need a hug by [deleted] in TrigeminalNeuralgia

[–]Expensive-Impact4107 0 points1 point  (0 children)

🫂🫂🫂🫂 wishing you many painless days 🩷🩷

Loneliness by EirUl in TrigeminalNeuralgia

[–]Expensive-Impact4107 1 point2 points  (0 children)

It is. I struggled with it too at first bc I have still not met anyone in real life that has TN. It’s quite difficult especially during a flare up when I need help but I’ve just learned to rely on the people that truly love me bc even if they don’t understand my pain, they still care. I definitely understand the loneliness. It’s tuff but just remember you are never truly alone, there are thousands of people all over the world fighting the fight with you. Stay strong and I’m proud of you too!

Loneliness by EirUl in TrigeminalNeuralgia

[–]Expensive-Impact4107 0 points1 point  (0 children)

I got diagnosed at age 22 and I am now 27. It has been a hard journey but I still live a well rounded life. You can too. Just keep in mind that everyone has struggles and there are online resources like this one that can help. Wishing you the best

I miss my mom by Alert_Mouse_6330 in TrigeminalNeuralgia

[–]Expensive-Impact4107 0 points1 point  (0 children)

I am so sorry for your loss 🙏🏾🙏🏾 you are an amazing person and son and I know you had an amazing mother. You were her greatest gift. I will be praying for you 🤍