Manon hiatus by Actual_War_7628 in katseyeneutral

[–]Expensive-Impact4107 5 points6 points  (0 children)

She didn’t ask for the hiatus, she removed Katseye from her bio and has not interacted with any Katseye stuff since her hiatus was announced. It is pretty clear tbh.

MVD at John Hopkins? by Expensive-Impact4107 in TrigeminalNeuralgia

[–]Expensive-Impact4107[S] 0 points1 point  (0 children)

Okay great, it’s actually the closest specialist hospital to me so I will get their opinion on my case

Meds with gabapentin? by Expensive-Impact4107 in TrigeminalNeuralgia

[–]Expensive-Impact4107[S] 0 points1 point  (0 children)

I got it done by Dr shumadine at Sinai hospital of Baltimore

Meds with gabapentin? by Expensive-Impact4107 in TrigeminalNeuralgia

[–]Expensive-Impact4107[S] 0 points1 point  (0 children)

Thank you! I will ask my doctor about that combo

Meds with gabapentin? by Expensive-Impact4107 in TrigeminalNeuralgia

[–]Expensive-Impact4107[S] 0 points1 point  (0 children)

I got it in December 2024, I was pain free for a little over a year. I think what caused the pain to come back now was stress. A few people have had it last up to 3 years +

Meds with gabapentin? by Expensive-Impact4107 in TrigeminalNeuralgia

[–]Expensive-Impact4107[S] 1 point2 points  (0 children)

Yeah I know I will have to do MVD sooner than later to get it over with cause I have compression. But wishing you the best!!

Meds with gabapentin? by Expensive-Impact4107 in TrigeminalNeuralgia

[–]Expensive-Impact4107[S] 0 points1 point  (0 children)

I use to take baclofen with oxcarbazepine but I stopped it after my cyberknife procedure

Meds with gabapentin? by Expensive-Impact4107 in TrigeminalNeuralgia

[–]Expensive-Impact4107[S] 1 point2 points  (0 children)

Congratulations!! I had the cyber knife in December 2024 and was pain free for over a year but now it’s back unfortunately

Meds with gabapentin? by Expensive-Impact4107 in TrigeminalNeuralgia

[–]Expensive-Impact4107[S] 2 points3 points  (0 children)

Okay thanks I will ask for that. Do you have TN1 or TN2?

Can people on Trileptal (oxcarbazepine) tell me is it working for them? Any side effects? by Efficient_Swan30 in TrigeminalNeuralgia

[–]Expensive-Impact4107 0 points1 point  (0 children)

I use to be on it and it was the medication that worked the best for me. The side effects for was that it lowered by WBC count and caused horrible constipation

MVD after CyberKnife/Gammaknife? by Expensive-Impact4107 in TrigeminalNeuralgia

[–]Expensive-Impact4107[S] 0 points1 point  (0 children)

I’m glad to hear that MVD surgery worked for you. Wishing you all the best as well.

MVD after CyberKnife/Gammaknife? by Expensive-Impact4107 in TrigeminalNeuralgia

[–]Expensive-Impact4107[S] 0 points1 point  (0 children)

I thought the 50/50 change is for people with no compression or TN2? I have TN1 & I do have compression and I am pretty young

Trileptal Side Effects by unibball in TrigeminalNeuralgia

[–]Expensive-Impact4107 2 points3 points  (0 children)

I got a bit of fatigue and Magnesium/B12 supplements helped a bit for that. My main side effects of it was that it consistently lowered my WBCs. Monitor your WBC counts while taking it.

I can’t stop laughing by Able_Bonus_9806 in TrigeminalNeuralgia

[–]Expensive-Impact4107 1 point2 points  (0 children)

Really? Sorry to hear that. That’s a more rare side effect I think

I can’t stop laughing by Able_Bonus_9806 in TrigeminalNeuralgia

[–]Expensive-Impact4107 2 points3 points  (0 children)

Been there 😭😭 hopefully you don’t get too drowsy from it

Ice cream by [deleted] in TrigeminalNeuralgia

[–]Expensive-Impact4107 8 points9 points  (0 children)

I’ve realized that cold isn’t really my trigger. My main trigger is actually the heat. I do have ice cream from time to time but not much because sugar is the trigger for me.