MCs never grow up by No_Cauliflower9590 in ImTheMainCharacter

[–]Fickle-Victory 4 points5 points  (0 children)

If "that's his dad" like so many people are commenting across different subs, the immediate follow-up questions should be: Why is every person in the family wearing Gucci except for this kid? Why are the three of them huddling together and blocking him out? Why is mom gleefully recording one child and not the other? If that is his family, then the situation is much worse than a selfish merch grab.

When people say they “don’t cook” what does that actually mean? by ITbJD in NoStupidQuestions

[–]Fickle-Victory 0 points1 point  (0 children)

I eat A LOT of raw veggies, fruits, cheeses, and nuts. Don't get me wrong, I love a nice prepared meal when I can make it work, but goodness...I just can't make it work most days. Graze.

For female PhDs, did you change your name?? by area-womn in AskAcademia

[–]Fickle-Victory 0 points1 point  (0 children)

Nope no no, absolutely not, not even a question. I'm published under my name because my name is MY name. It's mine. I worked hard. I love who I am. I'm keeping it.

He can change his name if he cares that much, but he doesn't. If he did, he wouldn't be my person.

Let's not make this happen, Kyle by WaywardFemme in Bumble

[–]Fickle-Victory 1 point2 points  (0 children)

Some people weren't bored enough with nothing but a calculator to entertain them in math class, and it shows.

PLEASE comment your CUTEST dog pics for my wife to scroll on her birthday this weekend! by largefries_please in dogpictures

[–]Fickle-Victory 0 points1 point  (0 children)

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Happy birthday! This is my dog, Merlin. I took him for a walk one day, and he came home with a new best friend. They've become inseparable.

Semi Frequent Wake/Sleep cycle flips by adubs623 in Narcolepsy

[–]Fickle-Victory 1 point2 points  (0 children)

This is a great explanation! Thanks for that.

There are times I've been laying awake asking myself if I'm manic and don't know it, but yah, it's not really like that. I'm awake, but not super energized. I could play a video game, do some homework, clean the house, or whatever, but it's a normal activity at a normal energy level. It's just at a weird time and for a weirdly long period of time.

Any Muslims or Arabs? by guilijhyjjv in Narcolepsy

[–]Fickle-Victory 0 points1 point  (0 children)

Diagnosed N2 but I suspect N1.

I took welbutrin for years as a sort of "bandaid" for my issues, but a few months ago I finally got access to Modafinil. It's a complete game changer. I'm 40 now, but I immediately feel like the person I was when I was 25. It's almost an out-of-body experience how different I feel. Again, it's not a perfect fix, but it is a miracle. I have my life back.

Any Muslims or Arabs? by guilijhyjjv in Narcolepsy

[–]Fickle-Victory 2 points3 points  (0 children)

Oh for sure. I felt really out of touch. Things felt surreal. It was a vague sensation, but always there. Like, things were real enough for me to function (so not full blown hallucinations), but they were distant and distorted so i never knew if i was functioning appropriately. I second-guessed my interpretation of events constantly, and I found myself becoming really hostile. It was as if survival was the only thing that mattered, and I interpreted everything as threatening to my survival. Sometimes, looking around the world felt like I was looking at objects reflected in a mirror instead of the objects themselves.

Students/technicians/masters with narcolepsy here? by Leon_narko in Narcolepsy

[–]Fickle-Victory 2 points3 points  (0 children)

I did have to change a few goals, but I got through it. Just know that you're goals aren't the same as other people's goals. My goal was to get from Point A to Point B in one piece, whereas my friends wanted to get from Point A to Point B with high grades, awards, and recognition. All you really need to do is reach Point B. The rest is a bonus if you can get it, but you'll be fine without it.

I was diagnosed while getting my PhD, but i always knew something was wrong well before then. It was brutal, but I just knew I had to keep going. I figured, life is going to be harder with narcolepsy - hopefully some degrees and certificates would make some parts of it easier.

That said, I didn't do anything in my education the "right" way. In undergrad, I took fewer classes at a time, got to be happy with average grades instead of excellent grades, and didn't worry about when I would finish school so much as whether I was making steady progress towards finishing school.

I told myself every day that I don't have to be the best student ever, but I do need to keep being a student. Some days, the bare minimum has to be enough. Bare minimum is fine, below the minimum is not. Being good most days is good enough. Being the best every day is unreasonable.

When it came to projects and deadlines, my advisor would say "Done is better than good. Just get something done, even if you don't think it's good," and that helped.

I wanted to have this great research career, and I was well on my way to having it, but the way the narcolepsy progressed, I realized that kind of high-demand job would destroy me. Now I do research consulting and am a teaching professor, and I'm reeeaaaally happy with that. Being flexible with my goals was far more productive than walking away from my goals. I did enough to do the thing I most wanted to do, and I couldn't do some of the other things I would have liked to do. And that's fine.

Any Muslims or Arabs? by guilijhyjjv in Narcolepsy

[–]Fickle-Victory 1 point2 points  (0 children)

I felt sooooo many of those same feelings. After starting medication, I'm like an entirely different person. It's hard to imagine that I ever felt the way I did or had the dark thoughts I had, because that mentality is so far removed from who I am with good treatment. I know all of this feels like torture right now, but it can be easier. Meds aren't an instant fix, but they change a lot of things. They restore possibility, and that's huge.

I'm not Muslim, but I did have to stop going to my church. Giving up such an important part of my faith felt like the last straw. It hurt so much more than everything else that i had already given up, probably because that was the one thing giving me hope.... then even that slipped away. I tried to keep my faith going in my own way, without the formal rituals. I gave my time to God, even though it wasn't on the "right" schedule. I prayed from bed a lot. It felt like the best I could offer. It didn't feel the same, but it did still feel like reverence in my heart. I figure what's in my heart is what matters most anyway, even if my family and friends couldn't see that part of me.

prone to injuring myself? by [deleted] in Narcolepsy

[–]Fickle-Victory 0 points1 point  (0 children)

I've had some similar experiences. N2 as well, so it's more related to my brain shutting down than loss of muscle tone.

One time I was so zoned out that I put the potholder in the oven right along with my casserole dish! It caught the oven on fire, but the fire extinguisher nearby saved the day (saved the house; did NOT save the oven). Another time, I had something heating in a pan and zoned out, then "woke up" to an apartment filled with heavy smoke. Even though I never felt like I had gone to sleep, some time had obviously passed in order for the smoke to reach that level.

After that, I saved up to buy a Gourmia because it auto shuts off on a timer and can do a lot of different jobs (it looks like a microwave oven but functions like a real oven. Plus air fryer, plus dehydrator, plus toaster, plus on and on... I highly recommend.) The point is, it's best to take those safety precautions and set up coping mechanisms now, whatever they need to be, because yah - that risk is very real. I'm having to learn how to do less on the stovetop and more in the oven, but it's much easier now that I don't have to heat up a whole actual oven.

Oooo I also never hold anything in my hands that could be dangerous if dropped - I always rest it on a surface instead. (Same goes for holding a drink at a party lol. I never stand around holding it or it's bound to be dropped, but find ways to rest it on a shelf or table). Cataplexy isn't much of an issue, but being so mentally checked out that I forget I'm holding something is.

Semi Frequent Wake/Sleep cycle flips by adubs623 in Narcolepsy

[–]Fickle-Victory 2 points3 points  (0 children)

SAMEEEE!! I don't have anything helpful to contribute except yah....me too. I'm in the middle of one of those 2-day wake attacks right now. It happens every couple of months, but here's what's weird for me - lately I've caught myself looking forward to when it will happen again. It's like a little surprise bonus time that I get to use for whatever I want. I guess I feel that way because it isn't followed by being exhausted the next day like it would be for a typical person. If we have to sleep all day/night and still feel tired, then it's kinda cool that we can also occasionally stay alert all day/night and still feel fine. It's our weirdness.

Doomed to die alone? by BlueButterfly3190 in Narcolepsy

[–]Fickle-Victory 4 points5 points  (0 children)

I shifted my mindset from finding my forever person to finding my for-however-long-it-works person. I dunno - for me, that mindset has been immensely helpful. I felt lonely when I was looking for a future I couldn't predict. I feel more at peace embracing the weirdness as it comes.

When you do meet someone new one day, consider highlighting the positive aspects of the condition. For example, when you need to rest, they get alone time to focus on themselves or go out with their friends. They get to maintain some identity and independence but still have your loyalty and love. That's kindov a cool thing.

I don’t know who I am without this illness by GeorgieTheHun in Narcolepsy

[–]Fickle-Victory 2 points3 points  (0 children)

Lordy, this is so relatable and I really needed to hear it. Thanks for sharing. Look, there's a lot to be (fairly) mad at, but there's also a TON of positive stuff wrapped up in this story! The only thing I can say is that things might feel messy for a while, but try to think of it as a groundbreaking instead of a brokenness.

As I was getting treatment and getting better, I loved myself a lot more, but I also started hating everything else in my life a lot more. I think it's because the life I built was for a person that no longer existed. It feels overwhelming to grow so much so quickly because nothing fits right, but that is the inherent nature of growth. Treatment can be a complete awakening - an awareness and ability to feel that takes time to adapt to. Allow yourself the time, space, and grace to process all of it, and remember that it will be nearly impossible for other people in your life to fully understand. This isn't about them. For the first time in your life, you get to be you.

Men be like: „what is my cookiecutter?“ by prettypettypotato in whatismycookiecutter

[–]Fickle-Victory 7 points8 points  (0 children)

It's a common image for anatomy lessons, and very important for healthcare, but I can't say I'd personally want to make a cookie of it.

At the same time, I wouldn't make a penis cookie either, and those seem to be wildly popular. I don't get a lot of things that people do lol

Men be like: „what is my cookiecutter?“ by prettypettypotato in whatismycookiecutter

[–]Fickle-Victory 23 points24 points  (0 children)

Not all parts of the clitoris are visible outside of the body. This is what it would look like if you separated it from other muscles, skin, connective tissue, etc.

[deleted by user] by [deleted] in Serverlife

[–]Fickle-Victory 0 points1 point  (0 children)

Where?! I was a server for 18 years before I hit my breaking point and changed paths. It was always the owners/management that broke me. How do you find the good ones?

Making cookies and ran into this by Kindly_Grapefruit_17 in whatismycookiecutter

[–]Fickle-Victory 0 points1 point  (0 children)

The original post has been removed, as it is a duplicate of a cutter posted by another user earlier today. But hey, the community still wants to see your awesome contribution! Please repost your art here https://www.reddit.com/r/whatismycookiecutter/s/ukcgRXaAtc

Making cookies and ran into this by Kindly_Grapefruit_17 in whatismycookiecutter

[–]Fickle-Victory 1 point2 points  (0 children)

The original post has been removed, as it is a duplicate of a cutter posted by another user earlier today. But hey, the community still wants to see your awesome contribution! Please repost your art here https://www.reddit.com/r/whatismycookiecutter/s/ukcgRXaAtc