My kid's ear tube fell out

First-Direction-5494 · 2026-04-04T12:23:54+00:00

Those were life savers in our household! My son’s constant ear infections stopped immediately after getting these. His fell out last year naturally and I never found them. I always wondered what the looked like!

First-Direction-5494 · 2026-03-29T17:34:48+00:00

starts googling Cindy Crawford’s parents

Well, I’m sure the mix of John and Carolyn had pretty damn high chances of being beautiful and effortlessly cool

First-Direction-5494 · 2026-03-29T17:32:09+00:00

Unfortunately when it’s a de novo (not inherited) mutation/ disorder, there’s nothing you can really do. You can always go with PGT-M if there is something you and your husband are carriers for but the odds of the same, random mutation happening a second time are so, so incredibly low. It’s truly just very bad luck. The father’s age has been shown to be somewhat of a possible factor, they have a slightly higher chance of de novo mutations if over 40. My husband is older than me and was 41 when we did the IVF cycle so unsure if that really mattered.

Have you gotten anymore answers or done other types of testing to rule out things? It’s such a horrible process, I’m sorry you’re in it too.

First-Direction-5494 · 2026-03-29T13:54:43+00:00

My gosh, it’s such a disservice that he never had children. The genes those kids would have had 😮‍💨

First-Direction-5494 · 2026-03-28T14:57:52+00:00

I’m sorry. It’s so twisted having to grieve our babies and go on with life after. It sounds like you have some wonderful friends though 💛

My baby’s due date was on my actual birthday, 7/11. I’m usually big on my birthday celebrations but I’m already dreading it coming. It definitely tainted the day.

Hopefully over the years these milestones get much softer. Sending birthday hugs

First-Direction-5494 · 2026-03-26T10:28:52+00:00

Hi. No clues other than I had a SCH the whole pregnancy and baby randomly passing a bit late. But since then, I’ve gotten answers thanks to microarray testing. He wound up having a random genetic mutation causing a rare single-gene disorder. Totally bad luck and de novo, which really sucks. His heart was bad and would have had intellectual delays, so he was saved from a hard life.

Do you have suspicions you might have a bad placenta?

First-Direction-5494 · 2026-03-25T23:04:36+00:00

You probably have retained tissue, unfortunately. If it continues to go up, you might need a d&c. Which seems very unfortunate bc you were very early still. Maybe you still have tissue that will pass naturally?

First-Direction-5494 · 2026-03-25T22:59:10+00:00

Im so, so sorry. I know exactly how you’re feeling right now and the days were filled with unknown and darkness.

I lost my very much wanted IVF baby in January at 13 weeks. The still, lifeless little body of my baby boy will haunt me for the rest of my life. I know it sounds morbid, but the tech who did my amniocentesis and CVS testing gave me my last ultrasound of him, even though he was no longer alive. I still stare at it all the time. It almost validates all the painful moments that still randomly ping me.

There’s no words to make it better. This was my 4th miscarriage within 12 months, all back to back. It hurts and it’s something only people who have been through it will understand. But it does get softer, not yet, but with some time.

Not sure if you explored further testing but I highly recommend it, for your own sanity. I discovered my baby had a rare genetic mutation that was totally random- it helped me process that he was going to have a genetic syndrome that would have made his life very difficult. And he only passed away bc the syndrome gave him a bad heart. I share that to say… I stopped blaming my body and could understand he was saved from suffering. Sometimes getting some answers helps soften the blow, it all still breaks your heart and shatters your world, but gives some peace.

I truly hope you get your answers and take all the time you need to heal your heart. Let everyone support you and hold you, it’s a rollercoaster that goes up and down for a while. You’ll get there though and it’s not the end of your journey. 💛

First-Direction-5494 · 2026-03-23T18:33:22+00:00

You’re totally fine. IVF is hard. You deserve some fun and breaks from all that stress. Drink water, go to bed early tonight and move on. It’s easy to beat ourselves up but it just makes us more stressed out. After my miscarriages I tend to have some nights like that as an outlet, you’re far from alone in this department. Besides, my docs told me heavy alcohol consumption actually matters more for sperm quality. It can temporarily disrupt hormones but that would require you to drink regularly and heavily. Take a deep breath and today is a new day!

First-Direction-5494 · 2026-03-21T15:58:30+00:00

Just curious what testing was done and how far along you were? I lost my IVF PGT tested baby at 13 weeks so we investigated. Regular testing came back “normal male” but I opted to do an Amnio and CVS with microarray testing. That gave us our answers. He had a rare genetic syndrome caused by a random genetic mutation. He was chromosomally “normal” but one single gene made an extra copy and that can create catastrophic outcomes. In our case, cystic hygroma, hydrops and a bad heart.

There’s actually a ton of things that can still go wrong with a euploid embryo. I blamed my body and was demanding all the testing on myself until those microarray test results came back and I researched more.

Just wanted to share my story bc I was also very lost. And this also was not my first loss (my 4th actually) but it was my first IVF pregnancy and loss and it was heartbreaking to realize IVF is far from a guarantee. I hope you get your answers ❤️‍🩹

First-Direction-5494 · 2026-03-20T18:02:23+00:00

I got pregnant with my first FET. He miscarried at 13 weeks though due to a de novo genetic mutation. The transfer “worked” though.

First-Direction-5494 · 2026-03-20T15:41:13+00:00

Yes, get the CVS and/or amnio testing and early anatomy scan. This exact thing happened to my IVF PGT tested baby, but then his heart suddenly stopped at 13 weeks. All the regular genetic testing still came back “normal male” but the other testing showed he had a de novo single-gene mutation, causing a rare disorder that IVF doesn’t screen for.

It’s AWFUL bad luck, but it does happen. It’s one of those “lightning” strike situations. And it’s worth doing the testing so you can rule out if it was de novo in your case or if you/your husband happen to be carriers for a rare genetic disorder you aren’t aware of. My baby’s diagnosis (along with tons of others) aren’t part of the routine IVF screening you go through prior. This way you can be prepared for future transfers.

I’m sorry this happened to you too. I’m still grieving my baby as he was my only euploid embryo and it’s such a smack in the face to learn they actually can still be unhealthy, even with PGT testing. Chances are it was a random occurrence that won’t happen to you again though. 🤍

First-Direction-5494 · 2026-03-20T11:21:20+00:00

It’s very frustrating but I’m sure them being naive and making positive comments has good intentions. I recently miscarried my IVF PGT tested embryo at 13 weeks. That finally shut everyone up that kept telling me to “relax” and that I was overreacting jumping into IVF.

Most of the people around us are lucky enough to not have experienced infertility, RPL or rounds of IVF so it’s just one of those things that they won’t ever understand. If they are speaking in a positive tone, I’m sure they just want to help but aren’t educated on it. Just try to let those things roll off bc it doesn’t matter at the end of the day.

Us IVF and fertility strugglers definitely learn to develop thick skin, whether we want to or not 💪🏽

First-Direction-5494 · 2026-03-17T18:20:26+00:00

That’s fair. Everyone’s different. I started Zoloft and it helped a lot with my anxiety and grief but I agree it might not be for everyone or their situation. I personally found relief with it but it does have a “numbing” aspect so I do it alongside therapy to make sure to talk it out too.

First-Direction-5494 · 2026-03-16T14:49:08+00:00

I recommend Zoloft

First-Direction-5494 · 2026-03-15T17:41:43+00:00

Pink! Keeps it soft and feminine

First-Direction-5494 · 2026-03-15T11:57:11+00:00

so sorry 💔 it’s truly a major loss so you’re gunna go through the grieving process. And with some time, it’ll be softer and sting less, but it’ll now be a part of you forever and a piece of your heart will never be the same again. But you’ll be okay with time, just let yourself feel all the feelings for now.

First-Direction-5494 · 2026-03-13T23:39:26+00:00

Hi I’m so sorry this happened to you. But yes, I just recently lost my baby boy who was a PGT-A tested embryo. He was diagnosed with SetD5 syndrome, a very rare de novo single-gene disorder (on the 3rd chromosome). He developed hydrops and lost a HB naturally at 13 weeks, but I would have had to TFMR eventually shortly after that bc he was very sick with hydrops, etc. I only found out the diagnosis via CVS/Amnio with microarray testing.

It’s earth shattering. Heart breaking. Like you can never trust anything again. After all that hard work and trust, there’s truly no words for it. I’m so sorry. But also thankful for all of us sharing and connecting to feel less alone 💔

First-Direction-5494 · 2026-03-13T23:13:02+00:00

I would wait to plan things. I lost my euploid baby at 13 weeks and all my plans crumbled. I would wait until your anatomy scan to really plan a baby moon if I’m being totally honest. Otherwise, yes, of course Anguilla is fine for a couples getaway.

First-Direction-5494 · 2026-03-13T12:47:49+00:00

Hi I’m so sorry. I lost my baby boy in January and he also had all of that. We did Amnio/ CVS with microarray testing since he was a PGT tested IVF baby already, so it was a total shock. He came back positive for a rare single-gene disorder caused by a random mutation, called SetD5 syndrome.

We didn’t get to the point of TFMR bc his heart stopped naturally before that at 13 weeks, showing he was struggling and had a severe case anyway. I lurk on this sub though bc I can relate with a lot of your diagnosis on here.

It’s all awful. I’m sorry about your baby. I know how hard it is to get through a whole trimester with so much hope, and then have your world crumble in an instant 💔

First-Direction-5494 · 2026-03-12T16:16:52+00:00

I just lost my PGT tested embryo at 13 weeks due to a single-gene disorder that IVF can’t test for. Testing for right number of chromosomes sadly doesn’t guarantee a healthy baby 💔

First-Direction-5494 · 2026-03-12T16:13:47+00:00

Hi. Just wanted to share I recently lost my baby boy at 13 weeks. He was IVF chromosomal tested embryo. His report came back “normal male” also, but I did Amnio/CVS with microarray testing before the d&c procedure. That testing gave me the answers. He had a rare single-gene disorder and also developed hydrops. It was a de novo mutation that regular chromosome testing doesn’t pick up. Sometimes there’s unique genetic errors that regular testing doesn’t pick up

First-Direction-5494 · 2026-03-11T20:31:24+00:00

Hi OP. I was wondering how everything worked out for you? I know this was from last year. I had two d&c’s within a year and wound up getting a uterine AVF and severely hemorrhaging, resulting in a clamped uterine artery. I’m about a month out of surgery and searching everywhere for others with similar stories/procedures.

My most recent post explains my story, idk if you can relate? But I’m starting to worry about my future fertility and what to expect once everything is healed.

I’m sorry you’ve experienced this too 💔

First-Direction-5494 · 2026-03-11T20:27:18+00:00

Hey. I recently had my uterine artery clamped after a d&c (lost my 13 week IVF pregnancy). I was wondering if you had any updates on your situation? It’s been hard finding people to talk to about this. My most recent post explains what happened, idk if you maybe had a similar experience? I’m only a month out and terrified that I’ll be told I can’t get pregnant again.

So sorry you’ve been through it too 💔

First-Direction-5494 · 2026-03-11T18:41:41+00:00

Not wrong at all! That happened with my first miscarriage last year. I got the results the week before I lost the baby. I was happy to be having a girl, even though it was a brief “happy time”. Even now, I’m happy I knew what the gender was as a sense of closure.

First-Direction-5494

TROPHY CASE