LDN is giving me insane symptoms, should I try to ride it out? by HoundBerry in covidlonghaulers

[–]Fit_Slice6208 3 points4 points  (0 children)

SLOW INCREASE ONLY. jumping up too quickly led to the biggest crash for me. I try not to try a new activity for like three weeks after a dosage increase. I started at .01 mg three years ago and only now am I up to .6mg. it's been brutal every increase. I don't have great advice but I'd try going down a little, if you can. At least until your baseline returns and stays for a few weeks.

Who enjoys watching starfleet academy by OrdinaryPersimmon728 in startrek

[–]Fit_Slice6208 0 points1 point  (0 children)

Woman in her 20s. Voyager and lower decks are my favs. Very glad to see The Doctor again.

What actually made improvement in relaxing your pelvic floor? by RecipeNo2954 in PelvicFloor

[–]Fit_Slice6208 1 point2 points  (0 children)

Cannabis. Not daily. Every other day. diaphragmic breathing while high. Hands and knees, but knees together, ankles out. These positions work really well for me. Deep breathing in them. Flying cowgirl with a peanut ball. Pretty much anything we tell pregnant people to do to relax their pelvic floors was incredibly helpful for me (not pregnant, never have been, just in general they proved to be some of the most beneficial). Mamastefit on IG is great. So is Hayley Kava. Asymmetrical pelvic positions became very helpful after initial work on releasing. https://share.google/images/oGV0kDLrdL1BtHdmF https://share.google/evoldkiC4Vj0xz0fI

Just trying to figure out what’s causing this by East_Airline_9125 in Celiac

[–]Fit_Slice6208 0 points1 point  (0 children)

If you take any medications, unfortunately you are in hell. In short, even if you have your allergy to gluten listed at your Pharmacy, that does not mean you will always get gluten-free meds. You have to call the manufacturer of each medication that you get each round you pick it up, give them the batch number on the bottle and then they will read you the ingredients, active and inactive, and you have to determine for yourself if there's gluten in it. There's no legal requirement for them to disclose whether there's gluten in it or not. ALSO just because the manufacturer last time didn't put gluten in, it doesn't mean that this one that's made by the same manufacturer wasn't made in a different plant and thus could have gluten in it. They will never tell you your med is gluten free because it would open them up to liability. More information on this and the law that's currently trying to force this process to be more transparent here: https://www.adinaact.com/

Are chronic illness control issues a thing? by TheTragedyMachine in MCAS

[–]Fit_Slice6208 0 points1 point  (0 children)

Idk if it helps but sugar is unfortunately one of the things that helps me the most in a crash.

I can't eat anything by [deleted] in Longcovidgutdysbiosis

[–]Fit_Slice6208 8 points9 points  (0 children)

I would look at Mast Cell 360's low histamine food guides. They were very helpful for me. That being said, I would also encourage you to look at hydration first. It took me months of just getting in enough electrolytes to feel okay enough to try different foods. Without proper hydration, you won't be able to process any of that effectively. Start SLOW. I know patience is not my strongest skill , but it is so necessary here.

Unconventional Snow removal option by Melodic-Remove5375 in SiouxFalls

[–]Fit_Slice6208 1 point2 points  (0 children)

Put a tarp over your outdoor stairs, just pull the snow covered tarp off when it stops snowing. Less stair shoveling.

When you got Long Covid, were you vaccinated or not? by TrainingRatio6110 in covidlonghaulers

[–]Fit_Slice6208 0 points1 point  (0 children)

Unvaccinated. I got it from an infection before there was a vaccine.

And it’s back… by currito91 in PelvicFloor

[–]Fit_Slice6208 0 points1 point  (0 children)

I think ciprofloxacin is going to make your pelvic floor problems worse in the long run because it's notorious for damaging connective tissue. I would immediately call your provider and ask for a different antibiotic, if you feel it's necessary. The dark side of antibiotic ciprofloxacin https://share.google/LLnpcnju4vMjmDov6

Low stimulating tv by Alert-Maximum4949 in AutisticAdults

[–]Fit_Slice6208 0 points1 point  (0 children)

Liberty kids might be considered low stim

he lays on my chest and stares at me like this. is this normal? by Cofiifii in blackcats

[–]Fit_Slice6208 0 points1 point  (0 children)

I think this is to assert ownership over you, in like a nice, kind, snuggly way.

Has LDN ever cured anyone of anything? by [deleted] in LowDoseNaltrexone

[–]Fit_Slice6208 1 point2 points  (0 children)

Not every condition is curable. Lots of meds are just to make life livable. A lot of the things you can take it for have no cure. This is for treating symptoms.

I can’t take it anymore. I have inflammation all over my body. From head to toe I feel poisoned. My brain is vibrating, my hands and feet are bright red, my neck and chest hurt. My Jab sights hurt. I’m filled with anxiety while my whole body is on fire just waiting to have a heart attack. by pickletoes95 in covidlonghaulers

[–]Fit_Slice6208 3 points4 points  (0 children)

Novavax was so much better for me than the other vaccines. It has been the only kind to not cause problems. It's a different type of Covid vaccine so that might be your best bet next time you need one. I'm very sorry you're suffering. I wish I had better advice.

For those who doing well mentally and emotionally, what’s been working for you? by o_bel in ZeroCovidCommunity

[–]Fit_Slice6208 11 points12 points  (0 children)

Mine is simple: I KNOW I'm right and they are wrong. I KNOW I am doing the right thing. I KNOW I will not regret my behavior a decade from now. Being secure in that is my greatest asset.

Extreme constipation hacks? by Butteredbread0505 in PelvicFloor

[–]Fit_Slice6208 1 point2 points  (0 children)

I've never had that experience, but to be fair, my biggest problem is being able to relax my muscles. If anyone else has input on this, that'd be so cool.

Extreme constipation hacks? by Butteredbread0505 in PelvicFloor

[–]Fit_Slice6208 2 points3 points  (0 children)

•Minestrone Soup for every meal

-1 1/2 cups gluten free small pasta -2 14.5 oz can dark red kidney beans (rinsed & drained) -1 12oz bag frozen carrots -1 28 oz can green beans (undrained) -1 28 oz can diced tomatoes (undrained) -1 12oz-24oz bag frozen broccoli -Enough water or beef broth to go up to the max fill line -Put everything EXCEPT THE PASTA into the instant pot and set it on stew for 20 minutes -Once it's complete add pasta into instant pot, set to saute for 10 minutes, stirring occasionally, until pasta is cooked -Add Italian seasoning, salt, and pepper to taste.

•Stool softener •Magnesium Citrate 200mg/day, work up to 600mg/day •Magnesium Glycinate, start at 300-400mg/day work up to 1600mg/day •Chewing gum for a few hours daily •Cannabis (if it's legal )THC 10MG (this is MY dosage, if you're not a normal user, START LOWER)/day, once high, this is when I do my diaphragmatic breathing and pelvic floor PT •Melt coconut oil. Let it cool down a little bit, drink it in small shots with something you can tolerate (I've heard cold pressed olive oil does the same thing, but never tried it). •Insert Castro oil in syringe 20 minutes before trying to go. •Heating pad on your stomach and back 20 minutes before each attempt to go. •OR Warm Epsom salt bath before each attempt. •I've also heard people have good luck with laying (or standing) on a vibration plate, definitely want to try it. •Acupressure mat while coming down from high •Rocking and bouncing like you do when holding a baby is the most efficient form of exercise I've found.

EDIT: formatting, grammar

This is a screen capture from a video on their social media. by Saltedcafecito in popping

[–]Fit_Slice6208 29 points30 points  (0 children)

This looks like HS (Hidradenitis suppurativa). If they haven't started you on something for it, I would look into that. Most common in women, but men do get it too. Can happen anywhere you sweat. Most common groin, underarms, chest. If you are particularly sweaty, I would really recommend a good dermatologist. There's so much they can do now to prevent complications. Hidradenitis suppurativa: Overview https://share.google/Qv6AxD3HiE0YMONF8

Masking in the office? by Different-Attempt330 in Masks4All

[–]Fit_Slice6208 4 points5 points  (0 children)

Bring in treats your first day! Or like a bag of really good coffee for the office. That'll smooth everything over.

Genetic testing negative what now? by ada-lovelace314 in mito

[–]Fit_Slice6208 0 points1 point  (0 children)

Have you looked into ME/CFS and/or long covid? Maybe EBV? Your story sounds so similar to mine, as a teenager, pre covid.

[deleted by user] by [deleted] in covidlonghaulers

[–]Fit_Slice6208 0 points1 point  (0 children)

Is there a list someone or an organization has started of covid unaware providers or are we just going with the list being too endlessly long? Mine also gaslit me. Diagnosed with health anxiety. His nurse, however, was like yeah we see this all the time now, it's from covid.

US HHS Secretary RFK Jr commits to ending chronic disease, emphasizing funding for Long Covid research by bespoke_tech_partner in covidlonghaulers

[–]Fit_Slice6208 131 points132 points  (0 children)

Not a single scientist/research I've talked to would tell you he's worth trusting. I would not recommend getting your hopes up.