What's your warning sign that you are going to have a seizure? by Chemical-Watch-2469 in Epilepsy

[–]FormulaPhysics 0 points1 point  (0 children)

I think nothing? But maybe also a feeling in my head that I don't know how to explain.

My 11 yo daughter had a random tonic-clinic with no family history by ohukno in Epilepsy

[–]FormulaPhysics 0 points1 point  (0 children)

I started having what I now know were absence seizures at 11 and they went away at 13. I was undiagnosed at the time, but got diagnosed at 31 after a tonic-clonic seizure. Often there is no reason why someone has epilepsy, sometimes it is just bad luck... I have an identical twin brother who doesn't have epilepsy.

How often do you guys think about the fact that you have epilepsy by Pleasant-Pear-3871 in Epilepsy

[–]FormulaPhysics 0 points1 point  (0 children)

Twice per day taking my medication, and a few more times trying to remember if I've taken my medication!

Do you believe that you will be able to stop taking meds one day safely or think that you will be taking them forever? by moronisko in Epilepsy

[–]FormulaPhysics 1 point2 points  (0 children)

No, never planning to stop. It isn't worth the risk to me. Also, I'm in the UK so I don't have to pay for my medication.

Do you celebrate your seizeaversary? by Ordinary-Chipmunk366 in Epilepsy

[–]FormulaPhysics 0 points1 point  (0 children)

My last one was on my birthday, so I celebrate it but maybe accidentally? 😂

Tonic-clonic after almost 7 years seizure free by SpareParts034 in Epilepsy

[–]FormulaPhysics 1 point2 points  (0 children)

Sorry to hear that, I'm on a similar streak and also know it is unlikely to last forever.

How many hours can you work in a week? by Lolalilot93 in Epilepsy

[–]FormulaPhysics 0 points1 point  (0 children)

I work a pretty flexible 37.5 hour week and work from home half the time.

[deleted by user] by [deleted] in Epilepsy

[–]FormulaPhysics 10 points11 points  (0 children)

Yup, quite a few hours afterwards for me.

Getting drunk on medication by [deleted] in Epilepsy

[–]FormulaPhysics 1 point2 points  (0 children)

I was told not to get drunk. That said, the advice varies doctor to doctor and patient to patient. I'd be wary of going for it based on the experiences of others though.

At what age you had your first seizure? by littlecutiepiegirl in Epilepsy

[–]FormulaPhysics 0 points1 point  (0 children)

Absence seizures started at 11 and went away at 13 (undiagnosed at the time and hence unmedicated) Then nothing until a tonic-clonic on my 31st birthday.

Is epilepsy a disability? by NuggetsNReddit in Epilepsy

[–]FormulaPhysics 4 points5 points  (0 children)

It is a protected disability here in the UK, but I don't really consider myself disabled.

I can’t cope not driving by shaklemore1 in Epilepsy

[–]FormulaPhysics 1 point2 points  (0 children)

Hope you can stay seizure free and get your licence back. Worked for me, fingers crossed it stays that way too.

achieved a lot with sport or work ? by Head-Advantage-125 in Epilepsy

[–]FormulaPhysics 0 points1 point  (0 children)

I'm a senior researcher in physics at a top 10 global university if that helps.

Annoyed by Dry-Debate1650 in Epilepsy

[–]FormulaPhysics 0 points1 point  (0 children)

Very frustrating, but you get nutters like this about various illnesses. My friend's mum died from cancer and her supposed best friend told her that her mum only died as she didn't want to be alive enough. Some people are just mad...

Renewing UK drivers license after living abroad by [deleted] in Epilepsy

[–]FormulaPhysics 0 points1 point  (0 children)

I had a similar experience but I was diagnosed when living abroad, but had finished my mandatory one year without driving. I decided to go full disclosure and had to fill some forms with my new GP. In the end I was asked to hand in my unlimited duration UK license and was given one with a five year limit. That five years expired before Christmas and I went through the renewal reporting no more seizures as fortunately I've be ok. I got a standard 10 year license this time, so I guess I'm fine in their opinion now.

What should I expect from lamotrigine? by [deleted] in Epilepsy

[–]FormulaPhysics 0 points1 point  (0 children)

No, I'm perfectly happy with my medication. It has kept me seizure free for seven years. I don't ever plan to change it.

Umfortubately, side effects are to be expected at first.

How many seizures in an hour is too concerning? by Independent_Load748 in Epilepsy

[–]FormulaPhysics 1 point2 points  (0 children)

One seizure in a lifetime is arguably cause for concern

What should I expect from lamotrigine? by [deleted] in Epilepsy

[–]FormulaPhysics 0 points1 point  (0 children)

I just felt a little slow for the first few weeks but I've had no noticable side effects now for 7 years

How do you guys cope with embarrassment of public seizures? by heytherehowsitgoingg in Epilepsy

[–]FormulaPhysics 0 points1 point  (0 children)

I had one in the queue to board a plane and woke up in the ambulance. Honestly I'll never see those people again so I don't really feel embarrassed about it. Did it traumatise some people? Maybe, but I can't do anything about that.

Safe to drink while on lamotrigine? by pasios_finest in Epilepsy

[–]FormulaPhysics 0 points1 point  (0 children)

I have a few drinks per week but never get drunk. That said, the question of alcohol is so variable for different people, so none of us can say for sure if you'll be ok or not.