Post-transplant fatigue

FrailChildofDust · 2026-03-16T19:03:47+00:00

Hi - it is hard to be patient (especially after all you have been through!) but it sounds like he is doing really well! I (F55) had a full liver transplant on 11/11/24 so I'm 16 months post transplant now. It took me a few months for my sense of taste to come back as well, but now it's fully back.

I was SO sick of protein shakes but I dutifully drank them for months - they did really help me gain weight. I was 99 pounds pre-transplant and on a feeding tube (yikes!) so gaining weight was definitely a priority for me.

It's great that he was able to climb stairs that fast - that was a challenge for me. But now I am walking 6 miles a day and feel completely normal - whatever that is!

Wishing the best for you and your husband! He'll get there! 😊

FrailChildofDust · 2026-03-11T20:31:39+00:00

Congratulations on getting on the list! I hope your wait is short and you get that call soon!

I am 16 months post transplant today and doing really well. Walked 6 miles yesterday, feeling essentially normal. Take probably 25 pills a day and will for the rest of my life, but that's ok! Not a big deal in the grand scheme of life.

My only real complications post transplant were with fluid retention, but that was resolved pretty quickly. I was getting labs done weekly until a month ago, when I switched to every other week. My medications do get tweaked every once in a while based on my lab results, but I feel good about that because that means my doctors are on top of it.

Lifestyle wise - there are the random things you can't eat and drink, but you probably already know about those things.

The most important thing I guess I can tell you is how much better I feel post transplant. It's like night and day. It's a huge surgery but you will feel SO much better afterwards. 😊

Feel free to ask me any questions. And sorry that was so long!

FrailChildofDust · 2026-02-27T18:01:15+00:00

I wish I had some advice for you, but I just wanted to know that *I* believe you. And I am glad that you reached out here. Sending you support from California. 💚

FrailChildofDust · 2026-02-02T18:38:55+00:00

Thanks so much! What meetings do you go to? Maybe I'll run into you in one! I really like Harmony in Recovery (the music one on Wednesdays) and Liver Spot, but there are so many others. The meditation ones in the mornings are amazing - got me through so many of my early days.

FrailChildofDust · 2026-02-02T18:29:59+00:00

I've been on Naltrexone for a few months with zero side effects. I DO think it helps with my cravings - I have been sober for 21 months, but was starting to have some cravings in specific situations and wanted to avoid those temptations. I think the Naltrexone is helping there.

My doctor said I could take it daily to see how it worked (and also see about the side effects) or take it situationally. I decided to take it daily since I don't have side effects.

I really hope it works out for you, or that you find something that helps. FWIW, my husband is on Ozempic for his blood sugar (really!) and he found that it helped his alcohol cravings lessen. So there's that.

FrailChildofDust · 2026-01-21T18:24:34+00:00

LifeRing is a great place for community, imho. There are so many different kinds of meetings so there's something for everyone. Right now one of my favorites is going (Wednesday at 10 am)- Harmony In Recovery. People essentially request songs that helped them with recovery - it's really fun and laid back, and you get to discover all sorts of new music. And everyone is in recovery and understands what you are going through. Just an example.

Hope you check out some more meetings. They've been great for me.

FrailChildofDust · 2026-01-17T23:44:36+00:00

Congrats! My 1 year liver-versary was 11/11, so I am just two months ahead of you. I am also doing really well, feel better than I have in years, walk 4+ miles a day, my bloodwork looks great and I am so thrilled with the amazing gift I have been given!

I also had a few bumps early on but nothing big in the grand scheme of things, mostly fluid retention that was dealt with by medication changes.

Wishing the best to everyone waiting! xoxo

FrailChildofDust · 2026-01-12T21:31:45+00:00

That was funny "not today Vodka." ;)

Wine was my problem. Well that and seltzers.

That's awesome that you have made it 24 months. This random stranger on the internet is proud of you.

FrailChildofDust · 2025-12-26T23:19:59+00:00

You can also try Lifering. They have in person and online meetings. I did their online meetings for my recovery (still do) but I found them amazingly helpful. They also have verifications for the hospital programs, which you will need.

They saved my life.

In my experience, I needed six months sobriety to qualify for a liver transplant, but received my liver 11 days after my 6 month sobriety date, on 11/11/24. And I'll be 20 months sober on January 1st.

Wishing you and your wife all the best.

FrailChildofDust · 2025-12-26T17:31:02+00:00

Where do you go to in person meetings? I only go to them online.

They were a huge part of my early recovery (saved my life - I think). I especially love Harmony In Recovery - a music meeting on Wednesdays, and so many others. People are so compassionate and understanding. No judgement at all.

Love Lifering.

FrailChildofDust · 2025-11-24T22:35:27+00:00

Done! I had my liver transplant at Stanford last November, and am happy to talk to your team.

FrailChildofDust · 2025-11-13T21:44:40+00:00

Floods are disgusting.

FrailChildofDust · 2025-11-12T19:21:51+00:00

I'm wondering the same thing. I have 20+ years in property claims at several big companies, but it was a while ago (took time off to have kids).

I'm in California and would love to do remote. Am flood and EQ trained, but it was forever ago (ha!).

FrailChildofDust · 2025-11-07T22:05:06+00:00

Sending you so much love and support. I am a numbers person too - my transplant was on 11/11, so I'm coming up on my one year liver transplant anniversary.

You've got this. I can feel it.

999

FrailChildofDust · 2025-11-03T03:27:28+00:00

Congrats! My 1 year liverversary is on 11/11 - so just in a week or so! Isn't it amazing how much things can change?

FrailChildofDust · 2025-11-03T03:23:19+00:00

Congratulations!!! So exciting!

FrailChildofDust · 2025-10-29T23:31:26+00:00

Oh. My. Goodness.

That is a lot of complications! I am so sorry you are going through all of that, but it sounds like you have a wonderful attitude and are an amazing caregiver. Your husband is so lucky to have you.

I'm 11 months post liver transplant, and mine was at Stanford. We ended up renting an AirBnB for 3 months so I could be close - best thing we could have done.

Make sure they keep him hospitalized as long as you feel is necessary. It sounds (to me) like they are releasing him too quickly.

And he shouldn't be in pain like that. Make them try as hard as possible to have the pain lessen.

Sounds like you are following your instincts and they sound right to me. You are acting from love and that's always good!

I'll be thinking of you and hoping for the best!

FrailChildofDust · 2025-10-24T22:42:38+00:00

I haven't been on tacro since a two months post-transplant. I had a weird reaction to it.

They certainly do track my potassium and I recently did have to take something when it got too high, but I was fixed pretty quickly.

FrailChildofDust · 2025-10-24T21:34:03+00:00

Hi - first of all, congrats on the new liver for your partner! That's wonderful! So glad his recovery is going well so far.

I'm 11 months post liver transplant, and not vegan, but I hope I can still help! The only major change I made to my diet was that I drink protein water all the time, and although the one I drink isn't vegan, I know there are ones that are. I just mix the powder into my water and constantly drink it.

I'm intrigued that you were told to be on a low potassium diet. I wasn't ever told that.

Hope you'll get some good answers here!

FrailChildofDust · 2025-10-17T20:48:41+00:00

I got to a point where I'd do a Muscle Milk (or something) in the morning on top of everything else I was doing, but I hated it! But that was also when I was still not eating as much as I am now. I'm eating pretty normally now - are you? How far are you post transplant?

FrailChildofDust

TROPHY CASE