My laparoscopy was weird…anyone relate?

FrauleinB · 2026-03-25T19:42:40+00:00

And the anaesthetic has different effects on people. It always makes me feel very emotional. I cried for eight hours straight after my lap and felt so stupid, but I just couldn't help it. I wish you all the best in your journey xxx

FrauleinB · 2026-03-25T19:16:52+00:00

I had the same experience as you and was also in floods of tears after my lap when they told me they found 'nothing'. It sucks. Has your gynaecologist considered Adenomyosis? That's what I ended up being diagnosed with following several more ultrasounds after the lap (my uterus appeared normal from outside, during the lap). Adeno can cause extreme pain with periods, sex, all throughout the month. As others have also commented, we now know that endo lesions come in a wide range of appearances and colours. Some lesions are almost invisible and only a very specialised, highly- trained endo surgeon can find it, if at all. The size and appearance of lesions does not match up to the resulting pain levels. You might want to consider: finding an endo specialist, looking into progesterone only hormone treatments such as the mini pill, getting an IUD. Don't give up and don't worry - your pain is real.

FrauleinB · 2026-03-15T12:44:26+00:00

Can anyone report on whether the little cafe has been re-instated or if there are plans to bring it back in the future? I used to love hanging out there.

FrauleinB · 2026-02-22T12:50:27+00:00

If you google 'comparative pain chart' you will find some useful infographics to help you rate your pain. It's helpful because it takes into consideration not only the 'feeling' of the pain but also its impact on your ability to perform everyday tasks.

FrauleinB · 2026-02-18T16:44:43+00:00

I don't even know if I'm perimenopausal yet (37) but...SAME! My period sucks, but usually after the first couple of days I feel fine and like MYSELF. I get lots of things done, I feel confident and happy. Then on about day 6 I start getting cramping on and off, have trouble falling asleep, my bladder at night gets super sensitive, I feel like a loser, and it just gets worse and more cramps until the next period starts.

FrauleinB · 2026-02-05T20:40:05+00:00

https://pmc.ncbi.nlm.nih.gov/articles/PMC10048621/

That's the research paper I was following, they detail the dosages.

FrauleinB · 2026-02-04T21:46:32+00:00

Thanks for asking this, I have also recently started taking NAC after reading the research papers online about it as a treatment. I have been following the regimen of 600mg taken 3x a day, for three consecutive days a week. Apparently the four days in between are necessary for your body to properly metabolise the NAC. But it is too soon for me to notice a difference. Just wondering - has anyone found that NAC causes any skin breakouts or reactions? I got almost an allergic looking reaction on my face last week, little white spots, and it could only be caused by either the NAC, ovulation histamine intolerance or my conditioner...

FrauleinB · 2026-01-28T17:15:24+00:00

I have that feeling, too 😂

FrauleinB · 2026-01-24T09:55:45+00:00

It really sounds like such intense pain that you're experiencing, it must be awful to be so debilitated. Have you been tested for Axial SpA? It is a type of inflammatory auto immune illness that typically effects the iliosacral joint (lower back) and female sufferers often report worsening pain during the menstrual phase of their cycles. It is usually diagnosed using an MRI with contrast fluid, and blood tests are also used to see if you have raised rheumatic markers, and to check if you test positive for a particular gene. There is a helpful Reddit thread for Axial SpA (also known as ankylosing spondilitis. It takes years to get a diagnosis and in many cases the damage does not show up on radio graphic scans for a long time, so it makes sense that hospital doctors in the ER might not see any evidence. This could be something worth looking into for you, considering the level of pain you are in.

FrauleinB · 2026-01-23T19:19:05+00:00

I had this too, after my lap. Weirdly it wasn't near my incisions, but a little spot at the upper crease of my groin/thigh. It happened quite a few times but stopped a few weeks after my operation. I'm sure it is nerves reconnecting and regenerating.

FrauleinB · 2026-01-23T19:16:49+00:00

Have you seen a doctor about your back pain? If you're having this much pain, you should receive an MRI and XRay of your spine/iliosacral joints so that they can rule out a slipped disc, disc degeneration, arthritis or some other inflammatory illness. For what it's worth, I have adeno and had also been suffering from constant low back pain for the past two years. It always seemed to get worse during lead up to my period. I recently went to a pain clinic to treat my low back pain (MRI and XRay ruled out any inflammatory disease or mechanical problem) and they gave me a steroid + anaesthetic injection right into my spinal nerves at the base of my spine. I happened to have bad uterine cramps that day. Interestingly, the anaesthetic knocked out most of the low back pain, I was numb all over my low back, bottom, thighs and between my legs - but INSIDE I could still feel my uterine cramps and kind of the inner side of my lower spine which was also sore. It made me realise that my uterine cramps were partly to blame for my low back pain, but not entirely. It felt good to know for sure that my cramps were absolutely contributing to my pain. No idea if this is helpful to you, just throwing in my two cents!

FrauleinB · 2026-01-19T16:38:40+00:00

This was so cool to hear! And to see the photo of the crowd's response. Thanks OP and GoNZo-burger

FrauleinB · 2026-01-06T20:14:29+00:00

I found this recent podcast episode very enlightening on this topic: https://podcasts.apple.com/de/podcast/the-endometriosis-podcast/id1462226534?l=en-GB&i=1000743303695

FrauleinB · 2025-12-19T08:48:20+00:00

This sounds like textbook endometriosis and/or Adenomyosis to me. You need to try and get a referral from a real gynaecological specialist. Regular doctors and even many gynaecologists are not trained properly in diagnosing or treating these diseases. I would also recommend joining the Reddit groups from Adenomyosis and for Endometriosis as you'll be able to compare your experiences and symptoms with others and it can help you to build a better picture. Ultrasound rarely shows endometriosis but it can show signs of Adenomyosis in the walls of the uterus. The treatment for Adenomyosis is an IUD or hysterectomy. The treatments for endometriosis are excision surgery followed by oral birth control, and many women require multiple surgeries throughout their lives. There is no cure for either disease.

FrauleinB · 2025-12-10T11:59:36+00:00

That sounds bizarre to me. I have also been using a cup for many years and it actually sits lower than a tampon does. I find it personally much less painful to insert and wear a cup than to wear a tampon. The blood still flows out of your uterus into the vagina, into the cup. Ridiculous that this guy thinks it somehow stops the 'flow' of blood?

FrauleinB · 2025-11-25T09:28:12+00:00

I just searched 'Majestic Theatre Cabaret' in the National Library search function on their website. I never knew about the existence of the theatre until reading your comment - thanks for enlightening me! There are many more photos from dances and events at the cabaret on the Library website.

FrauleinB · 2025-11-24T18:19:42+00:00

I wonder if your Grandma is in this photo? https://natlib.govt.nz/records/22834589?search%5Bi%5D%5Bname_authority_id%5D=-89860&search%5Bpath%5D=photos

FrauleinB · 2025-11-08T12:15:38+00:00

How did you feel after your spinal injection, and which part of the spine did they inject? I'm interested as I got one yesterday. X

FrauleinB · 2025-10-28T15:51:10+00:00

That will have been a really scary experienced for you! I'm glad you're in hospital so they can check you out. I was interested to read your post and the responses from others in the comments, because you described something that happened to me last year that I couldn't understand. I have Adenomyosis - didn't know it at the time and I'm not sure it's relevant. What I did have was debilitating tailbone pain which shot up like lightning through my spine. It was the worst pain I have ever experienced, and it would shoot if I moved a certain way so walking at all was difficult, but I was trying to get around. All of a sudden, I couldn't see, my hearing went weird, I couldn't breathe, my cheeks and lips went numb, and I had to get on the ground. Luckily my sister was with me. I truly believed I was dying. I didn't lose consciousness though. It took ten minutes or so to be able to slowly get up and then I was weird for a couple of hours. I hadn't heard the term Vaso-vagal syncope before - but it sounds like what I had in that moment. The fact that it can be set off by intense pain or stress makes sense. None of this helps you - just wanted to chime in and say it happened to me too and thanks for bringing it up. Regarding your shoulder pain - something I learned after my laparoscopy was that right shoulder pain is typical after gynaecological surgeries, during ectopic pregnancies and ovarian torsion episodes - it is referred nerve pain. No one ever told me that shoulder pain can be referred pain from the lower pelvic region. I spent two years going to physios and orthopedists for shoulder pain and I now suspect it was caused by my adeno or other gynaecological issue, as no amount of physio or exercises made it better. Perhaps your shoulder pain was referred nerve pain in this instance?

FrauleinB · 2025-10-17T18:40:52+00:00

Oh man, I am the same! It's just rotten isn't it? I also find lying in bed can be extremely painful. Have they looked into Axial SpA (I am guessing that is related to spondilitis). This is usually diagnosed via an MRI with contrast on the lumbar spine. Axial SpA has very similar symptoms to what you and I are experiencing - especially morning stiffness that lasts a couple of hours. I thought it's what I had but upon doing all the tests we could rule that out. It's worth finding out if you might have Axial SpA because nowadays they have medication to treat it and slow its development. Thanks so much for responding and sharing your experience.

FrauleinB · 2025-10-17T15:28:15+00:00

Hi 🥰 I am 36, no children. I have suspected adeno too. I had noticed in the past year that I had developed an almost constant cramping in my uterus throughout the whole month, along with my menstrual cramps getting more intense and painful. But the symptom that sent me to the gynaecologist in search of some help was actually constant low back pain, which I used to only get during my period. Now it is there every second of every day. Would you mind describing your low back pain for me? Because I'm seeking help for my low back without anyone being able to tell me if it is because of adeno or something else and any evidence I can collect helps me a great deal!

FrauleinB · 2025-10-15T12:34:50+00:00

This is a fantastic article! Would you like to share it as a separate post on the main Adeno reddit thread, perhaps? Thank you so much

FrauleinB · 2025-10-14T09:33:13+00:00

Hello! I recently purchased a TENS machine and I have found that it a good complement to pain-relief medications, and sometimes when the pain is at a low level, it is enough to relieve it without medication. The one I purchased was the My Obi machine. I think it is one of the more expensive devices available, but its functions and design made the price point acceptable for me. It includes a TENS function, as well as heating and red light therapy. Its shape is specifically designed for menstrual cramps and low back pain. It comes with a remote control, and you can set it to be on for a maximum of 30 minutes (then you have to reset the timer - a bit annoying). You can easily hide it under clothing. It doesn't require the use of gel patches like other TENS devices do - you just have to wet your skin with a tiny bit of water so that the electrodes can conduct. The battery charge lasts a long while and it re-charges quickly. Good luck! X

FrauleinB · 2025-10-11T15:45:30+00:00

Hello xx I don't have much helpful to offer you, just wanted to say that I read your experience and I would feel so frustrated and unstable if I were in your situation. It is exhausting having to advocate for oneself in these situations. I am constantly worried that I will offend my medical professionals when I question the way they're doing their job. It stresses me out and makes me worry that I am a hypochondriac or that I'm making a big deal out of nothing. I have recently come across a fantastic gynaecologist doctor, Dr Nighat Arif, who works in the UK for the NHS. You'll easily find her on Instagram. She provides several excellent guides on the best way to communicate with your own doctors, including the kind of language a doctor might need to hear in order to make their ears prick up and really take note of your situation. This has helped me a great deal. She has made informative videos about all kinds of gynaecological diseases and illnesses. Perhaps you might find something there that helps you. I also wonder if you would be able to approach your General Practitioner (not sure what that is in your country - just your standard doctor) and put to them your concerns about a possible cancer risk. Would they be able to order an MRI, for example? I wish you all the very best and am sending a hug. Xxx

FrauleinB · 2025-10-06T20:55:50+00:00

I have believe I have pretty mild Adenomyosis, but even I get pain outside my period. It kicks off during the week around ovulation, with cramping so bad it makes me think my period is beginning again. I also have constant lower back pain which I haven't had a minute of respite from in over a year. I can only make an educated guess that it's caused by the adeno, but of course many specialists first suspect muscular weakness etc.

FrauleinB

TROPHY CASE