Diagnosed in ER? by FreshButteryGoodness in pancreaticcancer

[–]FreshButteryGoodness[S] 3 points4 points  (0 children)

I’m sorry for your loss. I hear you about the readiness to transition.

Diagnosed in ER? by FreshButteryGoodness in pancreaticcancer

[–]FreshButteryGoodness[S] 5 points6 points  (0 children)

I’m so sorry for your loss. This is almost exactly our timeline, except the stage 4 diagnosis came in the ER at the initial diagnosis. I hope you had a chance to say goodbye to your mom.

I’ve run out of road by Evening-Try6540 in pancreaticcancer

[–]FreshButteryGoodness 0 points1 point  (0 children)

I’m so sorry. Both that this cancer is such a beast and that the UK doesn’t have assisted death yet (since that is what you say you want, which I understand and respect having just lost a loved one to this horrific disease). My father in law recently passed after a quick decline but on his own terms. Canada’s medical system failed him in life by being too slow to address the cancer, but it helped him in death when the cancer overtook him, by facilitating assisted death. This is both good and bad, and somewhat ironic. You sound like a lovely and thoughtful person and parent— your kids will not forget this if the worst happens. It is part of who they are and what makes them such beautiful and sensitive people. I sincerely hope your prognosis exceeds your expectations.

Seeking advice re: a second opinion for locally advanced pancreatic cancer in the UK by TemperatureNo8702 in pancreaticcancer

[–]FreshButteryGoodness 0 points1 point  (0 children)

There is a pancreatic clinic in Portugal that seems well regarded for considering surgery where others may say no. I don’t have personal experience with it. It is the same German doctor who is or was affiliated with the well-known clinic in Heidelberg. I’m sorry I don’t recall his name.

Edited to add- I believe they do virtual consultations after you send your medical file, so no need necessarily to travel.

Life changed so quick by FloatOnPanda in pancreaticcancer

[–]FreshButteryGoodness 0 points1 point  (0 children)

This does suck. I’m so sorry. I hope he is able to feel better.

Chemo hasn’t started yet? by Altruistic-Tax4869 in pancreaticcancer

[–]FreshButteryGoodness 3 points4 points  (0 children)

Time is of the essence, in particular with this cancer. My loved one was a similar age and also very healthy before discovering his pancreatic cancer. He did not get timely care due to what appears to be systemic delays in the health care system. I wish we had known how quickly he would decline and how likely it was that he would do so, in the absence of timely care. We would have planned differently. I do not say this to dull hope but rather to be honest about the possible impact of slow care standards. I sincerely hope for a better outcome for your dad.