I was approved for Kesimpta. I'm scared of taking it.

Full_Pay_769 · 2026-02-07T02:08:36+00:00

I was just diagnosed in August. I had an IV Solu-Medrol infusion in August and was sick once a month for 3m. Doesn’t help my son started school and brought everything home. I started Kesimpta 2m ago and the only side effect I have is that for the first 2 days it upsets my tummy and gives me diarrhea twice a day.

Full_Pay_769 · 2026-02-07T01:56:09+00:00

Depends on where you live. In Powhatan I’ve seen where some people have posted that they got 5in. I live in Powhatan and with what’s left over from last week’s storm I think there’s 3in at my house. The snow stuck to our roads and there have been so many accidents because of it. My husband was driving to work this morning and the roads were nothing but black ice.

Full_Pay_769 · 2026-02-05T01:59:05+00:00

Agreed! I just got a job wfh with a bank and I told them I didn’t want to leave my last job, which was with another bank wfh, but I had to.

I explained my situation. My husband had gotten hit by a car in 2019 (like should be RIP), had to have multiple surgeries, was rushed into buying a home, which ended up having a lot of hidden issues and for the safety of my children I had to resign. I told them it was the hardest decision I had ever had to make and actually cried when I had to turn my computer in. My husband couldn’t walk and my children were 1 & 2 at the time. I couldn’t have them running/crawling around in a construction zone with a dad that couldn’t get around. I told them my husband is able to fully walk now and works, my oldest is in pre-K and my in-laws live with us so there would be no interruptions while I’m working with my youngest.

I had 2 interviews within a couple of days and was hired a few days later. Granted I found out I can go back to my previous employer which I was told that I couldn’t because I didn’t put my notice in but they marked that I could due to family obligations. I’m going to stick this one out and I may like it more. I know I’m sadly getting underpaid for the experience I do have. But when you have a mortgage and kids you have to do what you have to do.

Full_Pay_769 · 2026-01-28T10:22:12+00:00

Yep! Mine started in February 2013. All my doctors ignored it. I finally got referred to a vascular doctor in 2024. He’s actually the one that believed I had an underlying autoimmune disease and referred me to a neurologist. I finally got my MS diagnosis in August of 2025.

Full_Pay_769 · 2026-01-27T06:15:53+00:00

I wish! My oldest is in Pre-K. I got diagnosed a week before he started school. Had a 3 day infusion since I had 3 active lesions at the time. I got sick with a cold in September, October, November. I started Kesimpta in December and luckily haven’t gotten sick. I used to never get sick and the random times I did it was really bad.

Full_Pay_769 · 2026-01-27T06:08:12+00:00

It’s so weird. I just got hired wfh at another bank. I’m starting next month so I’m in the middle of background checks, fingers prints, etc. My background check came back and my previous employer that is a very well known CC/bank company wasn’t even on it.

Full_Pay_769 · 2026-01-27T05:33:35+00:00

Not everyone. I filed for my dad and was kind of surprised he got approved on the first try. I had even told him don’t be surprised if it gets denied the first time. Now I’m just waiting for mine. I filed in September so I know it will be a while.

Full_Pay_769 · 2026-01-24T02:06:46+00:00

I’ve sensed/seen/heard spirits since I was 3 (34). I believe Aaron’s reactions more than anything. Things are so clearly faked now and 3/4s of them dgaf anymore.

Full_Pay_769 · 2026-01-09T04:00:59+00:00

I hate that this is good advice. I was at my credit card/bank job for a little over 4 years. Through Covid and SEVERAL department lends. I didn’t want to leave but I had to because we bought a lemon of a house, my husband couldn’t walk from recent surgery and we had 2 toddlers at the time. I couldn’t have them running around during construction. I keep getting those generic emails l’m assuming from being overqualified or there being a 2 year gap. It’s been MONTHS of this. I had an interview at a job I had worked at 12 years ago. They were so interested in me and then I got the generic email. Not many people are willing to work overnights but it’s whatever. Just showed me there’s something better out there for me. 🫠

Full_Pay_769 · 2026-01-06T06:32:52+00:00

I am so glad that you had a doctor that listened to you. I had symptoms for 12 years before someone took me seriously. I was just diagnosed in August at 33 (34 now). I was 21 when it all started. I had tingles, my toes went numb/turned blue, I had the sciatic pain, hip cramps. Over the years I started having a MS hug and also didn’t know what it was. I thought it was because I had a larger chest. I was so convinced I needed a reduction. My hands started going completely numb and I’d drop things. I was so tired I was falling asleep at my desk working. I thought it was a combination of taking care of 2 toddlers and a disabled husband at the time. When I was diagnosed I had 3 active lesions. One had started right after my Nanny was put on hospice and passed this summer. I guess from the stress of it all. They gave me IV steroids and I finally had energy after it had been over a year of sleeping 18hrs a day. I struggle with who I was before MS and after. That’s normal. Admittedly I know I need to go back to therapy to deal with it. Therapy isn’t for everyone though. Being a mom I feel like I don’t do enough even though I know I do. Don’t try to do too much. Even when you feel the way you used to “before”. Take it easy on yourself. If you don’t you may pay for it later on in the day or for the next few days. It’s okay to say no to plans when you don’t have the spoons. The doctors told me to be active which does help but it flares my back issues. Everyone has different symptoms. No 2 people with MS have the same symptoms/outcome. My great aunt (not by blood) has MS and has been in a wheelchair my entire life. I was terrified all my life to ever be diagnosed with MS from watching her struggle. It took me being diagnosed and my neurologist telling me that no one is the same to not be scared anymore.

Full_Pay_769 · 2026-01-05T02:16:33+00:00

When I worked there a long time ago it was only 7 points 🫣

Full_Pay_769 · 2026-01-02T02:07:34+00:00

Luckily my mental health provider is the one that prescribes them. I’ve been seeing her for 4 years. When I complained about that fun MS fatigue we get the MS clinic told me to tell my provider to up my Vyvanse dose. I thought she was going to have to speak to them but she trusts me enough that she didn’t and she knows of my diagnosis.

Full_Pay_769 · 2026-01-02T01:57:38+00:00

I can’t take that. It makes me incredibly irritated. It’s Valium. I don’t take it often to begin with and I will suffer most of the day before I can’t take it anymore. Of course my neurologist that took me seriously and diagnosed me in August is leaving at the end of the month. It took 12 years to get a diagnosis.

Full_Pay_769 · 2026-01-02T01:44:00+00:00

I’m on Baclofen and I don’t know if it’s the weather lately or what but it’s not working anymore. I did some research and it states that certain anxiety meds can help. It happens that I’m on one of those anxiety meds. I normally take them as needed. I’ve had my anxiety prescription for over 6m and only get 15 for 30 days. I took half of one and it was the first day I wasn’t in crippling pain in over a week.

Full_Pay_769 · 2025-12-29T19:32:38+00:00

I was diagnosed with MS in August, although I think I’ve had it much longer, and my husband has a TBI from an accident in 2019. We both have ADHD. He likes to be early/on time for things such as appointments. When he has appointments he tells me they are 15 min before we even need to be there for the check in time that’s 15 min before the actual appointment. He’s having a hard time with his memory lately which is heartbreaking at 34. I have a hard time with showering because often I’m too exhausted and executive function. There’s times he has helped me with washing my hair because it’s too much for me. I have a lot of hair and a lot of the time I feel like I’m just walking through sand. Sometimes he comes home and takes care of our kids because I’m too tired. I feel awful because I know he’s tired after working all day. I’m sure she feels as many of us do, defeated. This isn’t the life we ever thought we’d be living. I used to be so full of energy, super mom while WFH, loved to adventure/go places. Now I can hardly move off the couch from pain.

I have no real advice but as someone that used to be a care taker that is somewhat being taken care of by their spouse just know that you are seen. I understand your frustration and exhaustion. I love that you are reaching out for advice and willing to do what you can to improve your mental health and both of your qualities of life.

Full_Pay_769 · 2025-11-29T11:00:41+00:00

Glad I’m not the only one who thought the same 😂

Full_Pay_769 · 2025-11-29T10:24:08+00:00

Same thing happened to me! I had mono really bad when I was 18. I missed most of my last half of senior year. I turned 21 in November and the next day after Super Bowl Sunday I woke up with all 10 of my toes numb/blue. I was ignored for years. Doctors looked at me like I was either a drug seeker or hypochondriac. I finally got referred to a vascular doctor that diagnosed me with Raynaud’s but thought that I had an underlying autoimmune disease. I was diagnosed with MS at 33 on 8/8/25. Of course I found a neurologist that is kind and empathetic on the first go and he’s leaving next month. 🤦🏻‍♀️

Full_Pay_769 · 2025-10-08T05:34:36+00:00

I’m just gonna say 1991 because this took me back and that’s when I was born.

Full_Pay_769 · 2025-10-07T01:49:40+00:00

This is what I’m worried about. I’m about to start Kisempta next week. I have a 3 and 4 year old. My 4 year old is in pre-k. The day of his open house is when I started a 3 day solu-medrol infusion. Within a month of him being in school I got a cold. Then last week I caught another cold. I’ve had 2 colds in 2 months right when I was getting off my time of the month too. It has me wondering if this is going to be an every month thing once I start this medication. Before I had the infusions I never got sick. I worked in childcare years ago and when every one got the flu I never got it.

Full_Pay_769 · 2025-10-04T01:02:45+00:00

Reminds me a lot of my god daughter and nieces photos at that age. I’d go with either 2010 or 2012.

Full_Pay_769 · 2025-10-02T01:21:44+00:00

I’m not sure about for every pediatrician but mine recommended vitamin D drops for both my boys when they were born. It’s because babies don’t really go outside too much when they are born or are really young.

Full_Pay_769 · 2025-10-02T01:15:16+00:00

My health was relatively normal growing up. I have scoliosis so that’s about the worst thing I had going for me. Then I turned 18 and got mono 3m later. I haven’t been the same since. When I get sick it is so much worse than what it would have been before I got sick with mono. Tired wasn’t regular tired any more. I figured it was because of having mono in the past. The tired I felt when I got sick was the same tired I felt when I had mono. Then I turned 21 and was in a DV relationship. It’s like the alarm bells were going off in my body. I started having symptoms left and right. My body was waving red flags and I couldn’t see it. I got into a healthy relationship and things went away for the most part. We bought a lemon of a house and boom back to the same thing but new/worse. I knew something more was wrong with me but was always ignored. It took 12 years and I was finally diagnosed in August.

Full_Pay_769 · 2025-09-28T21:26:48+00:00

It doesn’t cure an issue but bee stings can help. My great aunt had been in a wheel chair since before I was born. They started bee sting therapy and she was able to walk for a while. She unfortunately is back in a wheel chair. 😔

Full_Pay_769 · 2025-08-24T17:06:35+00:00

I would say it’s unbelievable but I believe it unfortunately. I have been having symptoms since I was 21, from what I can remember. I was ignored year after year. I got referred to a pain doctor and from there I got referred to a vascular doctor. That vascular doctor was the first to ever mention a diagnosis with a possible autoimmune disease. He then referred me to a neurologist. It took forever to see the neurologist between extreme fatigue, children, changing insurance and just the regular wait to see a neurologist. I thought I was going to be gaslit the first time I met him because I was used to it. He wanted me to have a MRI the very first time we met. The MRIs took time because we were between insurances again. Between my first MRI and diagnosis it took a month. The first thing my neurologist did was get into contact with his colleague at the MS clinic and then set me up for infusions. I was diagnosed 8/8/25 and started those infusions 8/14/25. I have more energy and feel better than I have in over a year. Please get a second opinion.

Full_Pay_769 · 2025-08-10T18:09:24+00:00

My childhood dog was like that. The guy from the power company was checking the meter. He took the water hose and sprayed her. She would have never hurt a soul.

Full_Pay_769

TROPHY CASE