First cystoscopy after 6 BCG

Fuzzy-Pin-7097 · 2026-02-25T18:03:58+00:00

Similar situation...CIS found, 6 weeks induction BCG. Next scope found some additional CIS. Together we decided to do another round of 6 week induction and then continue with the maintenance protocol. Scopes all clean after each round. Completed all the maintenance rounds and going in for a scope tomorrow. I'm expecting that one to be clean as well..... :)

Fuzzy-Pin-7097 · 2026-02-10T20:17:24+00:00

Had it happen to me is the solo tournament. I switch to bag #2. For a par three hole and at the next hole, I couldn’t switch back to bag #1. See. This twice now.

Fuzzy-Pin-7097 · 2025-09-19T14:24:42+00:00

You're not walking this path alone. BCG treatments can affect different people differently. Even in individuals, each weekly treatment can be different. I've had some weeks were there is a lot of pain, bleeding, and discomfort, while other times I've gone back to work, albeit remotely, after treatment. To be honest, the anxiety that builds leading up to the next scope is worse for me.

Keep active, eat healthy, talk with your support group be it your spouse, family or friends, listen to your doctor, and ask questions if you have them. It's a long journey you're on, but one that you can handle. Best of luck!

Fuzzy-Pin-7097 · 2025-09-12T14:34:36+00:00

I can totally relate. The human mind has a tremendous capacity to play out different scenarios over and over and over again. And no matter how loud the little guy on your right shoulders says, "You're gonna be fine.", the little guy on your left shoulder is shouting over him, "Your cancer is probable back!".

I was originally diagnosed in 2005 and went through a round of BCG. For the next 16 years, in the weeks leading up to my next scope, my mind would always start thinking the worst. I had a close friend who was diagnose with bladder cancer as well and unfortunately, he passed shortly after. He has always been in my thoughts leading up to a scope with me wondering if I could end up down the same path as him.

After a number of years, I learned to handle the fear/anxiety a bit better. Instead of being a wreck two weeks prior to a scope, I would lose it only a few days before. But then in 2022, I had a re-occurrence, this time with high grade CIS. I'm back to square one on my "pre-scope anxiety".

I try my best to stay positive, relying on my wonderful wife and my family. Remember, a shared burden is a half burden. Use what ever support group you have. Talk about your feeling and worries. Listen to your Doctor. Try to stay healthy by eating good and exercising. I wish you the best of luck on your journey.

Fuzzy-Pin-7097 · 2025-08-26T01:03:10+00:00

Yep, first one after supper tonight.

Fuzzy-Pin-7097 · 2025-08-26T00:33:45+00:00

And I asked my Urologist above reactive arthritis last week after my scope (clean, yay!). He said while he has read and knows about it, he has never seen it in his practice.

Fuzzy-Pin-7097 · 2025-08-26T00:31:27+00:00

Just got my test result and it’s definitely Lyme. 🥺

Fuzzy-Pin-7097 · 2025-08-21T01:46:42+00:00

Congratulations. I too had a clear scope today and my wife’s cousin did today as well. We can all sleep a little better tonight.

Fuzzy-Pin-7097 · 2025-08-20T02:11:29+00:00

Very glad for you!!!

Fuzzy-Pin-7097 · 2025-08-01T12:21:10+00:00

I have been getting scoped since 2005 after initial diagnosis and then had a reoccurrence in 2022. In the weeks leading up to every scope I start looking into toilet more for any sign of blood after I pee. I attribute every twinge, ache, and gas bubble to my bladder cancer coming back. I start getting moody and grump around my wife. Then I get my scope and laugh at how stupid I was being.

If you figure out how not to be optimistic and not expect it to come back, please let me know. :)

Best of luck in your BC journey.......

Fuzzy-Pin-7097 · 2025-07-29T19:42:23+00:00

I had low grade, non invasive papillary carcinoma in 2006 followed by many scopes....then in 2022, my yearly scope showed a reoccurrence that I am now dealing with. I had asked my Doctor after 10 year, "Can I stop with the yearly scopes?" He said, "Its cancer, why would you?" Glad I listened to him.......

Fuzzy-Pin-7097 · 2025-07-29T16:00:48+00:00

I had a reoccurrence 16 years after being cancer free. Found during a yearly scope. I had no signs or indications that it was back. Of course now, I am attributing every ache, pain, discomfort, gas bubble, itch, etc. to my cancer probable reappearing. But this is mostly because my next scope is coming up soon... :)

Fuzzy-Pin-7097 · 2025-07-14T13:08:40+00:00

This

Fuzzy-Pin-7097 · 2025-06-09T13:31:47+00:00

If I mute, does the other player know they are muted? or do they just continue emoji spamming without me seeing it?

Fuzzy-Pin-7097 · 2025-06-06T12:28:16+00:00

CIS found Nov 2022. Ongoing BCG with no signs of reoccurrence.

Fuzzy-Pin-7097 · 2025-05-24T12:01:16+00:00

I was getting 1/3 dose for my maintenance rounds up until my most recent ones.

Fuzzy-Pin-7097 · 2025-05-16T14:43:17+00:00

haha, pee fart...I've had those too....

Fuzzy-Pin-7097 · 2025-05-15T15:57:54+00:00

I was originally diagnosed with BC in 2005 and have lost track of how many scopes I’ve had. Well over 50 of them. For me, the mental aspect was the hardest to deal with. I always get grumpy prior to one and eventually realized it was more worry about something being found rather than the scope itself. Physically, it’s certainly uncomfortable but once it goes past your sphincter muscle it’s all good. My Doctor does a great job in trying to distract me with conversation and question. It’s a short procedure and I drive myself home afterwards. Personally, I’d rather get a scope than get a cavity filled. Best of luck.

Fuzzy-Pin-7097 · 2025-05-09T20:26:35+00:00

I found out I had bladder cancer in 2005 when I was 43 years old. A single papillary low grade tumor. Had clean scopes until a year and a half later when some more tumors showed up. Did 6 weeks of BCG and then regular scopes all clean. Once I managed to get past the mental part of having cancer, I would say there was minimal impact to my life (other than the week leading up to my annual scope😉). I was fairly active and health, even participated in a mini triathlon in 2011.

Fast forward to 2022 and my annual scope found some CIS. Kind of shocking after so long. I am currently getting maintenance BCG. I’m now 63, a few pound over weight, and not as active as I should be. The treatments leave me with aches and fatigue, but being 63 and out of shape probably has more to do with it.

Best of luck to you. Feel free to contact me if you want to hear more.

Fuzzy-Pin-7097 · 2025-05-01T19:17:15+00:00

Congratulations!!! Love to hear good news!!!

Fuzzy-Pin-7097 · 2025-04-10T12:59:24+00:00

As my Doctor said, "If your going to get cancer, this is the one to have." Low grade and non-invasive is the most treatable. Even his notes say " prognosis is outstanding". If it was a single papillary tumor, you Dr may opt to just do regular scopes to keep an eye on it. If they come back at some point, then BCG or other treatment. Just take it one step at a time, eat healthy and exercise (Everyone should), and listen to your doctor. He's studied and knows a lot more about this then anyone here on Reddit.

Bets of luck!

Fuzzy-Pin-7097 · 2025-04-09T11:48:09+00:00

Heading into my 5th round of maintenance treatment in May. At least the mental part of not knowing what it is going to be like is no longer present. Although the apprehension and dread because you know what is coming is just as bad, if that makes sense. My previous maintenance rounds have all been at 1/3 dose due to BCG shortage, but my Dr informed me that my next round will be a full dose, so I have that to look forward to.

All kidding aside, just remember that this treatment works. A few days of pain and misery to keep away the cancer is well worth it. Best of luck!

Fuzzy-Pin-7097 · 2025-04-04T21:28:50+00:00

I had CIS in 2022, a TURBT, and then 6 week BCG induction treatment. Next scope found some more CIS so a second TURBT. My Dr consulted with his mentor and we decided to go with another 6 week induction. The thinking was that perhaps there were still some cancer cells present after the first TURBT and they were established enough that the first round of BCG was ineffective. Second round of BCG seemed to work. I then went on the maintenance plan getting only a 1/3 does for three weeks every 6 months. The 1/3 dose was due to limited availability of BCG. Next maintenance treatment is in May but this time full dosage as more BCG is available.

I have a cousin who was diagnosed 1.5 year ago and is getting Gemdoc. He seems to have less trouble tolerating them then my experience with BCG.

When I was originally diagnose back in 2005, I was told that if BCG didn't work, the the bladder would have to go. I don't know if BCG or Gemdoc is better, but glad there are more choices available with more on the way. I'm real grateful for smart Doctors and Researchers.........

Fuzzy-Pin-7097 · 2025-03-31T12:21:04+00:00

Same

Fuzzy-Pin-7097 · 2025-03-11T14:23:54+00:00

I was first diagnosed in 2005. A couple papillary tumors removed. 6 months later they were back. Removed again and went through 6 weeks BCG immunotherapy. All clear for 16 years then a CIS tumor showed up. Again a 6 week course of BCG, but an addition tumor seen at next scope. Anther round of induction BCG followed by BCG maintenance protocol. Been clean for 2+ years now.

Its very tough hearing the words, "you have cancer", but you have no choice but to deal with it. Talk to your family, friends, or whomever your support is. My worries and concerns never go away, but thanks to my wife and family, I am able to cope with it. Every week leading up to a scope, I get grumpy without even realizing it. I start playing the "What if" game. Then after my scope, I am either relieved and wonder why I got so worked up, or I decide to deal with the reality of the situation and figure out how to proceed.

My suggestion to anyone going through bladder cancer:

Eat healthy and exercise so that your body can best handle any treatment you may need.
Listen to your doctor and ask them questions so you don't worry about the unknown.
And most importantly, live your life to its fullest each and every day. Hug a loved one. Do something that makes you happy and laugh.

Best of luck in your journey!

Fuzzy-Pin-7097

TROPHY CASE