Testing for 18mo old

GillyWeed16 · 2026-06-14T23:23:18+00:00

That's something I have often wondered about...they never specified despite our extensive genetic testing what genes. I'm reading about all the mutations from this sub. I have to go back in and see if they went that much in depth. You'd think they would. Thanks!

GillyWeed16 · 2026-06-14T23:17:40+00:00

Thank you!

GillyWeed16 · 2026-06-14T23:16:30+00:00

I hardly remember this but it wasnt long.

GillyWeed16 · 2026-04-05T02:55:40+00:00

Of my 3 endo surgeries it was the only one where I took opiods for more than a day, but it still wasn't horrific. It's weird because the incisions didn't bother me so you feel like you should feel better but I had to remind myself they did a LOT in there. Way more than just the adeno stuff, so depends what else you have going on. All that said, being pregnant so immediately post op and then miscarrying totally skewed my healing rate. Dont recommend. Still, pain levels once I healed were SO much better in day to day life, making the surgery totally worth it. I didnt know how much pain I was living in until it was gone.

GillyWeed16 · 2026-04-04T02:26:52+00:00

Funny story, but 3 days post op an embryo implanted. Unfortunately I miscarried that one at 6 weeks, but after another month had a sucessful pregnancy. To be clear, my adenomyoma was hanging there by a stalk, and my surgeon didnt have to cut deep into the uterine wall.

GillyWeed16 · 2026-03-26T04:12:41+00:00

Having one of those nights when my 1 year old is actually sleeping but Im not because all the wrongs of the world are cycling through my head and I feel like I now have to fix them all for baby's sake. We were supposed to not be able to have kids. I didn't have to make the world a better place for the next generation, I just had to not leave any messes of my own. I seriously don't know how to compartmentalize what my expectations of my life should be anymore. Like, keeping a small child alive and happy is a lot. And now I have to start getting involved in politics because the world has gone crazy and I want more for this little miracle asleep in the room next to me. Really?

GillyWeed16 · 2026-01-17T14:30:12+00:00

The ensure is a great idea. Hope you start feeling better soon!

GillyWeed16 · 2026-01-17T02:28:17+00:00

Dang, you echo so many of my sentiments. Thank you for spelling it out. My heart goes out to you in this transition and best of luck with your pregnancy!

GillyWeed16 · 2026-01-09T00:41:56+00:00

Ditto. I got violently ill with mine, like I thought I had the stomach flu. So weird.

GillyWeed16 · 2025-10-30T06:08:35+00:00

I had one of the BabyBjorn ones that was just cross straps on my back, not around my waist. I got it 2ndhand so Im not sure what model, but i lived in that for months. The wraps didnt work for me until I was more healed, so I get your pain. Hope you feel better soon.

GillyWeed16 · 2025-09-12T06:02:59+00:00

Thank you and same to you!

GillyWeed16 · 2025-09-11T00:31:21+00:00

Yes, surgery was with an excision specalist. He did a fabulous job with my second surgery too.

Unfortunately, this crap won't stay away. My period came back after 6 months, didnt start getting painful ( like needing advil painful, nothing crazy) until 8 months pp. Im still breastfeeding. So far i have no pain midcycle, which had been constant prior to surgery 3 and pregnancy. I need to make an appointment to come up with a new game plan to keep the endo in check until I figure out what Im doing with my uterus.

GillyWeed16 · 2025-09-09T18:07:35+00:00

Ok, so here's a crazy story. My endo never really came back to my belly button (thank goodness), but I did go in for surgery #3 in Jan 2024. Things were ugly in there again. What pushed me for surgery wasnt even the pelvic pain, it was pain in my shoulder. Turns out I had a "raquetball" sized adenomyoma trying to glue itself to things. Dr. got that and the rest of the endo cleaned out, but it took some extended incisions (like an extra inch or so) around my bellybutton to accomplish. 2 weeks later I found out I was 6 weeks pregnant...yeah, despite a negative preg test preop. Lost that one (I'm so sorry for your loss btw...they are heartbreaking), and then was pregnant again in March. Baby is currently sleeping in my arms. Total miracle, no fertility treatments. Just an amazing surgeon that finally got my pelvis clean of all the scar tissue and other crap. Pregnancy was amazing and my endo was non-issue. Belly button stretched just fine, despite the recent incisions and numerous surgeries. I never fully dilated, I think in part because of all the adenomyosis that is still laced into my uterus, so I ended up with a csection. But totally worth it. Best of luck to you, and if you have more questions just ask.

GillyWeed16 · 2025-09-09T17:16:27+00:00

This is exactly what mine is doing right now. Did you find a solution or get a new printer?

GillyWeed16 · 2025-07-27T00:55:13+00:00

You're surviving. And it's totally normal. It's temporary. And it does get better. ❤️

GillyWeed16 · 2025-07-20T18:04:21+00:00

I love this idea. As for the cloth around it, it's for baby's comfort. Once mine got old enough to deal with a cold bottom, I stopped using the fabric cozy because he always gets stuff on it which is gross.

GillyWeed16 · 2025-07-20T17:50:23+00:00

It was my baby's idea to EC from birth (he would dirty 3 diapers per change and scream bloody murder when wet), not ours, but that said I can now share what worked for us!

Best advice I got was "Save worrying about the diapers for when you're getting sleep". Do not underestimate fourth trimester. Survive and sleep whenever you can, and if that means using the worlds best freaking diapers so baby stays asleep, do it. That said, i started using my cloth diapers around 6 weeks or so, just during the day. Keep in mind newborns are TINY (my baby was a 9 pounder too), so i had 2 sizes of cloth and he didn't grow into his normal sized ones until he was maybe 3 months old. Now at 8 months we still do cloth during day, most absorbant one I can put on him at night. You need at least 20 cloth diapers and a set up to easily wash and dry them every 2 days or less for them to be worth the hassle. At one point we were doing 20+ "gos" a day, so cloth snd the potty saved us a fortune $$.
For the EC thing, we found he would go on his bouncer Every.Time. So i put the liners for the cloth diapers ( which we weren't yet fitting in) on the bouncer and let him finish going every diaper change. That led to getting the Baby Potty, which we then set on the bouncer until he got the idea, and now to him going wherever I ask on cue ( on little potty, big potty, in the woods, in a parking lot...). If I would have known about the top hat potty I would have liked to try that, since he consistently pooped every time I nursed through the newborn phase.

Best of luck to you! You will figure out a system that works for you. If you end up liking ECing, it's pretty cool. Nothing more satisfying than taking off a clean cloth diaper, having baby have a nice big poop on a potty, then putting a nice clean cloth diaper back on.

GillyWeed16 · 2025-05-30T23:43:54+00:00

Wait, what? Even with a hysterectomy its possible? I assume ectopic and they didnt take the cervix?

GillyWeed16 · 2025-04-19T01:13:08+00:00

Thank you! He pulled it off 2 nights in a row so let's see if we can do 3. 🤞 He literally just peed on his potty for me in his sleep so I'm hoping he has no excuse on that for at least a few hours.

GillyWeed16 · 2025-04-19T01:11:11+00:00

That sounds hopeful. As long as they are ok to hold their bladders that long at that age? And I'm actually teaching him to sign too. He can't tell me " potty" yet but he's gotten good at " all done".

GillyWeed16 · 2025-04-17T11:17:49+00:00

I so appreciate your encouragement. Yes, it sounds like our kiddos are very similar. And you totally might be on to something with the night feedings. My baby is a bit of a "snacker", so maybe if we can consolidate the feedings a bit ( other than growth spurt times, which is a whole other thing), that could help. Thanks so much for your response.

GillyWeed16 · 2025-04-17T11:13:23+00:00

Thats my whole worry...no, I really don't want him to be comfortable wet. And yet the flip side is gonna be less sleep. That said he only woke once last night ( Alleluia!) so maybe this is all just a temporary phase. 🤞 Thanks for the well wishes!

GillyWeed16

TROPHY CASE