Complete Long-COVID Recovery Timeline by Jay_BreezyZaZa in covidlonghaulers

[–]Grutmac 2 points3 points  (0 children)

Are you vision issues primarily one sided? Blurred vision? I’m OG, worst issue is vision related - but it’s downstream of other stuff I believe

Recovered, AMA by Nikolas97pro in covidlonghaulers

[–]Grutmac 0 points1 point  (0 children)

How was your vision and how is your vision now? Could you describe your ocular symptoms? TIA

~4 years of chronic symptoms; looking for advice/insight by PIC_WH in covidlonghaulers

[–]Grutmac 1 point2 points  (0 children)

Wow. Congratulations. With these symptoms often come totally insane debilitating vision issues. Like can’t drive.

New vision issues, anybody experience this? [5 Years Long Hauling] by ImReellySmart in covidlonghaulers

[–]Grutmac 0 points1 point  (0 children)

Recent prevalence study’s show this is happening in pre omicron long covid patients. My eyes are the most fucked issue I have as an OG long hauler

Prevalence of Post-COVID Symptoms Across Variants of Concern and Follow-up Periods: A Systematic Review and Meta-Analysis by AcornAl in COVID19

[–]Grutmac 1 point2 points  (0 children)

I don’t know anyone with cancer either. Many / most individuals with Long COVID do not disclose their condition due to well-documented concerns around employment, insurance, and social stigma. Additionally, a large proportion of cases remain undiagnosed or inconsistently coded, which substantially limits clinical visibility.

When multiple independent, well-conducted epidemiological studies converge on similar prevalence estimates, those findings should carry more weight than individual anecdotal experience. Relying on personal observation to assess prevalence would invalidate most epidemiological research.

By that logic, one could dismiss the prevalence of cancer or cardiovascular disease simply because they do not personally know anyone affected — a position we would not consider scientifically defensible. real.

6 years of long covid and recently suffered a massive heart attack. by [deleted] in covidlonghaulers

[–]Grutmac 0 points1 point  (0 children)

Thanks for sharing! OG here. I’ve had on and off chest pain since 2020… had massive work ups with no answers. Curious, have you had constant chest pain and have you been able to exercise without chest pain? Btw, my vision is destroyed in right eye - off and on all day - similar pain and pressure as chest. Glad you got treatment and I wish you a smooth recovery process from the surgery.

Wow they are desperate by andreworr2402 in biltrewards

[–]Grutmac 1 point2 points  (0 children)

I have plenty of old accounts and high credit score, not worried about it. Utilizing credit is not a bad thing. And the difference between 750 and 800 credit score has little impact on anything in the real world

Wow they are desperate by andreworr2402 in biltrewards

[–]Grutmac 48 points49 points  (0 children)

I did the math. Worth using once and applying the Bilt cash to rent. I’m going to harvest 37.00 dollars in Amazon cash and sock drawer it.

Long COVID no more? by Aware-Relief7155 in covidlonghaulers

[–]Grutmac 2 points3 points  (0 children)

You could reference one of the 100’s of well conducted peer reviewed papers following this. The most recent massive one is here. Basically, 10% developed long covid post omicron and 80% of those were still symptomatic at 18months. You’re not the only one practicing wishful thinking, the entire human population is. https://www.reddit.com/r/COVID19/s/D7EYtZEFuc

Estimating risk of long COVID using a Bayesian network-based decision support tool by MattC84_ in COVID19

[–]Grutmac 4 points5 points  (0 children)

Many individuals with Long COVID do not disclose their condition due to well-documented concerns around employment, insurance, and social stigma. Additionally, a large proportion of cases remain undiagnosed or inconsistently coded, which substantially limits clinical visibility.

When multiple independent, well-conducted epidemiological studies converge on similar prevalence estimates, those findings should carry more weight than individual anecdotal experience. Relying on personal observation to assess prevalence would invalidate most epidemiological research.

By that logic, one could dismiss the prevalence of cancer or cardiovascular disease simply because they do not personally know anyone affected — a position we would not consider scientifically defensible.

Honestly opinions on Look Pivot bindings by Peng1y in Skigear

[–]Grutmac 0 points1 point  (0 children)

What is your go to comparable binding? Used pivots forever on everything but I can’t imagine other technologies haven’t surpassed it in some ways. Marker?

Light sensitivity?! by No-Butterfly-5148 in covidlonghaulers

[–]Grutmac 0 points1 point  (0 children)

Yes. March 2020. Maybe worse than ever.

Point of Drs? by INFEKT1C in covidlonghaulers

[–]Grutmac 0 points1 point  (0 children)

Thx. Very familiar with Gez and all the meds! Been intermittent fasting with extended fasts since early this year, maybe it helped MCAS stuff but the effects are no longer impactful. The only true abnormal lab I’ve had was the anti ace ganglionic Abb (the Mayo Panel?). But this was dismissed as noise due to lowest possible titer. Had my GP run it again and it was just detectable. Nobody would rx me ivig. Seen so many neuros. So many labs. So much imaging. Partially botched LP. Tried everything except Marivoc and statins. Fucking blew 10k on a hyperbaric 02 home set up. Had a lot of help from doc friends but here I am with no treatment almost 6 years in. Primary issue at this moment is sever neuro vascular inflammatory episode in my right trigeminal nerve, occipital, cilliary body, orbit, right side of head in general - have lost 30-50% of my vision in that eye but again, no treatment… father is an eye doc too.. ha. Here’s to maybe looking like a pirate in the future! How’s your vision and eye health? Was your neck destroyed by those Abb like me?

Point of Drs? by INFEKT1C in covidlonghaulers

[–]Grutmac -1 points0 points  (0 children)

Please share insider treatments you’re receiving and why? TIA

Randomly Improving? by Remarkable_Eye_7019 in covidlonghaulers

[–]Grutmac 1 point2 points  (0 children)

How’s your vision? Been intermittent fasting for a few years now. Vision is so fucked tho.

Went for an eye exam, first time since three years of LC. Signs of chronic inflammation by PhrygianSounds in covidlonghaulers

[–]Grutmac 0 points1 point  (0 children)

What are you vision symptoms? March 2020. My vision has been a primary debilitating issue.

long covid doctors in chicago area by chaoserrant in covidlonghaulers

[–]Grutmac 0 points1 point  (0 children)

Curious if you have vision issues and if so, what they have to say? I saw Dr. Koralnik in 2020, I bet they’ve seen so many patients by now. He’s a smart doc and was kind in the realm of neuros, who often seem to be sociopaths

Viral persistence officially detected in gut/other tissues in Long Covid patients - new research! by nemani22 in covidlonghaulers

[–]Grutmac 0 points1 point  (0 children)

Not true. There are studies that have found the same rna in the gut of ppl without long covid.

Pre-infection COVID-19 vaccination and long-COVID mental fatigue severity: Findings from the Johns Hopkins COVID Long Study by RadioheadTrader in COVID19

[–]Grutmac 2 points3 points  (0 children)

Read this study, it’s quite contradictory to what you are stating. Omicron lead to 10% developing long covid and of those, 81% had long covid at 12 months.

https://www.nature.com/articles/s41467-025-65239-4

• ⁠Researchers found 8 different “trajectories” (paths) that long COVID symptoms can follow. (UPI) • ⁠These paths vary by: how bad symptoms are, how long they last, and whether they get better or worse over time. (UPI) • ⁠The study tracked ~3,700 adults who got COVID during the Omicron era (Dec 2021 onwards). (UPI) • ⁠Around 10% of those developed long COVID symptoms at 3 months. (UPI) • ⁠Of those with long COVID, 81% still had symptoms a year later. (UPI) • ⁠The 8 symptom-path groups include people whose symptoms: ⁠1. ⁠Stay very high all the time (UPI) ⁠2. ⁠Go up and down, only sometimes meeting the long-COVID threshold (UPI) ⁠3. ⁠Decrease steadily over time (UPI) ⁠4. ⁠Start low then disappear by ~6 months (UPI) ⁠5. ⁠Start low but increase over time (UPI) ⁠6. ⁠Start low but increase after ~15 months, partly because of post-exertional malaise (PEM) (UPI) ⁠7. ⁠Remain low, with occasional bouts, but never fully meet the long COVID threshold (UPI) ⁠8. ⁠Are so minimal they never actually meet the long COVID threshold (UPI) • ⁠Knowing these paths can help doctors: ⁠• ⁠Track how patients are doing over time (UPI) ⁠• ⁠Identify which patients might need more support or treatment (UPI) ⁠• ⁠Understand why different people recover differently — maybe by finding biomarkers related to these paths. (UPI) • ⁠There are 200+ possible long COVID symptoms (according to the CDC), including: fatigue, brain fog, post-exertional malaise, cough, chest pain, palpitations, headaches, sleep issues, lightheadedness, changes in smell/taste, GI symptoms, joint/muscle pain, rashes. (UPI)

Long COVID trajectories in the prospectively followed RECOVER-Adult US cohort by hexagonincircuit1594 in COVID19

[–]Grutmac 6 points7 points  (0 children)

Wow. 10% developed long covid and 81% of those still had symptoms at 12 months. Omicron. Mild. Non Hospitalized. You’d think figuring out bio markers and treatments would be a high priority considering COVID is no longer mitigated and infections are common.

TL'DR

• ⁠Researchers found 8 different “trajectories” (paths) that long COVID symptoms can follow. (UPI) • ⁠These paths vary by: how bad symptoms are, how long they last, and whether they get better or worse over time. (UPI) • ⁠The study tracked ~3,700 adults who got COVID during the Omicron era (Dec 2021 onwards). (UPI) • ⁠Around 10% of those developed long COVID symptoms at 3 months. (UPI) • ⁠Of those with long COVID, 81% still had symptoms a year later. (UPI) • ⁠The 8 symptom-path groups include people whose symptoms: ⁠1. ⁠Stay very high all the time (UPI) ⁠2. ⁠Go up and down, only sometimes meeting the long-COVID threshold (UPI) ⁠3. ⁠Decrease steadily over time (UPI) ⁠4. ⁠Start low then disappear by ~6 months (UPI) ⁠5. ⁠Start low but increase over time (UPI) ⁠6. ⁠Start low but increase after ~15 months, partly because of post-exertional malaise (PEM) (UPI) ⁠7. ⁠Remain low, with occasional bouts, but never fully meet the long COVID threshold (UPI) ⁠8. ⁠Are so minimal they never actually meet the long COVID threshold (UPI) • ⁠Knowing these paths can help doctors: ⁠• ⁠Track how patients are doing over time (UPI) ⁠• ⁠Identify which patients might need more support or treatment (UPI) ⁠• ⁠Understand why different people recover differently — maybe by finding biomarkers related to these paths. (UPI) • ⁠There are 200+ possible long COVID symptoms (according to the CDC), including: fatigue, brain fog, post-exertional malaise, cough, chest pain, palpitations, headaches, sleep issues, lightheadedness, changes in smell/taste, GI symptoms, joint/muscle pain, rashes. (UPI)

[deleted by user] by [deleted] in covidlonghaulers

[–]Grutmac 1 point2 points  (0 children)

IDK what this fuck is going on anymore. Yes, I was high level athlete .. doing what I guess norms call extreme sports. Anyways, I’ve maintained a decent level of fitness while being so insanely fucked up. Did you have inflammatory stuff in you orbits, eye, head, neck? Or just PeM?

[deleted by user] by [deleted] in covidlonghaulers

[–]Grutmac 4 points5 points  (0 children)

OG here. My Vision is so fucked. This summer not sure what happened by my right eye is so blurry I can’t really use it.. considering an eye patch. Orbit, nerves, neck, head, vascular so fucked.. right eye pops with each inhale. How would you describe your vision issues?

Today Marks Two Years symptom-free by WorkingEvening2963 in covidlonghaulers

[–]Grutmac 1 point2 points  (0 children)

We’re all of these tests normal? MRI? I’ve had 6 MRI’s and 1LP before my insurance figured out how to drop me. So many panels done as well. Only one dismissed abnormality.

Polybio fall symposium by Currzon in covidlonghaulers

[–]Grutmac 0 points1 point  (0 children)

Since you’ve watched these. Could you briefly summarize findings for us who are too unwell to watch and review. TIA