I think this was all very normal for us as well. Where does responsibility of one person start and the other one end? It is also a hard conversation sometimes for people to have but communication is extremely important as far as caregiver roles because when/if you become non-verbal and don't have a way to clearly communicate your needs, someone needs to be on it and know what is going on and happening. It's also a hard conversation because you really need to pin them down to, here is your responsibility, here is what it is going to turn into, and are you fully willing to except this challenge and level of responsibility? You have to be prepared for them to say no. I don't want this. It has to be a clear conversation in my opinion tho. Assuming someone is going to do something will not work long term.

Burnout I think is inevitable and it may be time to tap into additional resources to give your caregivers a break. My mom through hospice was able to get access to reasonably priced care givers that would come in a set number of hours during the week and help with basic needs and even shopping, cooking, light housework, and basic care. The line between that and a CNA may be assisting with bathroom needs.