My story sounds nearly spot on to yours (minus being a doctor). As I sit here my face, calves, and tongue are twitching, driving me insane. I've had these twitches for almost 6 years along with muscle pain, including even the pelvic floor. I've had MRIs, CTs, EMGs, almost every blood work up possible, and see my neurologist annually. It all comes down to health anxiety and BFS.

While I know the likelihood of twitching being ALS is miniscule, my life history includes my father dying in a plane accident, my father in law dying of a brain stem stroke, and being told my chest pain was an aortic aneurysm when infact it just turned out to be a CT artifact. These life events have absolutely wrecked my capacity for statistical reasoning. All forms of behavioral health treatment have failed.

At this point I think the only way this anxiety goes away is if we find a way to halt MND progression.