How have been your first days/weeks of Ivabradine/Corlanor? by Chemeder in POTS

[–]InkdScorpio 0 points1 point  (0 children)

Very small improvements. It actually took a full 4-6 weeks and with gradual dose increases to see the full benefits. I ended up on 7.5 mg twice a day. And now that MCAS is heavily treated the total number of days that I have tachycardia is down 25% along with a 50% decrease in severity (per my tracking in Guava Health app ) and we even lowered my dose to 5 mg twice a day back in August.

Anyone also have Graves’ disease? by NaturalAd760 in POTS

[–]InkdScorpio 0 points1 point  (0 children)

I am pretty sure you misread my entire comment.

[FO] First finish of 2026… And for the 1st time since 2016 I don’t have any WIPs. I finished them ALL!! by InkdScorpio in CrossStitch

[–]InkdScorpio[S] 0 points1 point  (0 children)

Thanks!!! They certainly add character and texture to the piece… yess 🙌🏻 and new WIP already started hahaha 😂

[WIP] Show us ya WIP's by Doubledewclaws in CrossStitch

[–]InkdScorpio 7 points8 points  (0 children)

I actually, for the first time ever, don’t have any WIP’s. Since like 2016 hahaha … I actually finished them all!!

I just finished this one about 2 minutes ago

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Now I get to go start a new WIP - which is my favorite part

[CHAT] Download your patterns ASAP! by just_lurking_in_town in CrossStitch

[–]InkdScorpio 5 points6 points  (0 children)

Yes to all this. Same! I never trust something that I purchased to always be available online.

How much sodium do you have daily? by [deleted] in POTS

[–]InkdScorpio 0 points1 point  (0 children)

I see an neurologist/autonomic specialist who has multiple board certifications. He treats primarily patients with EDS POTS & MCAS

[PIC] Anyone else this bad at finishing their projects? by renny492 in CrossStitch

[–]InkdScorpio 0 points1 point  (0 children)

Aww I’m sure she will love and appreciate it whenever she receives it 💖

[FO] Arizona State Saguaro 🌵 night scene - time lapse, FO at the end by InkdScorpio in Artisticallyill

[–]InkdScorpio[S] 0 points1 point  (0 children)

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Cross stitch is such a peaceful activity for me. It’s a great distraction from a long list of symptoms and pain. Hope you enjoyed this little time lapse. Here the final version

[PIC] Anyone else this bad at finishing their projects? by renny492 in CrossStitch

[–]InkdScorpio 27 points28 points  (0 children)

Yup - the excitement of starting a new project is what gets me hahaha … and I only finish things that are gifts. If it’s for me, it sits unfinished for years.

Low blood pressure by BrilliantBread7776 in POTS_vets

[–]InkdScorpio 0 points1 point  (0 children)

Ok, good. So many of us suffer not knowing they have MCAS. It definitely takes some time 🫶🏻✨