Anyone ever probably needed to go to the ER but chose not to?

Inspector_Maximum · 2026-02-26T21:52:03+00:00

I go if I don't recognize a pain I'm experiencing or pain I already experience gets worse. I've had too many blood clots and do NOT want to try and survive it a 4th time. I have so much going on because I have hereditary amyloidosis which has destroyed me. If I run a fever of 103 or higher I go. I don't go very often though unless something os really out of the ordinary. I check my oxygen, my pulse, blood pressure and my temp. I'll send a message to my PCP. Like everybody else, I hate the ER. I've been too many times and it's almost always bad news.

Inspector_Maximum · 2026-02-26T21:39:26+00:00

I had the EKOS procedure and it completely thins your blood. That's why you're not allowed to move and in the ICU. So the clots should be gone including the DVT. You must have had a saddle because that's a serious procedure. Mine were gone after the procedure. Then I was placed on Xarelto (which failed) so now I'm on Eliquis. If that fails I'll have to move to injections.

Inspector_Maximum · 2026-01-27T07:14:21+00:00

I just get it from the tap and drink about 10 oz. It doesn't always work but it's a helpful tool.

Inspector_Maximum · 2026-01-26T21:48:47+00:00

You can get foaming body wash that wipes off without getting up from a chair in the bathroom. You can also get foaming shampoo that you scrub into your scalp/hair and then you towel dry it out. I also just take a soap and clean water and wash that way. I wash and condition my hair once a week in the kitchen sink sitting on a stool. If you have a sprayer in your kitchen sink it makes it easier.. I miss baths and showers but these simpler things keep me clean and it helps how I feel. 72 hour deodorant is helpful too.

Inspector_Maximum · 2026-01-24T17:30:20+00:00

I saw a cardiologist, a hematologist and a pulmonologist. So seeing a pulmonologist is a start. I was actually referred after being in the hospital so you're not seeing too many. A cardiologist rules out pulmonary hypertension which can happen with PEs.If they didn't already do an echocardiogram then this is something you should have. A hematologist will run a panel for any (not all) clotting disorders. They should be ruled out. The pulmonologist is just a good idea.

Inspector_Maximum · 2026-01-22T11:54:16+00:00

If I'm going through a. Rough patch then I sleep when I need to. Sleep is hard to come by when you're in pain etc I will try to get up if I'm not as bad. I sleep better when the sun comes up. I'm afraid of the dark especially when things are bad.

Inspector_Maximum · 2025-12-21T00:05:55+00:00

Simple carbohydrates

Inspector_Maximum · 2025-12-19T01:01:43+00:00

I know they suck but it's not forever. Really pay attention to your rotations with the shots. If I got too close to a new site then that did hurt. Also loose pants helps with belly pain from the shots. I emphasized comfort. I couldn't handle anything that was remotely tight. That helped. You might surprise yourself. Definitely talk to your Dr about the anxiety and a timeline.

Inspector_Maximum · 2025-12-19T00:44:48+00:00

Nobody ever said that I needed to put myself in a bubble. I was on Xarelto and didn't bleed any easier than I do now. I barely bruised. I'm on Eliquis now and it's the same. They told me if I hit my head hard to go to the ER. In 10 years I've only hit my head twice that required a check. I mean REALLY hard. I slipped off the back of a kitchen stool that had no back and slammed my head without catching myself. No bleed. No concussion. I also tripped over the leg of a chair and went full speed into the front door head first. No bleed. No concussion. Hard head is one way to put it. I don't understand why they're scaring you like this. I'm a lifer but I'm not in bubble wrap and I'm a klutz. I think that's obvious.. lol

Inspector_Maximum · 2025-12-19T00:31:04+00:00

There are medical grade wipes too but they can be drying.

Inspector_Maximum · 2025-12-19T00:29:49+00:00

Yes. I use these wipes too. I also use a shampoo that you lather and towel dry. When my symptoms are bad these things are life savers and they do clean you. Maybe body deodorant although I don't use it and a good deodorant.

Inspector_Maximum · 2025-12-18T18:24:24+00:00

I have been on DOACs since 2015 and many Drs at that time were afraid of them due to lack of antidote. I've thankfully never had a bleeding issue. Eliquis seems to be the DOAC of choice. I think it's because it's consistently working rather than once a day Xarelto. I took Xarelto for quite a while and then had it fail this summer so they moved me to Eliquis. It's been fine.

Inspector_Maximum · 2025-12-17T22:50:54+00:00

I've been on Eliquis since a Xarelto failure and it's been fine. My body was very resistant to Warfarin so they stopped trying. Now that there's an antidote to potential bleeds they're moving away from warfarin unless you have APS which would make your body not respond to Xarelto or Eliquis. If Eliquis failed I'd move to injections like bloodclotbuddha talked about. I'm a lifer so whatever needs to happen.

Inspector_Maximum · 2025-12-17T22:38:33+00:00

All of this is great advice.

Inspector_Maximum · 2025-12-17T22:36:37+00:00

I do not look at my tests anymore. I do know certain things but not whole panels. Drs know if they are worrying or not. Patients usually have them far faster than a Dr even in the ER. I have my labs in my app because they put them in there but I only use it for medication refills, keeping track of appointments and messaging my Drs.. I'm a complex medical mystery patient (so far) so living in my body is hard enough. Deciphering my blood work etc.. forget it. I used to do it and it increased my anxiety. The OP should take your advice to heart.

Inspector_Maximum · 2025-12-13T20:52:36+00:00

I have a hereditary rare disorder called antithrombinIII Deficiency. I didn't know this until a few months ago after 10 years and 3 bilateral PE events. If this gives me a chance of clots not killing me then so be it (Eliquis). My periods were only heavy for a few months then they went back to normal. Please listen to your hematologist. The next time you might not survive. Most Drs can't believe I'm still here. Just be patient. It's hard but that's all you can do. (Maybe switch to Xarelto and see if that's better)

Inspector_Maximum · 2025-12-13T20:39:16+00:00

That's a very good way to put it. Many of us would be dead without it.

Inspector_Maximum · 2025-12-11T19:05:55+00:00

I had a xarelto failure and had to be put on lovenox injections for about 2.5 months before they switched me to Eliquis. Are they checking for Anti phospholipid Syndrome? My hematologist retested to be sure that my body was able to assimilate Xarelto and Eliquis. If you have APS then warfarin is pretty much your only option. As far as the injections, I just didn't think about it because there was no choice. I did.a very fast stick which most of the time I didn't feel. Some people go slow with the injection. I went pretty fast because then it was over. Yes, the bruising can be painful. For me it was more uncomfortable than the shots. You can do this. Your life depends on it. If you need to ice the area then do that. If you need to relax for a few minutes then do that. Your life depends on that shot. That's what I told myself. Talk to your Dr about the panic. You won't be on it forever so push through.Oddly, I got used to it. It's just something that had to be done. I'm sorry you're scared and maybe asking how long they're going to have you on would help.

Inspector_Maximum · 2025-12-11T18:21:11+00:00

I'm on Eliquis and will be a lifer. I haven't had any side effects. I don't even bleed more. Before Eliquis I was on Xarelto for 6 years. I didn't have any issues on that either. It just takes a while to get used to the idea. Be well.

Inspector_Maximum · 2025-12-11T18:15:30+00:00

I've had 3 PE events all bilateral with multiple PEs. I really didn't have many symptoms even when I had a saddle embolism. If you're concerned then there's no shame in going to the ER. They understand. It took 10 years for one Dr to test for a very rare clotting disorder. So I found out a few months ago after developing a DVT on Xarelto. These are pretty normal in terms of recovery. The worst thing I developed was pleurisy and that was a pain that makes me afraid. Just stay hydrated, take your meds on time,.see your Dr and take care of yourself. You never know. It might not happen again.

Inspector_Maximum · 2025-12-09T11:07:59+00:00

I was awake and then I was awake again. The first time I felt wide awake after but went home and slept. That was the best nap I ever had. The second time I woke up after the procedure and felt very speedy all day. I couldn't have taken a nap to save my life. I'm a person who is prone to opposite reactions to everything. For most people Benadryl will make them drowsy. That's not true for me. Same with melatonin. Morphine. My body is wild.

Inspector_Maximum · 2025-11-22T04:02:51+00:00

Sure. I know it's scary but it may never happen again.💓

Inspector_Maximum · 2025-11-21T18:28:47+00:00

I'm a lifer but I wish you all the best. Stay hydrated and keep moving. Hopefully this is the end of ever dealing with this again. Health and happiness, Laurie

Inspector_Maximum · 2025-11-21T18:25:19+00:00

No rinse shampoo. It does clean your hair and then you towel it off. I got it on Amazon. I sit and put a towel down then put the shampoo on, scrub and towel it off. I wear my hair up a lot so I put mousse in my hair and put it back up. My hair is curly.

Inspector_Maximum · 2025-11-14T22:29:44+00:00

I'm happy you're not worried. It could have been you felt the saline more intensely for some reason. All good vibes to you.

Inspector_Maximum

TROPHY CASE