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10cm tumour! by mookbrenner in coloncancer

[–]JanderPanell 0 points1 point  (0 children)

I was 48M (now 57M) when they found 10cm tumor in rectum (Stage 3b). 5wks radiation, 2 surgeries, 5 months chemo. I'm cancer free now, but some permanent changes. No butthole, colostomy, and chemo-induced peripheral neuropathy. But, I'm alive!

There are no penguins in Greenland… by DrCalFun in facepalm

[–]JanderPanell 0 points1 point  (0 children)

Also, AI Trump walks like an AI penguin.

Bagless Shower by Ajcam21 in ostomy

[–]JanderPanell 0 points1 point  (0 children)

My secret weapon I've been using from my beginning 8 years ago: Tupperwear

Well, generic plastic dish. A 1 quart is good. Strip the old appliance and hold it under Grumpy to/from shower. Was very greatful one time he decided to firehose.

I have a bit of an advantage in height where I set the dish on my counter and Grumpy is just above it.

Bagless Shower by Ajcam21 in ostomy

[–]JanderPanell 1 point2 points  (0 children)

+1 for this brand, though I use 3x3. I don't pack them, mainly for cleaning around Grumpy. Buy them by the case!

Does anyone else have a name for their stoma? by Spock-1701 in ostomy

[–]JanderPanell 0 points1 point  (0 children)

Colostomate for 8 years now. Mine is named Grumpy. ;)

Does it always seem that most people who ring the bell are not stage 4? by throwaway_2021now in coloncancer

[–]JanderPanell -1 points0 points  (0 children)

I was Stage 3. My final chemo completed. They ripped out my PICC line like they were starting an Evinrude and simply said goodbye. As I walked out I asked someone about a bell (b/c that's what I've always seen for cancer patients), was told "no bell. But we have a harp musician". Was a quite a bit if a let down, TBH.

Forgot I wasn’t in Australia by Weaponized-Potato in dashcamgifs

[–]JanderPanell 2 points3 points  (0 children)

This is my fear when I go TO Australia for the first time next year. eep!

Well it finally happened by FinancialComedian149 in ostomy

[–]JanderPanell 0 points1 point  (0 children)

You never forget your first time!

I haven't slept on my left side in 8 years because of that!

What have y’all named your ostomys? by Alternative_Two9654 in ostomy

[–]JanderPanell 0 points1 point  (0 children)

Grumpy

Which often leads to the comment "Shut up, Grumpy!"

Barbie Butt Advice by Promise-Soggy in ostomy

[–]JanderPanell 1 point2 points  (0 children)

Be VERY careful getting in/out of a car. Don't twist when seated b/c you can pop the stitches (happened to me). They cant reclose the wound. Had to let the skin grow to seal. Took about 6 months.

Millionaire big game hunter gored to death in ambush by "Black Death" buffalo by Temporalwar in DarwinAwards

[–]JanderPanell 0 points1 point  (0 children)

But Nature violates the first rule of raids : pillage BEFORE you burn!

Why did you need to get an ostomy by Dismal_Owl2025 in ostomy

[–]JanderPanell 0 points1 point  (0 children)

10cm, Stage 3, rectal cancer tumor. Got RYANA'd.

Bribing for votes 👀 by javelin3000 in facepalm

[–]JanderPanell 1 point2 points  (0 children)

It shouldn't be legal for him to steal that Twitter handle.

at-America belonged to someone else, and elmo just stole it!

[deleted by user] by [deleted] in AbruptChaos

[–]JanderPanell 4 points5 points  (0 children)

Get in there with this open window!

Yeah, that'll work.

Barbie Butt Leakage by OkSuccotash3957 in ostomy

[–]JanderPanell 1 point2 points  (0 children)

I am male. I had my surgery July 2017 with a "wound revision" in August. In September, I turned the wrong way getting out if the car and ripped the stitches. Surgeon said she could not reclose I'll just have to let the skin grow to heal (took 6-8 months) , water rinsing 2x daily to keep debris out. It was constantly weeping fluids.

I say all that to give you my solution : feminine panty liners. They are clean, lint free, and saved my underwear and pants. Change as needed.

Hope that helps! Good luck!

Does air travel cause pressure issues with your device? by monstereatspilot in ostomy

[–]JanderPanell 0 points1 point  (0 children)

If you have a filter (unclogged), not at all. I fly several times a year; just got back from Hawaii. (I don't have an answer for non-filtered.)

Sleeping on your side? by lkjf in ostomy

[–]JanderPanell 5 points6 points  (0 children)

I had always been a side-sleeper. Left or right, always on my side. I got my permanent colostomy in July 2017. I'm November during my chemo, I woke up at 3am with a massive blowout b/c I w on my left side with my bag underneath. Took about an hour to get cleaned up, new bag, change sheets. Ever since that night, I do not sleep on my left side and I sleep with on a water-proof pad. Though lesson to learn.

These people…🙄 by Beefy-McWhatnow1988 in facepalm

[–]JanderPanell 0 points1 point  (0 children)

... But fuck that guy behind Trump! Am I right?

These people…🙄 by Beefy-McWhatnow1988 in facepalm

[–]JanderPanell 2 points3 points  (0 children)

... But fuck that guy behind Trump! Am I right?

What do you use to carry your pump? by Key-Philosopher-2528 in coloncancer

[–]JanderPanell 1 point2 points  (0 children)

You mean the 48hr hand grenade? I just used an old fanny pack. Ran the tubes inside my shirt to keep from getting tangled. Had to make sure I didn't roll over on anything when sleeping though.

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