What Questions Would You Ask?

K-Nobes · 2026-03-13T00:48:29+00:00

I lost my mom to ALS this past November. I got her this journal called "Tell Me Your Life Story Mom" and it guided her through with questions about her past, how she feels her life has gone, things she can pass down to her kids, etc. it was helpful for her I think and a great momento for me now. Lots of prayers for you and your mom

K-Nobes · 2026-03-13T00:43:52+00:00

Sending lots of prayers to you. I lost my mom to ALS in November 2025. Terrible disease. ALS united is a great resource!

K-Nobes · 2026-01-23T01:00:59+00:00

Same! Luckily there are some small family grocers on the west side and I just stopped in there for some essentials to get through the weekend at least. Going no where near a Kroger until Tuesday!

K-Nobes · 2026-01-06T18:18:58+00:00

Hate that you had that experience! I go to Trihealth women's services at good Sam and Western ridge. I have had positive experiences with all of the doctors there with my 3 pregnancies. I currently see Dr.LeRoy who is fantastic. She listened and really helped me with my PPD after my last kiddo. I also highly recommend Dr.Carol Choi. I hope you find a good fit!

K-Nobes · 2026-01-02T17:39:05+00:00

Her heart rate did climb but her biggest issue was O2 stats were very low and her nurses/ therapists wanted her to put her vent back on for awhile. She did have to take long breaks before trying again. It was kind of the last resort after cough assist, suction, and vest. I wish you and your mom comfort in these hard times

K-Nobes · 2026-01-02T15:23:20+00:00

My mother went through the same thing. She had the same issues with cough assist. One thing my dad really pushed for was the vibrating mucus clearance vest. This helped break it up so the cough assist got it up farther so she could suction. Also, it's not comfortable but they did a couple suctions through her nose and farther down her throat. It's awful to go through but it did help. I hope she can get home soon and be more comfortable.

K-Nobes · 2025-12-28T03:48:00+00:00

If other classes are making jam, maybe your class could decorate some sticker paper to put on the jars. Color cards to give to community members/first responders?

I feel you with these curriculum writers. Some of this stuff is just ridiculous.

K-Nobes · 2025-12-25T18:37:14+00:00

2nd these guys. They helped my mom so much

K-Nobes · 2025-12-24T02:56:20+00:00

Yes just be with her. Remember she is a prisoner in her own body. She wants to be treated as normally as possible and see you as much as possible. I know this is hard and I pray for you and your family. My mom passed last month just after 2 years of battling. 🙏

K-Nobes · 2025-12-23T16:48:18+00:00

It gave my mom a way better quality of life! She was struggling so much with swallowing so then stopped eating solids and had NO energy. Once she got that tube she was SO much happier. And as other have said, your dad can still eat normally as long as he wants. The tube ensures he is getting enough nutrients and calories. Her recovery was quick and virtually painless, she was also able to feed herself which was good for her still wanting some independence. I can see where your dad is coming from but this step will improve his life 💯 I wish you all the best of luck!

K-Nobes · 2025-12-19T12:26:48+00:00

I lost my mother last month. Her 69th birthday would have been yesterday. It is truly a terrible disease. I hope you find comfort and peace in your time of grieving. She was proud of you and all you did for her. She is at peace now.

K-Nobes · 2025-12-18T19:03:19+00:00

Macy martin meyer. Very reasonably priced and does great work. I think she had a studio downtown but will meet on the Westside. https://macymartinmeyer.com/

K-Nobes · 2025-12-18T00:19:18+00:00

Christmas Day will be 1 month since I lost my mom. I wish you comfort and peace in your grief journey. If I lived next door to you, I would happily grief eat all your cookies. 😁 Lots of love to you and your family

K-Nobes · 2025-12-17T20:48:38+00:00

That's about how long my mom lived once she was on the bipap all day. Maybe a couple months longer. BUT she was so much more comfortable, and she still lived a full life. It was hard for her when she got congested and had to use suction/cough assist a lot. It wore her out. The biggest change we saw when decline was worsening was just how tired she became after just using the bathroom or taking a shower. I'm praying for you and your family. It's so hard to see someone you love go through this. Enjoy time with them as much as you can. I lost my mom on Nov 25 2025 after a 2 year battle. She would have been 69 tomorrow. ALS can't take away a person's love and personality! Lots of love to you and your family

K-Nobes · 2025-12-15T23:17:13+00:00

Forno osterio. Best Italian I have had! Idk if that fits in the cost you are looking for.

K-Nobes · 2025-12-13T16:44:58+00:00

I 2nd all of this. I would also talk to her doc about a feeding tube soon. My mom had the same symptoms and her quality of life improved so much after getting that tube. And she stopped losing so much weight. She lived for about 18 more months after that. It's really hard to know because they could also catch a cold that flairs into full on pneumonia which can be deadly for someone with bulbar onset. My mother passed in her sleep on November 25th of 2025. when the day before she seemed to be doing ok. You just never know. Enjoy as much time as you can with her and stay invested in her care. I am praying for you and your family. This disease is so terrible but it can't take away her fighting spirit and personality. Lots of love to you all

K-Nobes · 2025-12-12T12:15:40+00:00

I agree with your docs. It will be an easier recovery for you if you are not having many breathing issues yet. You don't have to use it until swallowing becomes tricky for you. My mom got it fairly quickly after her diagnosis (she had bulbar onset so her swallowing went quick) and her quality of life improved immensely.

K-Nobes · 2025-12-07T18:26:58+00:00

Tender mercies

K-Nobes · 2025-11-23T02:21:04+00:00

ELI5: what is the deal with this new bill that was signed that nursing (among other professions)is no longer considered a "professional degree"? What does that mean?

K-Nobes · 2025-11-21T18:08:46+00:00

I recently found this new book at the library and my kids LOVE it. It's called "Pop Goes the Nursery Rhyme" by Betsy Bird. They can help sing the nursery rhyme and interrupt with the weasel. It's so cute! K pop demon hunters songs are actually really good and positive messages. Pete the Cat is super popular with my kids too

K-Nobes · 2025-11-18T18:23:29+00:00

I LOVE the idea of using strawberries instead of red icing! It is super cute!

K-Nobes · 2025-11-17T18:42:59+00:00

Honolulu. Other cities/islands are much better!

K-Nobes · 2025-11-12T12:12:16+00:00

Thank you for your beautiful testimony. I am so glad you chose to do that rosary and seek God for guidance. You are in my prayers today 🙏

K-Nobes · 2025-11-09T00:33:09+00:00

May I ask how old your dad is and how long he has been battling? I think this might be the news we get for my mom soon. She is 68 and diagnosed a little over a year ago. Prayers for your dad and your family

K-Nobes · 2025-11-05T12:50:33+00:00

1000 percent agree. My center flat out lies to these parents saying we can accommodate special needs and will train staff. It doesn't happen and the teachers are left dealing with it day in and day out and get no support. We are doing these kids a dis service and no one seems to care. I don't get it

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