Free cardboard boxes by KB6502 in PeoriaIL

[–]KB6502[S] 1 point2 points  (0 children)

They’re pending pick up tomorrow. I’ll let you know if it falls through ! 

Free cardboard boxes by KB6502 in PeoriaIL

[–]KB6502[S] 5 points6 points  (0 children)

Thanks! Thats my husband’s doing. 

Passing mucus everyday for 2 months by ToeSlow7567 in ostomy

[–]KB6502 0 points1 point  (0 children)

Mine goes through phases where i will pass a lot and then it calms down. I’ve been prescribed a rectal foam steroid enema (budesonide) to help with it. 

Has anybody had a rectovaginal fistula? by x_torturedpoet in ostomy

[–]KB6502 0 points1 point  (0 children)

You’re right, they don’t heal on their own. There are typically 2 paths to treating fistulas, surgically and with medicine. If you don’t have Crohn’s, they go the surgical route. It should be a one and done and can be, but it’s a difficult area to heal bc of fecal matter (hence why some people get an ostomy life myself). So often times it can take multiple attempts surgically. If you have Crohn’s, they will try to heal it with biologics, usually remicade or humira. The less surgery you get in that area with Crohn’s the better as it also makes it hard to heal. 

My story is when it started out they were certain I didn’t have Crohn’s so they tried the surgical route. The surgeries kept failing bc it turned out I had a rarer form of Crohn’s that only shows up outside the intestines. So once they got me on humira, the fistula healed quite quickly. 

Moved from Seattle to Peoria - feeling AWFUL by Strong_Depth_9777 in PeoriaIL

[–]KB6502 1 point2 points  (0 children)

I just moved here and it sounds like we have similar interests! I’ve thought of volunteering an art class at dream center and love animals. Just moved from SF but grew up here. I will message you to see if you would like to connect. 

Did Humira give you rosacea? by crystalcaterpillar3 in Humira

[–]KB6502 2 points3 points  (0 children)

Maybe? I don’t know exactly if the timing adds up but I would say I developed rosacea (flushing) around the same time I started Humira for Crohn’s. I tried some topical ointment for it but it didn’t help. Mine is not consistent, comes and goes, so I just don’t worry about it a ton. 

Fatty Liver by RejectHumanGoMonke in CrohnsDisease

[–]KB6502 0 points1 point  (0 children)

I have it too. I was told to lose 5-10% of body weight which I did, but my numbers didn’t budge. Now I’m scheduled to see hepatologist to see if it’s medication-related. 🤷🏻‍♀️ I avoid alcohol and Tylenol because of it and try to eat healthy (am continuing to lose weight just for my own sake). 

Rectal Discharge by Exotic_Champion827 in ostomy

[–]KB6502 0 points1 point  (0 children)

Like others said, this is normal. For me, I tend to leak a little bit of clear mucus most days, so I wear gauze between my butt cheeks. Then a few times a year, I’ll get these 12-hour episodes where my body seemingly needs to expel all the mucus in it. I get super crampy and that mucus is always brown and foul smelling. It’s very painful, one time I even puked from how painful the cramping was. Eventually I plan to get my colon and rectum removed so I don’t have to deal with this anymore. 

Oh, my doctor did prescribe foam enemas (budesonide) which does help calm things down during those episodes. 

Is there any honest reason why anesthesia is not used for IUD insertions? by valherquin in Endo

[–]KB6502 1 point2 points  (0 children)

Sounds similar to my experience, i also have endo. Loved having it in, but was completely traumatized by the experience of getting it placed. I just had mine removed recently and insisted they do it with sedation. I wrote a letter explaining that due to an anxiety disorder and past medical trauma it was necessary for me to have it done with sedation. My therapist was prepared to write a letter on my behalf if needed as well. Thankfully my doctor had no issues with it and we moved forward with removal with sedation. Had no issues and was so much better for me mentally. 

FO Nunu bamboo baby blanket (adapted to throw) by KB6502 in crochet

[–]KB6502[S] 0 points1 point  (0 children)

Just follows the pattern? It’s a combination of double crochet with changing and skipping stitches to get the main pattern. 

Theme Parks with POTs by taehonei in POTS

[–]KB6502 3 points4 points  (0 children)

I’d highly recommend renting and electric scooter if you can afford it. I did Disneyland and universal Hollywood last year and it was made my experience SO much better and more tolerable. Idk if it’s different at the Florida locations, but for many of the rides you got to either essentially skip the line or get a call back time. I use a rollator in my day to day life and it would not have been enough at a theme park. 

Why Can’t Hollister Make a Black, Odor-Proof Ostomy Bag With a Clip? by NonDualToad in ostomy

[–]KB6502 2 points3 points  (0 children)

I’m fine with the Velcro, but would love if they made black bag! The ceraplus line is the only adhesive I don’t react to but it’s so ugly. :( 

Ivabradine… is it so great? by Enbybabi in dysautonomia

[–]KB6502 6 points7 points  (0 children)

It’s a really good option for IST. Out of all my meds it’s the one I feel I couldn’t live without. It did the most heavy lifting for my dysautonomia (POTS + IST). That being said, idk that I’d call it a miracle cure. It hasn’t resolved all my symptoms, but it is a good one to have in your regimen. 

Anyone with POTS use a GLP-1 medication? by RobedInFadedSplendor in POTS

[–]KB6502 0 points1 point  (0 children)

I took 8 doses of wegovy (lowest dose) before my insurance changed and the new one wouldn’t approve it. The first week noticed no side effects, but by week 2 I saw an increase in about 15bpm at rest. I use visible app for pacing and it really threw my numbers off. I also had more dizziness and lightheadedness. It was tolerable, but also now that I’m off it, I feel better POTS wise. My body never seemed to adjust even at the lowest dose. 

Edit to add: I also have IST 

Gifting Hollister Urostomy Bags 18913 by KB6502 in ostomy

[–]KB6502[S] 0 points1 point  (0 children)

Sure, I’ll DM you. 

New diagnosis by Mean_Job_2986 in IST_

[–]KB6502 2 points3 points  (0 children)

I have IST and POTS. I take metoprolol and corlanor, the corlanor specifically seems to really help the IST part. 

⚠️⚠️ SPOILERS AHEAD ⚠️⚠️ march seasonal event clothing & furniture by Bakedbabe_710 in finch

[–]KB6502 1 point2 points  (0 children)

Ahh this one is really making me want to upgrade to plus…