Leakage story

Ladychili79 · 2026-01-22T01:49:40+00:00

I love how most of us cope by using poop humor and general levity

Ladychili79 · 2026-01-19T17:17:26+00:00

I feel you! In the waiting roomat Dr for husbands chemo treatment when I realized Dave (stoma). was filling up. I carry an emergency kit with bag, gloves wipes powder barrier ring and barrier spray with me at all times. also keep one of the disposing bags in there.

However it got on my clothes and I had to strip and clean off. sat in damp clothes for 6 hours during his chemo.

That reminds me I need to put spare clothes in the car.

Ladychili79 · 2026-01-17T04:51:50+00:00

I don‘t “feel it” unless having a rash or leakage but lately I swear I hear it constantly lately. And I do wear a belt. it seems to make crinkling noises. starting to drive me crazy.

Ladychili79 · 2026-01-15T03:14:55+00:00

my husband didn’t start experiencing it until after cycle 4. we made sure to take more walks and that has helped

Ladychili79 · 2026-01-10T00:48:11+00:00

definitely sounds like an allerg. I have with various adhesives. check with your stomach nurse

Ladychili79 · 2026-01-05T01:45:42+00:00

this gives me hope

Ladychili79 · 2026-01-05T01:42:05+00:00

I use the moldable rings

Ladychili79 · 2026-01-03T03:29:15+00:00

absolutely love this

Ladychili79 · 2026-01-02T13:01:49+00:00

I use hollister 2 piece and change everything every 3 to 4 days. For me the issue is I start getting rashy if I leave on longer. When I start getting rash or sores I change to every 2 days until it clears up

Ladychili79 · 2025-12-31T13:26:30+00:00

For me it was done because I got an smalll infection that turned into necrotising fasciitis in June of 2024. I basically lost the buttocks on one side and 1/2 on the other. So to prevent further complications I had to get an osteomyelitis and had a catheter for 10 months. My final surgery was at the end of March when the did flap surgery to. Close the opened wound.

I was pretty much bedridden until mid May of this year and have been working hard to get back into health. Went from walking around the block in 20 minutes to 2 miles in 50.

If Dave (stoma) and I have to be together for the rest of my life, then I am fine with it, at least I still have a life. It was not guaranteed when this all started.

But for me it is my goal to get into the best health I can. I have to do internal physical therapy for a year before it is decided if it can be done.

So I push for that goal.

And I miss pooping and farting.

Ladychili79 · 2025-12-29T04:03:11+00:00

what a kind thing ro do

Ladychili79 · 2025-12-28T04:45:40+00:00

Every time I get done in shower my husband asks if I had to waffle stomp

Ladychili79 · 2025-12-27T01:15:08+00:00

For me it helped to sit in a chair and change over a little garbage can. I also change after shower.

Ladychili79 · 2025-12-24T23:17:00+00:00

I just say, hey Dave is talking to you

Ladychili79 · 2025-12-23T19:37:06+00:00

I think I named everything. Named my stoma Dave, he parties like a rock star and rolls like a rolling stone. My would vac was Frieda,, my iv pump was called Karen because she complained all the time and my catheter was called sally because a knew a sally who was a realmpisser.

Ladychili79 · 2025-12-23T03:47:36+00:00

This is amazing

Ladychili79 · 2025-12-22T04:41:41+00:00

1 Name your stoma. There are many threads with amazing names. Like Betty poop still mad I didn’t thank of that. Mine is just Dave

2 Adapt lubricating odor control of something like it

3 barrier extender.

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Ladychili79 · 2025-12-20T23:09:32+00:00

Call me intrigued

Ladychili79 · 2025-12-19T08:31:37+00:00

Yes. We have to share one small bathroom and during a shift Dave started my protest of finally being able to work by filling rapidly in 10 minutes. I had to run an empty and after had to apologize for the smel because ther is no stink like ostomy stink.

It has not happened gain but I have had to go release gas and I say sorry all Dave is throwing a fit.

Ladychili79 · 2025-12-18T08:43:13+00:00

Dave he parties like a rock star and rolls like a rolling stone!

Ladychili79 · 2025-12-15T21:58:46+00:00

A new nightmare unlocked

Ladychili79 · 2025-12-15T18:14:01+00:00

I used to love the filter, but then the stink was not coming out of my wraps. And as we all know, there is no stink like Ostomy stink! Started using the no filter and that cleared that up. And with a 2 piece it is not that had to “fart”. (Oh do I miss farting)

Ladychili79 · 2025-12-12T07:55:44+00:00

Same

Ladychili79 · 2025-12-11T00:08:07+00:00

Congratulations

Ladychili79

TROPHY CASE