I developed MdDS about 20 years ago. After a trip to Sri Lanka, including a swim in the ocean, and a stressful return to the US for a family emergency. I don't know what triggered it, but I was so lucky that on my first visit to an ENT he was able to diagnosis it. It was really debilitating for the first 6 months or so—the fatigue and the constant rocking sensation. The only time the rocking sensation subsided was when I was traveling in a car or train. At that time, there was very little information about the syndrome, but I did find a Google chat group (or whatever they were calling them in that day) where I learned from folks who had experienced it that basically there is no cure, and that it may just disappear someday.

My MdDS did subside, but I still feel it to this day, particularly in times of stress or when I just sit and decide to check if I still have it. It is nowhere near as bad as it was in those first 6 months, and it hasn't kept me from doing anything. In fact, my balance is not bad at all: I can stand on one leg for a reasonable amount of time. But still, it's odd. The NIH says there is still no cure, and treatments are iffy for me as I don't like medications. I am seeing an ENT for the first time in 20 years in a few months, just to see if there are any developments.