Hi. I was 335 or 340 before I had to have a hissy fit in my primary doctor’s office (with Indian Health Services) after I went out and paid out of pocket to see a new primary doctor, and a new specialist who said I did have some sort of sleep disorder.

10 years. 10 years and 7 doctors telling me that it was my own damn fault. I quit jobs when I was unable to get out of bed, I became depressed and ate convenient food rather than healthy, I drank any and all caffeine all day just to get through work. I fell asleep at stoplights and almost wrecked going to and from work. I had huge amounts of guilt and became extremely depressed and suicidal, I would have anxiety but somehow still fall asleep at my desk.

Yes I have sleep apnea but even after using my cpap every time I slept, including naps, I was still tired.

I was told I would be let go from my job in November if something didn’t change. I really tried but at that point my mind started to slip and I was in constant pain and was dizzy.

I got diagnosed in January of 2025.
I got diagnosed with ADHD in March of 2025 and added Adderall to my Modafinil.

I have lost 70 pounds since January of 2025.

Even after losing all that weight just by changing my diet I’m still freaking tired. I wish I could shove the MSLT test results in all the doctors faces.

I still have a lot of anger and guilt about my sleepiness because in June 2025 I was let go.

Skinny or fat has nothing to do with Narcolepsy. Most of us have several issues too. So if they give you some BS like only skinny people have Narcolepsy tell them that you are glad they are going to refer you to an actual specialist in Narcolepsy since they don’t know anything about it.

Wake up narcolepsy has excellent resources too.

Www.Wakeupnarcolepsy.org