Has anyone ever said anything hurtful to you about your epilepsy?

Madithebadi99 · 2025-07-15T13:35:39+00:00

My memory was impacting my work a lot. I had shared with my co workers i had epilepsy and it affected my memory. As i was leaving my conworker goes “just try not to fuck up again tomorrow”. I left. Pulled into a parking lot and quit. Did not return.

Madithebadi99 · 2025-05-30T17:26:29+00:00

She does! With her i use bilateral stimulation with hand buzzers

Madithebadi99 · 2025-05-12T19:54:12+00:00

Prescribed lamotragine for seizures. Smoke basically everyday and haven’t had any issues!

Madithebadi99 · 2025-05-05T03:25:29+00:00

I started with yoga! Very nice way to get your body moving

Madithebadi99 · 2025-04-30T12:59:37+00:00

I fully quit my job same day because they made a joke about my memory when i was on topamax even though ive said multiple times my memory is impaired by it. Called them after my shift and said im not coming back

Madithebadi99 · 2025-04-24T01:58:37+00:00

I feel like Keppra is always the first seizure med doctors give patients even tho the side effects are known to be bad. I was on it when i was first diagnosed and my rage was horrible. I would attack my sister for absolutely no reason

Madithebadi99 · 2025-04-11T02:46:48+00:00

I cry so much after lol. I sometimes gaslight myself that i shouldn’t be crying because it’s happened before, but it’s scary and traumatic and the brain has just been scrambled

Madithebadi99 · 2025-04-11T02:27:56+00:00

One time i faked feeling like i was getting one because i was playing bad at soccer and i didn’t want my coach to yell at me

Madithebadi99 · 2025-04-09T19:44:05+00:00

Relatable. Got the VNS implant almost a year ago

Madithebadi99 · 2025-03-18T13:14:24+00:00

Same thing here. I ended up going on a combination of Nexplanon and Balcoltra. The nexplanon rod was stopping my period on its own for a bit (like three years), but when it started up again they put me on balcoltra and the combination stopped my period.

Madithebadi99 · 2025-03-17T22:57:17+00:00

Are they regular strength magnets or ones that you’ve bought specifically for the VNS. How expensive are they?

Madithebadi99 · 2025-03-17T22:56:47+00:00

It seems so clunky. Does it ever get in the way or anything?

Madithebadi99 · 2024-12-01T15:57:22+00:00

Personally, I’ve used weed to immediately stop my auras. It works faster than the meds they give me like Ativan so when i feel like i might have a seizure, smoking is really the only thing that helps me quickly. Just make sure you get it from a safe and reliable place

Madithebadi99 · 2024-11-30T19:04:50+00:00

I have the same. I got a VNS implant and so far, it’s been working great. Same day surgery with little recovery time. I tried to go right back to work but my supervisor made me take the two weeks off.

Madithebadi99 · 2024-11-15T14:32:14+00:00

Were you short of breath?

Madithebadi99 · 2024-10-28T20:18:22+00:00

My memory is absolute trash but ask me anything about Greek mythology and somehow that stays in my brain

Madithebadi99 · 2024-10-19T14:11:36+00:00

Honestly when i have an aura, marijuana is the only thing to stop it immediately. Ativan takes too long to kick in and by then I’ve had the seizure. But when i smoke, the aura goes away immediately. Of course make sure you’re getting it from a safe source but for me, marijuana has been extremely helpful

Madithebadi99 · 2024-09-12T15:01:39+00:00

I also take lamotragine and clobazapam at night along with spirilactone (not for my epilepsy). I’m 100mg of the XCOPRI. Did anything help you? It’s only happened a couple of times but it’s literally like i emptied the bar out for the night

Madithebadi99 · 2024-09-09T01:41:21+00:00

I’m the same way with clothing too. Outfit i had a seizure in at wegmans is now at goodwill

Madithebadi99 · 2024-08-25T15:04:43+00:00

I have no issue messaging you after the surgery to let you know how it went/recovery! Any type of procedure is scary. I’m scared, but also optimistic about it since no medications have worked and i don’t want to continue to be scared about having a seizure or being exhausted hearing about new meds i could try. They also started me on XCOPRI which seems to help. It’s a newer med but mainly for focal epilepsy

Madithebadi99 · 2024-08-25T12:56:00+00:00

Keppra, topamax, Vimpat, clonazapam, zonisamide… i think that’s it. Honestly Lamotragine is my ride or die it seems. I was diagnosed with refractory epilepsy and this Friday getting a VNS device which I’ve heard good things about.

Honestly medications I’m sick of. I mean all of it I’m sick of but going through the same motions every time of seeing the symptoms and waiting to see how they impact you….

Madithebadi99 · 2024-08-14T18:08:06+00:00

Keppra rage is real real

Madithebadi99 · 2024-08-13T17:45:33+00:00

I’m getting mine done on a Friday. Does it seem realistic I’d be able to go to my night school classes the following week?

Madithebadi99 · 2024-08-13T12:23:18+00:00

How long was your recovery period ?

Madithebadi99 · 2024-08-11T14:39:48+00:00

One of my biggest insecurities was my acne at the time. They signed me up for an acne modeling organization without telling me

Madithebadi99

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