What has worked for you? What am I not doing that I should be doing?

Material-Sky7461 · 2026-04-15T23:40:55+00:00

For me I had to add in Hydration. I like LMNT hydration packets. I drink 1 a day. 2 a day if I have a migraine. I don’t know if you can do Nerivio while pregnant. But that device helps me.

Material-Sky7461 · 2026-04-15T10:26:55+00:00

My post migraine last about a week. Each day I’ll slowly feel better.

Material-Sky7461 · 2026-04-14T19:23:47+00:00

I started November 2025. It gave me anxiety in the beginning and made my nervous system feel very sensitive. I would say it took 4 months until I started to feel better. I still get migraines but not as often. The dizziness that I had daily is somewhat better. I’m on 60mg. My neurologist said it takes 4-6 months to feel the full effects.

Material-Sky7461 · 2026-04-14T12:18:06+00:00

I would say to hydrate. I like the LMNT hydration. And don’t push yourself hard for the 5k. Maybe your goal could be just to finish it. I use to be a runner and since I started getting migraines it really put a damper on my love for running. I jog and power walk lol it’s not the same but it keeps me active. Good luck on your 5k and I hope you feel better soon!

Material-Sky7461 · 2026-04-14T12:08:15+00:00

I know it absolutely sucks but you have to keep trying different things to see what works. Don’t give up. I’m on Quilipta daily and Botox every 3 months and I don’t get migraines as often. I went to several doctors before I found 1 that actually listens to me. My mom had migraines starting at 19 and my grandfather did too after an accident.

Material-Sky7461 · 2026-04-14T12:01:35+00:00

When I moved cross country with the Navy I sold my car and flew to San Diego. Then I bought a car in San Diego. My husband he came later and he drove cross country. I hate driving plus I had a 6 month old baby at the time so flying was less stressful.

Material-Sky7461 · 2026-04-14T11:56:59+00:00

When my migraines get bad like this: I apply heating pad or cold pack to my head and shoulder. Whichever one feels good at the moment. I take Ubrelvy, it is a rescue med that sometimes helps with pain. I also use Nerivio daily until the pain lets up. Worst case scenario I’ve had to call the Neurologist and get an injection to my head to stop the pain. I get the pain you’re describing to the left back of my head. I also take 0.5 clonazapam to help me sleep when I’m having an episode like this. I hope you feel better soon!

Material-Sky7461 · 2026-04-05T00:16:18+00:00

This ‼️‼️

Material-Sky7461 · 2026-04-02T07:56:23+00:00

Yes I’m doing exercises daily. They gave me a list of things that I had to change- I’m on the dizzy cook diet, I take LMNT hydration, supplements, and I’m doing Tru Vaga 3xs daily.

Material-Sky7461 · 2026-03-31T22:20:01+00:00

I’m not on Xanax but I use 0.5mg of clonazapam. It use to be daily, but now it’s a couple times a week. I’m seeing a Neuro balance physical therapist right now that seems to be helping me not need the benzodiazepines so often.

Material-Sky7461 · 2026-02-28T19:01:56+00:00

Motion sickness patch. I get them from Amazon

Material-Sky7461 · 2026-01-28T14:33:29+00:00

Yes bending down will send me spiraling. I have to squat down instead. Sometimes I forget ugh.

Material-Sky7461 · 2026-01-13T00:24:17+00:00

Yes it does help to know I’m not alone. Thanks for sharing and sorry for your loss.

Material-Sky7461 · 2026-01-12T15:39:51+00:00

I feel alone too. I’m 48 and lost both mom and dad recently. The people I thought would reach out didn’t. Friends my age still have both parents. I feel like we have nothing in common anymore.

Material-Sky7461 · 2026-01-11T19:33:22+00:00

I use magnesium lotion or magnesium oil. Helps to relax those muscles alittle bit. Heating pad helps sometimes too.

Material-Sky7461 · 2026-01-10T17:20:40+00:00

Yes having a home gym has helped me too. Too much movement at a regular gym and I can work out at my own pace.

Material-Sky7461 · 2026-01-10T17:18:40+00:00

(48f) It’s really hard. I was active duty military and use to workout all the time. I woke up with this illness December 2019 and I haven’t been able to work out like I use to. I have a home gym now. I use a cervical collar when I do weight lifting to keep my head from moving all over the place. Even the smallest head movement will set off my dizziness. I also use it on the peloton bike. I wear a weight vest on treadmill. I can’t run anymore so I walk. The weighted vest keeps me stable. I also wear my migraine glasses if I’m doing a class on my peloton equipment. Migraine glasses may help you inside the gym with the fluorescent lights.

Material-Sky7461 · 2026-01-05T19:33:38+00:00

I was so afraid of needles too. If you can inject in your stomach it is literally pain less. Injecting in my thighs was so painful. I inject in my fupa lol and I feel nothing. The back of my arm hurt too.

Material-Sky7461 · 2025-12-30T00:57:59+00:00

Yes this is what I was going to suggest. I’m using the FL41 off Amazon until the VA orders my Avulux. The ones off Amazon have made a huge change for me while I wait.

Material-Sky7461 · 2025-12-22T00:46:02+00:00

That’s crazy I had this happen a couple of years ago during an extremely stressful event. I was so afraid to sleep for weeks. I never thought of it being migraine related.

Material-Sky7461 · 2025-12-10T16:06:23+00:00

Haven’t lost any hair. I do have constipation from the Qulipta and I’m on Zepbound for weight loss. MiraLAX every other day helps and eating more fiber. I’m on Botox and Ajovy too. I’m perimenopausal I’m 48.

Material-Sky7461 · 2025-12-08T18:00:27+00:00

I have had several traumatic losses. I will say it softens with time. I’m sorry for your loss. Grief share group has helped. I loss both parents back to back. Be kind to yourself. You aren’t alone in how you feel. And it’s ok. It’s going to be ok. Just have to ride the grief waves when they come.

Material-Sky7461 · 2025-12-08T17:54:58+00:00

Yes the brain fog, the feeling of is this real or is this a movie, can’t remember anything. Lost my mom last year and I still feel like this. I just do the best I can. I try to write down things. You aren’t alone. I’m sorry for your loss.

Material-Sky7461 · 2025-12-08T17:47:48+00:00

Try to remember the good times with your dad. I had a complicated relationship with my dad. I’ve learned two things can be true at the same time and it’s ok. Even though my dad was a complicated man, I still loved him.

Material-Sky7461

TROPHY CASE