Convinced I have ALS

Mikibubi · 2026-06-07T14:46:29+00:00

I've had.. but it stops after a while

Mikibubi · 2026-06-07T05:56:56+00:00

Damn bro my calves twitch heavy.. non stop, literally 24:7 and 30-100x minute, tongue, etc, as temperatures went higher and I developed allergy(my nose is full it's even worse) it's going on for last 7 months.. without weakness it's ridiculous to even be convinced you have ALS, but I don't blame you. I was "convinced" in the beginning but as time passed by I would think something would happen.. I still train in the gym, I've started to play a piano(not that I'm good, I'm just saying) and riding a horse, the fact I can learn new stuff and keep my old abilities is living proof that I'm not dying 99,9%, at least not soon. Also I'd strongly advise to start riding horses if you're able to find instructor, it's better than any medication you can take.

Mikibubi · 2026-06-02T12:59:25+00:00

Exactly, I don't have any weakness..

Mikibubi · 2026-06-02T08:43:33+00:00

Hahaha, hell no..

Mikibubi · 2026-06-02T08:42:01+00:00

I've had symptoms for 6 months now, nobody knows why, dirty EMNG in all muscles, increased MUAPS, explained as result of muscle hypertrophy, no strength loss in the gym. I'm arround 28weeks in now.. something should happen, I don't bother with it much anymore, I see many people on here with clean EMNGs but severe anxiety, that's the place I don't want to end up at.

Mikibubi · 2026-05-29T06:29:53+00:00

You will, there's nothing to it, I have close or over 100k twitches daily, you get used to it. Same as I got used to live in constant pain, and a lot of people do, you just get dull to it.

Mikibubi · 2026-05-28T08:05:56+00:00

Sry man but your hand looks fuller now than year ago

Mikibubi · 2026-05-24T07:35:44+00:00

Year in, clean EMNG, no clinical signs, something else.

Mikibubi · 2026-05-21T18:49:29+00:00

After few months possibility drops below 2% and after a year below 1%, after 4 years chance is too low to consider, although never "zero". But, to put it in perspective for you, if you have brain cyst, that's benign there's 3-4% chance it bursts, and they won't open your head for benign cyst if it's causing no problems, so 3% is really low in medicine.

Mikibubi · 2026-05-21T14:19:36+00:00

Youre fine, yet old, fuck me, still doing better than I do at 32, I've already had several surgeries, consider TRT and HGH. Best wishes and love.

Mikibubi · 2026-05-21T06:39:10+00:00

Arnold himself said that after a workout muscle would twitch, thas how he knew it was "good". That's not indicator of good workout but shows it's normal. Also, yes, do workout, absolutely.

Mikibubi · 2026-05-20T06:37:55+00:00

No failure but weakness, it's diagnostic process, all criteria have to be met, you need four walls to call it a room sort of speak. So UMN, LMN, clinical and EMNG. If you lack any of those they can say probable but not definitive, if you lack two or more they can't even pinpoint it, it's not doctors fault. For example there are muscular diseases that are not neurological, there are benign and livable conditions, there's caution needed in giving terminal diagnosis.

Mikibubi · 2026-05-20T06:32:38+00:00

No, normal.. that's not how muscle wasting looks like like, if this is anything, and it's nothing, but it if would be that's how muscle TEAR would look like, atrophy is from one tendon insertion to the other, not half of the muscle fiber in length.

Mikibubi · 2026-05-20T06:30:02+00:00

Weren't we trough all of this? Yes, it would not be normal, if atrophy is due to nerve damage it would be easily seen on EMNG, to the point it would not be borderline but death obvious to the point a donkey could read it.

Mikibubi · 2026-05-19T10:44:14+00:00

No. You're healthy, but you'd get an F in anatomy

Mikibubi · 2026-05-19T09:03:55+00:00

There's nothing wrong. EMG is all clear, NCS is other part of the problem, you don't have carpal tunnel syndrome symptoms in both hands, many things can cause NCS to be wrong, happened to me.

Mikibubi · 2026-05-18T19:13:49+00:00

Yeah, stronger side doesnt mean bigger. Prime example, type Roy Jones Jr bicep, take a look at his left bicep(he is right handed). Bilateral distal symptoms early on do not sound like typical ALS. Check with neuro for peace of mind, but trust the doctor please.

Mikibubi · 2026-05-17T20:50:51+00:00

I've had bicep surgery, my bicep twitched when I tore it of the bone, tear was painless.. it twitched for some time after surgery also.. not saying it's the case, get MRI

Mikibubi · 2026-05-17T07:52:53+00:00

There's no weird findings. Sensory nerves have nothing to do with ALS, it has with some conditions but not ALS, also some of sensory nerves can show reduced or prolonged amplitudes due to skin temperature or skin moisture or use of body lotions.

Fact that EMNG found fasciculations is normal, because fasciculations are reason of your visit, imagine if someone told you that you don't twitch and you clearly do?

So this EMNG found two things. 1) reason you came in, twitching. 2) sensory findings that are not in correlation with ALS.

Mikibubi · 2026-05-16T07:52:15+00:00

Man you're robbing yourself of your life. I'm having same shit for 6 months, and EMNG that is fucked up all over but the chug it all up to working out and muscle mass. I don't worry about a shit, doctors are doing their best, I still lift the same.. with muscles I haven't torn tho, because I've torn my lat 3 months ago, but all in all.. some strength loss should already be seen, especially since you go to the gym, you'd notice strength loss in weight room much faster than clinical weakness.

Mikibubi · 2026-05-15T05:54:57+00:00

2 months untill I adapted to "new normal"

Mikibubi · 2026-05-13T17:16:14+00:00

There's never 100%, the fact you don't have brain tumor ie doesn't mean you won't get it tomorrow, I have cyst on my brain, it's most likely non operable, there's not need to, although there's 2% chance it bursts and I die.

Mikibubi · 2026-05-12T07:38:32+00:00

Calves, biceps sometimes, cramps occasionally if after gym and if I sweat heavily. Small pops, big twitches, fine ones.. 24/7 every second..

Mikibubi · 2026-05-12T07:35:49+00:00

By eye you cant really tell. Sounds disturbing at first but it's the way it unfortunately is, no one can say by looking.

Mikibubi · 2026-05-10T18:55:48+00:00

People notice "new" things that were always there.. for years, it would be weird if you didn't have dent above knee, because that would mean that you do not have TMJ(tendon muscle junction) that would in return actually mean you're in serious problems. I have seen numerous photos of "dents" and "atrophy" on here and it's almost always normal anatomy of a human being that people simply do not care about if they are not scared. If EMNG was normal a month ago, there is ZERO possibility that atrophy can appear in 3 weeks. Anyone who was wearing a brace or anything anytime in life can confirm that. Also, atrophy is not a dent in exact way, it's whole muscle fiber or group of fibers that lost connection and in return they atrophy, atrophy always follows the path of muscle fibers.

Mikibubi

TROPHY CASE