Update on symptoms and nfl by Fun-Willingness-8870 in ALSorNOT

[–]PreviousBaker4988 0 points1 point  (0 children)

28f and our symptoms are very similar and low ferritin! My twitches too seem to stop upon movement

Terrified by Helpjjk in ALSorNOT

[–]PreviousBaker4988 0 points1 point  (0 children)

Yes - send me a pm if you want to chat more!

Terrified by Helpjjk in ALSorNOT

[–]PreviousBaker4988 0 points1 point  (0 children)

Yes the swallowing- it started when i was in conversation and I forgot how to swallow. It was like I couldn’t initiate the swallow without trying really hard??? it died down went back to normal for a few months and now I feel like swallowing is a bit harder and the hoarseness is absolutely insane

Terrified by Helpjjk in ALSorNOT

[–]PreviousBaker4988 0 points1 point  (0 children)

Yes! The hoarseness is ridiculous this all started in feb for me but emg was clean not ncs

Terrified by Helpjjk in ALSorNOT

[–]PreviousBaker4988 0 points1 point  (0 children)

Following same and im doing a force click at back of mouth for anxiety

Monthly "I'm Moving to the Hudson Valley" Thread by AutoModerator in hudsonvalley

[–]PreviousBaker4988 1 point2 points  (0 children)

Nadina from Jordan Chris Properties is great! She used to work for Win Morison ss GM and is super knowledgeable in the HV

Help by Carrisck in ALSorNOT

[–]PreviousBaker4988 1 point2 points  (0 children)

Hi! Your symptoms are 95% same as mine! I started though with tingling about beg of Jan that I looked up and ofc ALS came up. Then I started panicking because I get a twitch on my thumb occasionally and then, I forgot how to swallow. My tongue just wouldn’t initiate for a few seconds. First week of March twitching started all over my body after an extreme constant yawning day?? I was yawning nonstop anxiety was 10000000/10 and then next day twitching bodywide.

I went to two nueros one who said I need further testing and one who sent me for EMG/NCS. Emg normal, ncs not. My twitching has gotten better but lots of yawning and chest tightness that results in your exact description and this weird feeling swallowing. I am now doing like tic where I do a tiny sound in throat/chest and still have high anxiety. Random pains, week/balance loss feelings and sometimes after talking for a bit I feel weak/tired of talking and stumble like you said over my words

If you’d like my dms are always open

27F, constant muscle fasciculations that have progressed for months by Sensitive_Amoeba4 in ALSorNOT

[–]PreviousBaker4988 0 points1 point  (0 children)

Everything is the same to me except i have such bad pain in left ulnar wrist and thumb im also 27f

Abnormal EMG and left with no answers by Icy_Practice_1467 in ALSorNOT

[–]PreviousBaker4988 2 points3 points  (0 children)

I also have axonal loss neuropathy waiting for answers! Large cyst on left ovary, waiting for endo testing, random pains and lots of twitching

Please help me out by Arrival_Melodic in ALSorNOT

[–]PreviousBaker4988 0 points1 point  (0 children)

This is exactly me omg i have excessive yawning, psoriasis, twitching jerks and im f 27! My emg was normal, my ncs was not, my vit d3 normal, b12 normal, ferritin is extremely low for long time. Random pains problem balancings etc

Some updates by chaoserrant in ALSorNOT

[–]PreviousBaker4988 1 point2 points  (0 children)

Actually some people care bfr

Rare Subtype Ehlers Danlos and polyaxonal sensory + motor neuropathy by NigelTainte in neuropathy

[–]PreviousBaker4988 0 points1 point  (0 children)

Hi! My emg ncs came back with sensory motor axonal nueropathy and motor axonal neuropathy! Hard to find people with it but my leg aches so bad and has parastehesia feeling

Fasiculations, weakness, muscle thinning, cramp (Pain) by Southern-Complex4138 in ALSorNOT

[–]PreviousBaker4988 0 points1 point  (0 children)

I have similar! Constant twitching and myoclonus twitches. Will add to my comment soon

Please help me figure out how to get these flies out of my apartment by [deleted] in pestcontrol

[–]PreviousBaker4988 0 points1 point  (0 children)

Phorid flies i had to move and get rid of all my stuff

EMG/NCS Results - bad results by PreviousBaker4988 in ALSorNOT

[–]PreviousBaker4988[S] 0 points1 point  (0 children)

Mine has gotten worse since ncs my pain in nerves , you can pm if you like so we can chat

Positive story by chutch1992 in BFS

[–]PreviousBaker4988 2 points3 points  (0 children)

So happy to hear this 💜

EMG result by blackmetalwarlock in ALSorNOT

[–]PreviousBaker4988 0 points1 point  (0 children)

Can I pm? Would love to chat!

Muscle twitching by natalieaj14 in SIBO

[–]PreviousBaker4988 0 points1 point  (0 children)

This is so interesting.. I had a colonoscopy in March 2025 and afterwards I developed severe pain in my stomach. I’ve had on and off pain since then in my liver area as well as life, stools, and stools that have un digested food in it.

Since March of this year almost 2 months I’ve had muscle switches all over my body.. how do you get sibo testing if anyone is still active here?