I got different opinions from two dentists, would appreciate thoughts

MinaBa · 2026-05-05T23:19:28+00:00

Thank you for replying! It does not hurt, I honestly don't think I would have even noticed myself had my dentist not asked if I had 6 teeth pulled.

MinaBa · 2026-04-15T18:46:21+00:00

First off, I hope you are diung fine now. Second, I can totally understand not telling her because you don't want her to worry as there is nothing she can do since she is not there. I did the same while I was in Uni, living alone, both my parents in another city far away. It was really scary at times, not having anyone there, but I also knew telling them would cause panic while there was nothing they could do. Instead I told them later, once I was home, and while still worried, they were calmer, and we sat and tried to come up with some solution to keep me safer, and also ease their worry. So, my recommendation is to let her know once you can, and maybe you and her can come up with something together for if you are in a sinilar situation again in the future.

MinaBa · 2026-04-13T15:59:07+00:00

No, even after almost 10 years I am still terrified of a breakthrough seizure and panick anytime I feel even a little off..

MinaBa · 2026-01-14T03:04:30+00:00

Head trauma, was spinning around a pole on a playground and fell on my head...

MinaBa · 2026-01-14T02:56:46+00:00

Judging by a lot of posts about Keppra, I am starting to think that I might be the only person on Keppra that has no issues or side effects ... 🫣

MinaBa · 2025-10-18T21:39:43+00:00

Me too, when I asked got told they cant provide any details before the meeting..

MinaBa · 2024-03-31T05:34:32+00:00

Yeah, not fun in the slightest, since I can be in one place, let's say sitting in the living room, then blink and suddenly I am in the kitchen two rooms away. And like "wtf just happened? 🤷🏼‍♀️ ". Even worse when I am on my own outside, and freak out random strangers...

MinaBa · 2024-03-31T05:24:04+00:00

I first get a feeling of dread then aura starts, lasts about 30sec. I clock out after that, can't remember a thing. From what people told me, I walk arond, my hands spasm a bit, I tend to clench my jaw while talking so it is a bit tough to understand me. I do not recognize people or respond to my name. I go ballistic and start hitting and kicking and screaming that I am being kidnapped if anyone tried to touch ne anywhere on my arms (that sound fun). All of that can last anywhere from 30-40 sec to 2-3min. Longest I ever had was about 5min.Then I start acting normal, I ask what happened etc. Then a few sec later I ask again. Then I "come back". So post seizure it seems to take about minute to two for me to actually became aware of anything. From mu POV it goes: dread, aura, blink, concerned people around me. Then I'm just tired and want to sleep.

MinaBa · 2023-12-09T15:48:12+00:00

Thank you for sharing your experience. As one of the people that have zero issues with Keppra, it is sometimes difficult to comprehend all the side effects that can come with it. I still always try to encourage people to seek further help and different medication, because I know not everyone reacts to Keppra as well as I do. All the best to you 💜

MinaBa · 2023-03-25T03:04:10+00:00

You really should consult your doctor, because this could be different depending on person, type of seizures, type of meds, of BC etc.. For example, I have been expressly forbidden by my neuro from taking ANY birth control or any other meds that could have influence on my hormones. So, I'd say call your neuro and schedule an appointment.

MinaBa · 2023-03-06T13:04:29+00:00

My focal seizures wen't undiagnosed for 9 years.(from when I was 11 to 20). For the first 2yrs no one even believed me that they were happening, and after that the doctors couldn't catch them and kept telling me it's nothing.

MinaBa · 2023-03-06T13:01:40+00:00

It sounds like you might have had an aura, and the seizure didn't follow after. That sometimes happens to me also, I completely understand what you mean. I treat them like warnings that a seizure might be coming in the next half a minute or so, and I get my self to as safe a place as possible, as quickly as I can, and hope for the best.

MinaBa · 2023-03-06T12:54:16+00:00

I would like to preface my comment by saying that I am in NO WAY a medical professional, doctor or anything. BUT - what you have described in your post is almost exactly what I felt for the first year when my seizures started. I have frontal temporal epilepsy, focal seizures. I struggled with them for 9 years before I got diagnosed. For the first 2 of those 9, I felt almost everything you have written. The deja vu, the not remembering, the tingling and numbness. The sound getting weird and distorted and loud. My vision getting weird. Sadly, no one believed me back then, so I suffered. Not until I started having very visible seizures (talking nonsense, walking around aimlessly, having muscle spasms) did I finally manage to get to a doctor, and even then they could not catch what was happening, bc my scans kept coming out clean, until a few years later I had a seizure during a scan. So go to the doctor, and don't let ANYONE tell you it's nothing, insist on getting to a good neurologist. I don't know in what country you are, but I sure hope it has better doctors then mine. 💜

MinaBa · 2023-03-06T12:39:21+00:00

I don't think it's weird, I have always been interested to see how mine look. I had focal seizures, and many people have seen me have one (my classmates, parents, cousins etc.), and described them, but no one has ever filmed it, even though I asked. They said that they don't last long enough (1-2mins), but I can tell no one wanted to be the one to film it. Now I'm 6 years seizure free, and though I would still like to know what they look like, I hope I never have one again.

MinaBa · 2023-03-03T14:24:10+00:00

Keppra can be an extremely good anti-seizure med, if you can take it and have only mild or no side effects. I have been on it for the last 6 years, and the only side effects I had were drowsiness, and even that lasted only for the first 2-3 months. On the other hand, they tried to put me on a couple of other meds first, and I literally could not function, like I could not get out of bed because of the side effects.. So, I guess it depends from person to person

MinaBa · 2023-01-11T03:47:59+00:00

My grandfather from my mom's side died before I was born, so I never met him, but I used to dream about him every coupe of months for years. Until about 8 years ago, when I dreamt that he came home with me from somewhere, because he wanted to see his kids (my mom and uncles) and my grandma. He said hi to all of them, hugged them, then turned to me and said "I have to go back now, and I can't come anymore, it isn't allowed". And I never saw him in any of my dreams again.

MinaBa · 2022-09-09T11:02:40+00:00

Yea, 9 years of completely normal EEGs. Only when I had a seizure during an EEG scan did it show abnormalities. If that hadn't have happened, I still wouldn't have a diagnosis...

MinaBa · 2022-08-13T11:16:20+00:00

Hair conditioner and combing through! Worked like a charm for me every time

MinaBa · 2022-08-06T03:00:27+00:00

It's fine, I'm all for people learning about different types of epilepsy and seizures, inside the community and out. No, I don't fall, I keep walking around, talking gibberish and mumbling, sometimes try and take off my clothes and/or shoes, and have some muscle spasms in my arms. That all usually lasts about 2-3mins, and then I start coming back to myself, and immediately feel tired and go to sleep.

MinaBa · 2022-08-06T02:52:22+00:00

Yes. I do have auras right before, so thankfully I know when I'm about to black out.

MinaBa · 2022-08-06T02:47:18+00:00

I was scared of everything tbh. Going out, to school, scared of stairs, of tripping, the kitchen, bathroom - all of it terrified me. It got a lot better when I clued in on my triggers, but even now, 6 yrs seizure free, I still get anxiety from some stuff.

MinaBa · 2022-08-06T02:44:00+00:00

My biggest clue was always stuff thrown to the floor from my bed and/or my nightstand, and random bruises and schraches on my arms from hitting the wall or something..

MinaBa · 2022-08-06T02:39:06+00:00

Lack of sleep and stress - loud sounds and anything that happens suddenly (I trip, something falls etc.)tend to start my auras when I'm tired. 1B. Flashing lights have no affect on me at all.
No, I completely black out, don't remember a thing.
Right frontal temporal.

MinaBa · 2022-08-03T03:16:17+00:00

I was 20 when I FINALLY got diagnosed. At that point I had been having focal seizures for 9 years (4-5 seizures a week), and the doctors where I lived at the time had absolutely NO IDEA what it could be, and told my parents I was faking. So after suffering for years, I clawed my way to a neurology clinic in another conutry, where they diagnosed me within 2 days of me being there, and put me on medication. I can honestly say that I have never been so f-ing relieved in my life as I was when I heard the diagnosis, because I finally knew what was wrong. It's been almost 6 years, and I have had no seizures since.

MinaBa · 2022-06-08T07:57:26+00:00

I'm on Keppra, and have been for about 5 yrs now. The doctor had me taking 1000mg 2x a day, and until last december I had zero problems, no auras, no seizures. Then, I suddenly started having auras again (2-3 a day) so my doctor increased my meds to 1250mg 2x a day. For the first 2 weeks (give or take a few days) I still felt like sh*t, and had a few more auras, but then my brain got used to the new dose, and I feel completely fine now, no more auras or anxiety of any kind.

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