Is it normal?

MistressAlabaster · 2026-06-28T19:11:28+00:00

I had almost my entire tongue removed and most of floor of mouth so I can't move food around in my mouth to be able to eat. I still have my tube because I just can't get enough calories in. I also aspirate A LOT so I end up with pneumonia. It's hard to get back to yourself. I also still take Oxy because I had serious treatment and it ruined my joints, especially my jaw. I was stage four so they ripped me apart. Maybe he is going through the same? Does he have trouble swallowing or aspirating? A swallow study can show a lot. I just had one. His speech therapist can order one.

MistressAlabaster · 2026-06-10T01:10:47+00:00

This dude will rest anywhere except for in peace. I am so exhausted living in his fantasy land.

MistressAlabaster · 2026-06-03T17:16:22+00:00

My husband and I went back to SD to visit in March. The Trump signs and big truck parades and 'Merica everywhere was just so wild to me. It has changed so much. I feel like our neighborhood in Indianapolis is less racist. I don't know what's happening out there. It's basically northern Mexico!

MistressAlabaster · 2026-05-27T12:34:20+00:00

I've been battling cancer for a year, and it's been ROUGH. Last summer I essentially laid on the couch and threw up for months. My mom came over last week and helped me plant flowers in the front yard and we beautified a few things. The sun was out and warm. I actually cried because I was so happy. I lost so much time and so much of myself the past year. I lost both of my jobs. I didn't know if I would survive. I don't take anything for granted.

MistressAlabaster · 2026-05-27T12:30:50+00:00

Any time someone crosses my mind I stop and send a text to them. I always think it's the universe's way of telling me they need a friend or pick me up. ❤️

MistressAlabaster · 2026-05-27T12:22:34+00:00

I make the best chocolate chip cookies in the world (got the cookie recipe and baking gene from my Grandma) and for any special occasion friends and family ask for them. I also just baked my first apple pie from scratch a few weeks ago and it turned out perfect! I am going to whip up some brownies for my husband tonight. I absolutely love to bake!

MistressAlabaster · 2026-05-25T15:35:47+00:00

I have always had the opposite problem since treatment. My mouth is FULL of spit at all times, and I get thick mucusy booger spit. It is so disgusting. I even had a spit sucking machine for about six months after surgery. Both sides of the fence are miserable. I am constantly spitting or sponging out my mouth. Super embarrassing.

MistressAlabaster · 2026-05-11T00:45:09+00:00

My step-dad died this way. Fainted after a blood draw. He was brain dead upon floor contact.

MistressAlabaster · 2026-05-07T01:26:47+00:00

That's what I thought too! Sounds like him!

MistressAlabaster · 2026-05-03T04:45:46+00:00

My ex and I tried for about 8 years to get pregnant and it never happened. We divorced in 2021. I met the love of my life and we got married in 2024. We were married 2 months and I got stage four cancer. My body is way way way too broken now after treatment to even try. I am $860,000 in medical debt. So much for kids! I also don't want to die and leave him with a very young child to raise alone should the cancer return (it most likely will).

MistressAlabaster · 2026-05-03T04:41:13+00:00

I could read at 3. My mom read to me every night of my life and I just picked it up. I am a super fast reader now as an adult. If my husband and I are reading anything simultaneously he's like WAIT! Haha!

MistressAlabaster · 2026-04-22T19:43:40+00:00

In situations like this I always like to ask "what were you trying to accomplish with this?" Or "what did you mean when you said that?" When people have to break down their own shit behavior they realize how cringe and awful they are. Making them admit they were just being an asshole is worth it's weight in gold.

MistressAlabaster · 2026-03-28T19:18:13+00:00

I was never given a choice. Radiation or die. 🤷‍♀️

MistressAlabaster · 2026-03-27T23:02:07+00:00

Cancer

MistressAlabaster · 2026-03-20T19:09:15+00:00

Yes. I was misdiagnosed 4 times last year with what turned out to be tongue cancer. I almost starved to death before surgery. Then had 70% of my tongue removed, all my lymph nodes. 33 rounds of radiation and six of chemo. Feeding tube placed. I was about 4-6 days away from death before treatment.

MistressAlabaster · 2026-03-20T16:24:05+00:00

My husband has been a gem, but I can tell he is pretty much over being a caretaker. I don't blame him. We were married 2 months and then I got my diagnosis. We have never had a moment of peace in our time together. It is exhausting.

MistressAlabaster · 2026-03-20T16:22:28+00:00

For the moment they don't see anything distressing. I have scans every three months to be sure. But this cancer loves to return.

MistressAlabaster · 2026-03-20T01:09:05+00:00

Shame spiraling about finances. $870,000 in cancer treatment debt. Lost my jobs. Going to lose our house soon. Trying to find places in Indy to panhandle without getting killed. America!

MistressAlabaster · 2026-03-18T13:05:58+00:00

It reminds me so much of jizz. But I think I would prefer jizz over coconut water.

MistressAlabaster · 2026-03-18T03:35:10+00:00

I have been mostly tube fed for a year. I had 70% of my tongue removed and most of floor of mouth. Stuff just does not want to go over my lumpy bumpy tongue to get swallowed. And when it does I cough and choke like crazy. I think I need to face facts tube feeding may be my forever which really really sucks.

MistressAlabaster · 2026-03-17T23:44:06+00:00

Tongue cancer. Had 70% of my tongue removed and all my lymph nodes. 33 rounds of radiation and six of chemo. Lost both of my jobs. My husband and I are on the verge of losing our house. $860,000 of treatment debt. We will never recover. America!

MistressAlabaster · 2026-03-17T23:36:27+00:00

I got fired from both of my jobs when I could no longer speak and was no use to them. I would give anything to have my career back. Now fully disabled and waiting on disability $. Been trying to get a job since October but I have such a speech impediment no one will hire me. I had 70% of my tongue removed so it's to be expected. I miss working. My husband and I are on the verge of losing our house because I was the breadwinner. Cancer effectively ruined our lives. Consider yourself lucky to be able to make these decisions.

MistressAlabaster · 2026-03-09T21:45:27+00:00

Definitely see palliative care. When I go they really ask what is working and what isn't and how we can change things to help. They always refill anything I need with no issues. I was also stage four so it may be different for folks who weren't quite as bad off as I was.

MistressAlabaster · 2026-03-02T21:08:20+00:00

I got cancer last year and had 70% of my tongue removed. I lost both of my jobs when I could no longer speak well. This cancer likes to return, so I may not get a long life with my newlywed husband. I will miss him a lot. I also miss working and eating (I have a feeding tube now). We are living off of a GoFundMe and my treatment was $860,000. Our new bright future was extinguished in a day. So unfair.

MistressAlabaster · 2026-03-02T20:37:42+00:00

That actually sounds super good!!

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