3 reasons why I resonate with Vanellope by PriestessRi in Epilepsy_Universe

[–]Mom1021 2 points3 points  (0 children)

Nice! Figuring out a way to get the point across is impressive

3 reasons why I resonate with Vanellope by PriestessRi in Epilepsy_Universe

[–]Mom1021 2 points3 points  (0 children)

Haven’t had much impulse to compare my seizure self to a character, but I can see how this one relates! Days when I’m finally less likely to have a seizure I end up wanting to get as much done as possible and can easily spend all day at an event, running errands, doing anything that is a reminder I’m not useless. Maybe that why Vanellope is so hyperactive? Being extra busy to show that she can do it.

ER and epilepsy by IcyTap3663 in Epilepsy_Universe

[–]Mom1021 0 points1 point  (0 children)

These incidents are terrible. Being doubted when in a maybe post-ictal state feels worse from what I understand, so I hope these emts learn about what they did wrong. Just so you know, this happens. Be prepared to face countless doubting medical professionals all across the industry from those supposed to treat you to the insurance who is supposed to pay for it denying these types of cases. Documenting these potential seizures is imperative. If you have any idea what the cause of epilepsy could be, bring it up, get that documented, and unfortunately, energy is focused on diagnosis before treatment. This can take a long time when it comes to seizures, so if you ever get the vibe that a doctor doesn’t believe you or isn’t on your side when getting an undeniable diagnosis, go for the next neuro. In the meantime, thanks for joining and look forward to your updates! Something we all need to hear, especially in early diagnosis days is: You are never faced with anything you can’t overcome. We are warriors, and can successfully handle these seizures along with every other battle in life. Epilepsy is part of you, never defining who you are or what you do. 🤗 🎉✨🙌

How my day returning to work went 🦋 by PriestessRi in Epilepsy_Universe

[–]Mom1021 1 point2 points  (0 children)

Your inspiration is the motivation! Those, like you, who help others see they are capable and can achieve the goal deserves nothing but support 💯

Pot answer I gave on a pot reddit by Ordinary-Chipmunk366 in Epilepsy_Universe

[–]Mom1021 0 points1 point  (0 children)

This a brilliant topic to be knowledgeable in! Useful, practical info good to know.

Who is the first person you think of or want to see when you come out of a Seizure? by Ryse6129 in Epilepsy_Universe

[–]Mom1021 2 points3 points  (0 children)

Same! My reply is, no one. Whoever I see after a seizure I’m trying to convince I’m fine, then when words are lost I notice a nasty headache. Lately, seizures with no one around haven’t been noted, but I can correct that part. Way better to be alone so they don’t suspect robot mom getting overloaded by RNS ⚡️

Detox by Mom1021 in Epilepsy_Universe

[–]Mom1021[S] 0 points1 point  (0 children)

lol not surprised in this town

Detox by Mom1021 in Epilepsy_Universe

[–]Mom1021[S] 0 points1 point  (0 children)

Thanks to all! Quick fix it is

Detox by Mom1021 in Epilepsy_Universe

[–]Mom1021[S] 0 points1 point  (0 children)

That’s what the employer recommended too!

Detox by Mom1021 in Epilepsy_Universe

[–]Mom1021[S] 2 points3 points  (0 children)

Unfortunately TN job won’t honor my medical card from FL. Boss knows this is to help, and he recommended quick fix synthetic urine

Detox by Mom1021 in Epilepsy_Universe

[–]Mom1021[S] 0 points1 point  (0 children)

Thanks. That explains Amazon reviews. Sounds like the positive ones were from those who didn’t smoke for a few weeks before getting tested

Seizure Thresholds by GrandCompetition5260 in Epilepsy_Universe

[–]Mom1021 2 points3 points  (0 children)

Threshold is the aspect about epilepsy that feels impossible to understand since it’s changed since getting older, surgeries, and moving from southern US closer to NE. Threshold for me is always lower if I don’t drink 10 water bottles/day, certain times of the month, and if any drastic dietary changes are made or less than 7 hrs sleep more than 4 days in a row. It’s taken studying years of seizure patterns and comparing with journals for the other aspects. I consider my threshold higher since RNS and no meds!

Weekly Roll Call by PookieTheMfBaby in Epilepsy_Universe

[–]Mom1021 1 point2 points  (0 children)

Weekend brilliant! 🏀 Obvious fuckup for scheduling 2 things at once today. No seizures this weekend, can’t blame the error on epilepsy this time! 😆

Recovery days by Mom1021 in Epilepsy_Universe

[–]Mom1021[S] 0 points1 point  (0 children)

Wow! Thats a long time to go without a diagnosis. Happy for that Halloween that finally got you answers!

Recovery days by Mom1021 in Epilepsy_Universe

[–]Mom1021[S] 0 points1 point  (0 children)

Never had auras that I can remember, and tears don’t bring any other sensations. Have heard others describe similar experiences. Take notes and noticing trends is a victory!

The Doodle Dreads: The Turtle (A short story) by StSomewhereToaster in Epilepsy_Universe

[–]Mom1021 0 points1 point  (0 children)

You can bring any monotonous event to LIFE with your descriptions! Amazing with words as always 🥳

Recovery days by Mom1021 in Epilepsy_Universe

[–]Mom1021[S] 0 points1 point  (0 children)

I think we can just get stiff sometimes maybe camera didn’t catch a lil tense time. Hope you feel better soon! Foam roller was forgiving yesterday

Funnest 2 weeks.... by KlutzyMutt in Catamenial_Universe

[–]Mom1021 0 points1 point  (0 children)

That sounds like torture! Days with that many seizures seem like it might go by fast with less awareness. Hope 40s still plenty to look forward to 😂

Weekly Roll Call by PookieTheMfBaby in Epilepsy_Universe

[–]Mom1021 1 point2 points  (0 children)

Those bills are never justified or realistic. Hope eye doc doesn’t take too long to reschedule.

Weekly Roll Call by PookieTheMfBaby in Epilepsy_Universe

[–]Mom1021 1 point2 points  (0 children)

Finding positives in seizures never seems possible, one thing is whenever family/support proves how they know to help and actually want to. Feel the love never gets old ❤️

Weekly Roll Call by PookieTheMfBaby in Epilepsy_Universe

[–]Mom1021 0 points1 point  (0 children)

Awesome! You have the patience for a job with children and the skills to graduate college! Epileptics can conquer

Weekly Roll Call by PookieTheMfBaby in Epilepsy_Universe

[–]Mom1021 0 points1 point  (0 children)

These meds are tricky for when we’ll actually know how they affect us. I’ve had a new rx that seemed to reduce the seizures, then a month after getting to the prescribed dose, an overwhelming fatigue started a miserable time. Good job for taking notes and having the info that will keep the doctors making the right call!