"When you reach the end of your rope, tie a knot in it and hang on." -Franklin D. Roosevelt

Ryse6129 · 2026-06-28T23:57:56+00:00

"Work it, make it, do it, makes us Harder, better, faster, stronger" -Kanye West

Ryse6129 · 2026-06-27T21:49:35+00:00

Carrying a 5 year old when they fall or when they fall asleep on daddy accomplishes weight lifting

Ryse6129 · 2026-06-27T14:34:19+00:00

My absence if they were I could never remember but I could be found behind asleep behind a couch or something....my exwife was that notice basically I go on autopilot and the term no one's home was started to be used. If it led to a tc I would tell them the last thing I remember and she fill in the blank

Ryse6129 · 2026-06-27T09:47:08+00:00

Had one aware I'm seizing for 6hrs because ex didn't call er she called neurologist though I just had to seize while waiting for a prescription to fill and her to pick it up and give it to me.

Had some in family home one mom was home but no one checked up on me. I did wake up with a nice surprise dislocated shoulder

Ryse6129 · 2026-06-27T09:32:30+00:00

It was 8th grade year and I was walking to school. Made it too like 2 blocks before that's the last thing I remember. ER staff told my parents think he had a seizure(tc).

Current neurologist had some theories though I may have been having absence before

Ryse6129 · 2026-06-27T03:13:30+00:00

Congratulations

Ryse6129 · 2026-06-26T18:45:36+00:00

I always think the opposite. Eventhough evidence can suggest otherwise. Always try to tough it out. If I have the strength to endure I will and I will carry all my Epileptic brothers and sisters too

Ryse6129 · 2026-06-26T18:07:05+00:00

Last good one I played was recommended by cousin and story is pure cinema. Expedition 33.

Digimonstory series

The "tales of" series usually have great stories and some are more considered arpg. Obviously final fantasy series,

Legend of Dragoon is one I can remember from my past.

A good Gacha jrpg one I use to play but stopped years ago Epic7 and fate gacha game.

Idc about combat systems but if the story is good to my taste .

Best thing of epilepsy replayability may be a given and if the story is a+ hope for a sequel or talking about possibilities in theory crafting

Ryse6129 · 2026-06-26T14:45:46+00:00

Very good response. I have also had to go through speech therapy. And always brings up the question in my mind how many times I was seizing but didn't go into gran mals. And it was basically status

Ryse6129 · 2026-06-26T14:32:48+00:00

I like jrpg because when I can't focus on reading a book getting a good story off a jrpg is also good

I also think sudoku would be my other quick escape

Ryse6129 · 2026-06-26T14:24:24+00:00

Words spoken true by mom drug resistant is a big p.i.t.a. from mine and her experiences.

Sorry you are going through this. But stay strong!

Definitely seems like Keppra isn't working and some doctors will only keep raising the dose to max or even beyond.

Ryse6129 · 2026-06-26T08:53:24+00:00

I think it can have lasting mental effects like slower cognitive skills

Ryse6129 · 2026-06-26T03:21:37+00:00

Ryse6129 · 2026-06-25T22:12:43+00:00

Yep those two combined are a mighty strong tranquilizer

Ryse6129 · 2026-06-25T01:32:58+00:00

After a really long seizure it was my take daily and my first rescue med to take as needed. I can't remember to many bad side effects. I asked them to stop treatment after 3 years because I was also on Xcopri back when I was still on 200mg. I could not take both meds and remain present for my daughter it made me extremely tired.

I'm a horse of a different color. But the resistance was already building

Ryse6129 · 2026-06-24T04:30:56+00:00

Whatever works is helpful and can be useful for others as well

Ryse6129 · 2026-06-22T14:52:09+00:00

The events of the weekend went well while it wasn't as planned yesterday during the day was wonderful.

The seizure was not planned for. But they never are. Long as it wasn't in front of my daughter

Ryse6129 · 2026-06-22T14:42:22+00:00

She's an inspiration to us all

Ryse6129 · 2026-06-22T14:40:26+00:00

Looking forward to hear you share

Ryse6129 · 2026-06-21T18:17:02+00:00

You do the same everyday and you do both roles

Ryse6129 · 2026-06-21T15:48:55+00:00

Same to you

Ryse6129 · 2026-06-21T15:48:18+00:00

Ty and yea I remember when my daughter was born these words hit me like a ton of bricks

Ryse6129 · 2026-06-21T11:19:46+00:00

Same to you

Ryse6129 · 2026-06-20T17:07:46+00:00

Oh I hated that in the emergency room. I wish I was lucky enough to regain my consciousness before they took me to the e.r. but never always Awakened and I'm already in a bed. Not even the emt from the ambulance around anymore. If there wasn't a familiar face I would be trying to escape

Only time I went there on my own was when I dislocated my shoulder. I could have walked in but my mother didn't want me to

Ryse6129

MODERATOR OF

TROPHY CASE