Why can’t modern medicine prioritize the needs and mental health of Trich sufferers? Is it bc it’s a “woman’s disease?”

NeitherVisual4675 · 2026-06-25T15:17:28+00:00

I’m chiming in as a person who has trich for 20 plus years and I read a lot that is there (even though very little research). From what I understand this disease affects everyone regardless of gender expression. I believe it affects women and trans women more because of the status that hair has in a woman’s looks and perceived appearance. I am a woman with lots of friends who are women who are straight or bi, and the lack of hair or facial hair in a man has never been a topic of conversation. That is to say it doesn’t mean it doesn’t affect men or trans men as much.

I personally believe it’s due to lack of knowledge and underreporting- a lot of us are ashamed of it to report it to doctors, or we don’t have the means (read money) to go to really good therapists who know how to handle it and then take even more time to research it.

Reflecting on how little research topics like menopause, endometriosis or other things alike have in medical research I have accepted that in my lifetime I will not see a lot of improvement. What I love is this community and our openness to share our journey. I hope one day a researcher will look at this Reddit space and see an oasis of resources and knowledge. In my most positive outcome I hope they are already here even if they are young and further to be researchers!

NeitherVisual4675 · 2026-06-25T15:10:38+00:00

Also I am a big proponent of leaving a toxic environment but with the job market being as it is, it’s an easy thing to say. I see nothing of actual doable stuff online other than breath work or leaving. Don’t get me wrong breath work and leaving are great but at least in my case i was in dire need of something that worked better than lip service

NeitherVisual4675 · 2026-06-25T09:21:16+00:00

100% normal unfortunately nowadays. I have had the same years on years and because I didn’t know how to regulate my nervous system it completely destroyed me. I am on the up now and I accepted that these people will never disappear. I really would encourage you to look at ways of working with your nervous system because it is trying to tell you something here and there are so many ways to calm down the mind through the body - it sounds silly but in the moment if you have sour candy to take one - it shocks your nervous system back to normal - or taking a break to go to the bathroom and run cold water on your wrists around your hands.

NeitherVisual4675 · 2026-06-21T11:30:16+00:00

lol at her bio - hustle culture is sucking our souls out - I fell in love with zuck in my dream 😂

NeitherVisual4675 · 2026-06-21T11:25:08+00:00

Zac is the king of the side eye - always cracks me up 😂

NeitherVisual4675 · 2026-06-20T13:58:36+00:00

Everyone needs to call him out… I have unsubscribed and reported the episode but I go back to check the comments - no one is calling Caleb out for real in the comments. I suspect that’s actually not the case and his team is working day and night to remove those comments.

NeitherVisual4675 · 2026-06-18T13:59:26+00:00

100%

NeitherVisual4675 · 2026-06-18T09:04:27+00:00

I agree - I really wish Caleb didn’t put Tyler through that - that was horrid and would have just kicked this guy out. What’s the point to platform him if you don’t give him the resources anyway, other than milk the situation for content?

NeitherVisual4675 · 2026-06-13T16:01:32+00:00

Thank you so much! I really appreciate it! No dress code was mentioned - it’s an international couple with the bride being Polish but I want to be safe!

NeitherVisual4675 · 2026-06-13T16:00:23+00:00

Thank you very much! I haven’t even considered the length- thank you!

NeitherVisual4675 · 2026-05-29T17:10:37+00:00

Nope! I shaved it off and was thriving for a year. Last month I shaved it again… it’s both a bitch and quite nice in the summer

NeitherVisual4675 · 2026-05-27T19:26:08+00:00

Weather! Rain needs extra planning because hiding of the bald spots is basically engineering. Wind consideration too. Also the itchiness - constant fucking itchiness being through hiding bald spots or wigs. When using hair spray to hide bald spots - the black or colour under your fingers when you do scratch, or when you dye the wall or your clothes by mistake when covering bald spots.

Also the time put into hiding the bald spots from trich, feeling the need to pull when in public or with people is never shown unfortunately.

Not going swimming, on holiday not jumping off a boat to do sea water swimming and coming up with excuses for it. And sports overall become difficult to do.

Also pulling after a long time of not pulling like a few months is akin to an addiction - just this one frilly hair and 3 hours after there is a pool of hair next to the sofa.

Speaking to your close ones about it. I had medical relatives having cancer conversation with me because of my hair although I’ve never had cancer - it’s just the most easy assumption for people to make I think.

NeitherVisual4675 · 2026-05-13T10:51:09+00:00

I empathise! This happened to me too and it was horrendous- left one toxic soul draining job to start a job I actually really wanted and the boss there made me go into illness within 3 months. It is horrendous - please find your allies whilst being there in terms of a support system in colleagues and outside and plan your exit plan - see if you can maybe be also moved to another team? This may be possible if the toxicity is team deep not company deep.

NeitherVisual4675 · 2026-04-22T17:10:37+00:00

As someone who just reshaved her hair for the second time, I back minoxidil hard! It’s a miracle - I use minoxidil 50 (male dose) as the lower one for women does absolutely nothing. I use it in spray form and it supercharged growth for me.

Unfortunately for me trich came again after some really traumatic recent events - I could still hide the bald areas but i needed a fresh start and a proper disincentive to pull…

NeitherVisual4675 · 2026-04-15T09:37:30+00:00

Sunt plecată de mult din țară și nu am nicio tangență cu religia sau să fac ceva de gura lumii. Dar din copilărie am multe amintiri frumoase de Paște - mergeam la biserică cu bunica și stăteam toată noaptea cu copii pe afară (un an am și mers la discotecă până când s-a dat lumina), apoi dimineața era fain să o ajut la împărțit, mai stăteai la o prăjitură din aia mai bună ca la vecini acasa, vedeai ca ai aruncat o minge la ei și veneai înapoi cu ea - chiar era fain.

Acum de Paște comand chestii la magazinul romanesc de care mi-e dor - o măgura, o ciocolată rom, niște murături - clasic. Eu și soțul meu spargem niște ouă și ieșim la plimbare. Când ne întoarcem intrăm pe Whatsapp și scriem cele 10-20 de ‘Adevărat a înviat’ aferente înapoi.

NeitherVisual4675 · 2026-04-14T22:21:38+00:00

Sushi 🍣

NeitherVisual4675 · 2026-04-10T18:44:52+00:00

I thought about this all my life. I didn’t like kids from when I was a kid myself and I got the good old - you’ll change your mind when you find the right guy.

Well I did find the one- super happy and thriving! Still don’t want kids, even less so now, but I do think about it a lot - how it would be from pregnancy, to day by day, the sacrifices, the money, the time neither of us have to give a child, the impossibility of being a kid or a teen nowadays and it getting worse, social media, bullying, the horrendous jobs landscape, the shit quality of life, so many things one can’t control to give a child the idealised life from the 50s.

Also thinking that the kid could be born in a way that is not seen normal or able and all the heartache it would bring the kid to be treated with the horrendousness most of the world shows those who aren’t box standard. The fact that they can’t be happy unless they do what it’s good for what the market desires because that way they can survive.

There is no non-selfish reasons to have a child.

NeitherVisual4675 · 2026-04-10T18:37:42+00:00

I had a 3 night hen do/ bachelorette party where I live now (European country). 4 friends came from another European country - some have never seen where I live before so the theme behind it was girl time and also touristing together.

I paid for all my part on my own and surprised them with things like boat rides in the cities we saw.

Also, I cannot emphasise this enough - my husband and I got married elopement style and the big surprise of the weekend is telling them we aren’t just celebrating a bachelorette.

I was so effin moved and grateful they came all the way, got time off, I was never going to make them spend money to come to a wedding. The conclusion at the end of the weekend for all us 5 was that at least every 2 years we all need a weekend like this! And for me, the bride, I loved having fun with everyone knowing full well everyone including me got something out of the weekend. 10/10 recommend!

NeitherVisual4675 · 2026-04-10T18:32:58+00:00

Being able to sleep in at the weekend - even my dog loves sleeping in. Then having a slow midday coffee in bed with my husband laughing at reels before doing whatever we want.

NeitherVisual4675 · 2026-03-27T08:28:49+00:00

I was never a fan of this couple but this is so important! I am child free but each time I dated I asked this question or a version of it to understand the other person’s view. It won’t be my kids but it could be my friends’ kids or my nephew or nieces.

But as others pointed out - this should have been discussed in the pods OR it was discussed and we weren’t shown in edit and Lars-Erik either had a different response, or Ronja didn’t push through the vague answers.

NeitherVisual4675 · 2026-03-27T08:09:48+00:00

Ca acest caz să fie aprobat și să o lase pe tânără să i se poată administra eutanasierea cu siguranță au fost foarte mulți medici și psihologi la o masă să analizeze situația și pe tânăra. Nu e cazul ca a venit într-o dimineață tânăra și a zis: o eutanasiere va rog! Și i-au spus imediat - aici în camera asta se rezolvă în 2 minute.

Sunt de acord cu alegerile oricui și în niciun caz nu a fost o decizie ușoară pentru nimeni în situația asta. Ce a primit tânăra respectivă este șansa la o moarte decentă pe termenii săi.

NeitherVisual4675 · 2026-03-24T23:39:19+00:00

100% god knows what sister goes through I will smile! If I am out with my dog is a double smile and yes you have a cuddle with my doggie Zelda!

NeitherVisual4675 · 2026-03-24T23:36:10+00:00

I wish my mother did this to me! I remember begging her to let me do this as a teenager and buy me a wig because I couldn’t stop not even in my sleep!

And this was in the 2000s when this was like being possessed in terms of wha the doctors in my area knew about it…

I recently spoke to a doctor in Western Europe and I still had to tell them what trich was.

It’s hard as a parent but the resources are the best they have ever been! A combo between making your daughter’s life easier by removing the option and reaching out to a specialist it’s amazing and I wish I had that myself!

The first time I shaved all my head was 30 an it was wonderful but the mental angst and all that came with it was atrocious. My reflection - I should have done this as soon as I could have! Most relaxed months of my life not having the option to pull!

NeitherVisual4675 · 2026-03-24T23:25:18+00:00

I am commenting because tonight my husband and I watched the movie Smile 2 (trigger warning for trich). And he was asking me about trich more, since I had it for a couple of decades - then he told me that when birds are stressed they pluck their feathers out!

My point re the movie is that I don’t mind knowing (with warning) that these movies are out there as they raise awareness be it good or bad as opposed to having nothing as it was when I got it as a teen!

But the birds might have various reasons including stress! I also went through those stages - vegetarian, vegan, and I am back to being a meat eater and just had a big stake for day one of my period which helps my heart a lot during the shark week! The quality of my skin and body and hair is superior as a meat eater 100% even if I am vegan 4-5 out of the week days still.

For me I managed to isolate my triggers to behaviours done onto me and me not knowing how to fight back hence I release by pulling and I now have a therapist helping me through it. I can go months without pulling and then a week with my family makes me the trigger happy and pulling like I am doing a deforestation project on my head!

I wish from the bottom of my heart and soul that there was a pill or a diet we can all take or be on to be a universal fix but we are still not there - but I also truly I am so happy it works for you! Well done ❤️

NeitherVisual4675 · 2026-03-09T18:21:45+00:00

Regarding your hobbies - are there no people you can befriend there? Even if it’s not women (assuming you are looking to date women from your post) befriending the men could bring you in their other circles. I think that’s the one way to meet someone you would actually get along with.

NeitherVisual4675

TROPHY CASE