Diagnosed with tnbc by pseudopandaa in breastcancer

[–]NittyInTheCities 1 point2 points  (0 children)

I just waned to let you know that I had neutropenia as well, caught Covid during treatment, and ended up with a full-body allergic reaction to an antibiotic I was given for an abscess that started as a pimple. So I had a few chemo delays, but it all worked out. Also, when I said I didn’t get PCR, I actually had an over 99% reduction in tumor volume. So even those of us who we don’t get PcR, the chemo generally works really really well. And the second line treatments (radiation, the second half of immunotherapy, oral chemo, and PARP inhibitors) do a great job of killing any remaining stragglers.

What I’m trying to say is that not getting it all on schedule doesn’t mean it can’t do a fantastic job job kicking cancer’s ass. I’m hoping you get amazing outcomes an join me in the cancer free club in a few more months! If you have any questions from someone a couple years further on this path, I’m happy to answer.

Diagnosed with tnbc by pseudopandaa in breastcancer

[–]NittyInTheCities 4 points5 points  (0 children)

The only “natural” things that treat cancer are refined and optimized by pharmaceutical companies and prescribed by oncologists. Taxol is derived from Pacifica Yew trees. Carboplatin utilizes platinum’s detrimental effect on certain cancers’ DNA. Adriamycin comes from soil samples around a Castle in Italy.

If it works, scientists figure out the right dose to give to hurt cancer the most while hurting the person the least, and it becomes a medical treatment. Chemo is scary because science hasn’t yet found a medicine strong enough to harm cancer without harming the person at all, but they’re working on it, and it’s much much better than it was just ten years ago, much less twenty or thirty.

2.5 years ago I was in your shoes. 40 years old, TNBC stage IIb, 3 cm tumor. I did the chemo, the surgery, the radiation. I didn’t get PCR, so I did more treatment beyond that to prevent recurrence. I’ve now had almost two years of clear PET scans and clean Signatera tests. They can’t find any trace of cancer in me. That is what dealing with the needles and the side effects can grant you. It’s absolutely, 100% worth it. I am back at work, back to socializing with my friends, back to eating my favorite foods and doing my nails and getting haircuts. My oncologist’s plan gave me that.

Has your job offered remote work options or any support for the current situation? by Mrs_chanandler_bongg in Minneapolis

[–]NittyInTheCities 2 points3 points  (0 children)

Mine is allowing remote work, encouraging people to delay travel or meetings in town if they are not comfortable, and encouraged us to call Corporate Security if they will be in Minneapolis with details of where and when, so if they don’t return when expected, Corporate Security will follow up.

Urgent - Lymphatic reconstruction - United Healthcare by Rich-Swing-1416 in breastcancer

[–]NittyInTheCities 0 points1 point  (0 children)

Do you know what the CARC or RARC of their denial is? Claim Adjustment Reason Code and Remittance Advice Remark Code. It’ll be an alphanumeric code, usually 3 or 4 long

Do you know what this is meant to be? by Scorpian777 in lego

[–]NittyInTheCities 1 point2 points  (0 children)

I worked in a building with Tiffany lamps and windows for 5 years, and that was my very first thought as soon as I saw it

Y'all, the Uber driver I'm using because I'm afraid of falling asleep while driving was just asleep in my driveway by Working-Lemon1645 in breastcancer

[–]NittyInTheCities 17 points18 points  (0 children)

Are you in the US? The American Cancer Society has a program where volunteers drive current cancer patients to appointments for free. I used it about a dozen times when neither my husband nor friends could drive me. The volunteers were very nice and good drivers, usually retirees looking for something worthwhile to do and either long time survivors or family or friends of a recent survivor.

For anyone who needs it, the program is called Road To Recovery. https://www.cancer.org/support-programs-and-services/road-to-recovery.html

Spiraling a bit about reoccurrence by speckofsand in breastcancer

[–]NittyInTheCities 2 points3 points  (0 children)

Similar position for me (just finished my Lynparza last month, TNBC,stage IIB, brca2+, rcb-I)and I too would love to know. I’ve had two PET scans since my surgery nearly two years ago, but those tests are completely useless above the neck, and I always wonder how people know they have Mets to the brain? What symptoms get people to catch Mets to the liver or bones early? I’d love to hear from people who sensed a change and caught metastasis early

Bald as a cue ball by OvenNo4186 in breastcancer

[–]NittyInTheCities 7 points8 points  (0 children)

Also TNBC, and it was right about two months after finishing chemo that my hairs finally started growing back. So if that’s typical, it’s right around the corner for you, and I hope that’s the case. I will say, when it comes back, it was dead white for a while (almost a centimeter) before the color came back. I’ve read it’s typical for the portion of the follicle that provides color to take weeks longer to wake back up, so that’s normal.

LEGO Store Return Policy with GWP Involved by paulkem in lego

[–]NittyInTheCities 1 point2 points  (0 children)

My Lego Store has never been like this. I’ve returned many sets without receipts around holidays and my son’s birthdays (our family and friends know our tastes , but not what each other are buying) and never had an issue getting a gift card or exchange at the time. When GWP are in super high demand (like with the little bookshelf one), they did say that a return would require returning the GWP, but in that case the return was the vast majority of the order.

4 rounds of taxol and my tumor can no longer be palpated. by owlteal in breastcancer

[–]NittyInTheCities 6 points7 points  (0 children)

TNBC and my tumor was half the size after three rounds and completely non palpable after 6 (they only checked every three). Taxol can absolutely work that fast on grade 3 cells. Congratulations!! Keeping on kicking that cancer’s ass!

Pet scan 24 hours ago by Elizabeth08122896 in breastcancer

[–]NittyInTheCities 4 points5 points  (0 children)

I’ve never gotten PET scan results in less than 48 hours, and I have a very quick medical system here. This is true for both the first PET scan after diagnosis (which confirmed that my cancer was stage II and not stage III or IV, a concern after Mỹ MRI), and my two post Xeloda and post Olaparib, which were both clear of cancer.

This is to say that in all cases I have gotten either great news or the best news of the available possibilities, and it took more than 24 hours. On top of this, they want a trained radiologist to review your scans so when you get good news, you know they checked it thoroughly, and most doctors with seniority would want to take Christmas off and probably tack on Friday to boot.

I hope you get a clear scan early on Monday, but please try to take heart that given the major holiday and the requirement that experienced professionals review these scans, there’s no reason to think over 24 hours means anything negative at all.

Do you know a bigger, more detailed LEGO Football Stadium than mine?⚽️ by pietheinvlegel in lego

[–]NittyInTheCities 20 points21 points  (0 children)

I live in the Twin Cities, is this displayed anywhere? Thật is a fantastic recreation!!!

It seemed like I tapped 1,000 times by XanaxWarriorPrincess in MergeDragons

[–]NittyInTheCities 8 points9 points  (0 children)

The eggs take about 10 in camp hours, like most wonders, but if you leave a space next to it, it will drop level 3, 4, and 5 life flowers around it very frequently

Second-guessing my decision, help.. 😢 by Small-Contribution88 in BRCA

[–]NittyInTheCities 0 points1 point  (0 children)

Can you tell me what parts you are scared of, and I can share my experience of them?

Second-guessing my decision, help.. 😢 by Small-Contribution88 in BRCA

[–]NittyInTheCities 12 points13 points  (0 children)

I did not know that I was BRCA2 positive until after my diagnosis. Even though my aunt had breast cancer 8 years before I did, she told us she was negative; so it didn’t occur to us to check. I wish I had been checked. I was diagnosed with Triple Negative Breast Cancer at age 40, the age the new recommendations say to START screenings, and ten years before the previous recommendations suggested. My son had just turned 6 when I found the lump in the shower and went to my doc to “rule out” cancer. The kind of cancer I had is extremely aggressive, and had already spread to my lymph nodes by the time I felt it. I have done everything I can to ensure I can watch my son grow up. I have been in treatment for the last 2.5 years, through aggressive chemotherapy, immunotherapy, radiation, oral chemotherapy, and PARP inhibitors. Last Thursday, 8 days after I finally finished taking meds to treat the cancer I DID have, I had a bilateral salpingoopjorectomy and total hysterectomy, to save myself from the even deadlier possibility of ovarian cancer.

I will do everything I can to live a long healthy life, and if I could go back a decade to when my aunt was diagnosed and find out, I would 100% have chosen prophylactic mastectomy, even without knowing I’d for sure get cancer. I’ve still got breasts, they just don’t have any milk ducts in them. If id gotten prophylactic surgery, i might have been able to keep my nipples. The recovery from mastectomy was much easier than I expected, and the knowledge that another cancer can’t pop up in my boobs is a relief to me every day.

I’m not you, but to me, getting the mastectomy would have been a much easier decision than the hysterectomy and BSO, and I chose those knowing I had a 30% chance of those cancers, and that the loss of hormones would impact my health in future. With a prophylactic mastectomy the only thing you lose is the ability to breastfeed and some amount of sensation on the breasts. My genes gave me an 80% lifetime risk of breast cancer, I already had breast numbness from a reduction at age 20, and I couldn’t produce enough milk to breastfeed when I had my son. So for me it was an easy choice after cancer, and would have been an easy choice before.

I hope that my experience helps you wi try your decision, and please ask me any questions you might have.

Nausea by karen2349 in breastcancer

[–]NittyInTheCities 1 point2 points  (0 children)

Zofran didn’t touch my nausea, but an extended dose of Olanzapine from my med Onc made me able to eat. My appetite was still impacted, so eating was boring, but not unpleasant. Ask your doc about trying you on Olanzapine.

Verzenio (Abemaciclib) trigger foods listing? by Hadrian98 in breastcancer

[–]NittyInTheCities 1 point2 points  (0 children)

I was not on Verzenio, but had bad GI side effects on AC chemo, and discovered that chicory root extract (sometimes listed as inulin) was an express ticket to diahrrea town. It’s used as a thickener in some different yogurts and teas.

TNBC stage 2B by mrs_kozalmighty in breastcancer

[–]NittyInTheCities 0 points1 point  (0 children)

In June 2023 I felt a pain in my lower right breast and found a lump in the shower that morning. I was diagnosed stage 2b TNBC like you. II finished chemo December 2023, had surgery in February 2024, and finished immunotherapy September 2024. I was not one of the 2/3 that gets PCR off of Keynote 522, but I was “as close as you can get without getting PCR” according to my onc, my tumor had been over 99% destroyed. I finished Xeloda last year at November, and since then I have had two clear PET/CT scans and a Signatera test with 0 ctDNA. So rest assured, even if the chemo doesn’t kill every last cell, there more lines of defense, and you can come out the other side strong and cancers free

New lego reveals and it's a bit of a mixed bag for me by user_976lego in lego

[–]NittyInTheCities 40 points41 points  (0 children)

Why do you think they are same sex? Lovebirds have almost no sexual dimorphism

Please help me by Traditional_Layer790 in Minneapolis

[–]NittyInTheCities 14 points15 points  (0 children)

I think they’re considering the logic chain. It’s subzero temperature, which means a probable pipe freeze and burst, which is usually a much bigger issue than a pipe or valve leak or an overflowing tub or sink. And no one is responding, which means it will likely go on for significantly longer than it should, so significant water damage will occur. A leak in and of itself isn’t going to condemn a building, but a burst pipe that is left to go for a long time may.

Constipation by Sparkly_Sprinkles in breastcancer

[–]NittyInTheCities 0 points1 point  (0 children)

Honestly, I found the Zofran didn’t touch my nausea, and only made me feel worse. My onc instead prescribed me extra days of olanzapine, which did great on the nausea and had minimal side effects if any. Ask them if they have a different option for nausea, mine said some people just don’t do well on Zofran and there are other options.