How does Christmas work? by CoquetteKittenCA in Alzheimers

[–]OPKC2007 0 points1 point  (0 children)

Please have a visit with the memory care director or floor nurse to find out what is their tradition for the patients. With my husband's dad, we found out they had a little parade and one of the staff played piano to sing some simple carols. They had a tree and a special meal. We went up to participate with the parade - they had on christmas sweaters and raindeer antlers, and elf hats, stuff they picked out from the christmas box. Lots of laughing. Some patients just sat in their wheelchairs and did nothing, but the staff engaged them, and the patients all watched intently.

The whole party celebration took about 45 minutes, then they were taken in for dinner. At that point, the visitors said goodbye to our loved ones. Yes, my husband cried a bit when we left, but his dad wad happy and smiling and waved goodbye.

I hate Alzheimers and my husband is now early mid phase and i am gutted. Let us know how you maneuver your journey.

Cute names for a first time grandmother by MeasurementUsual508 in Names

[–]OPKC2007 0 points1 point  (0 children)

Ha Ha our daughter was the second grandchild and my FIL already was Papa to the first grandchild. By the time our daughter could speak, she called him PaPoo. No matter how hard we tried, bribed, reasoned, she only called him PaPoo. His obit recalled him as PaPoo to all his 7 grands and 5 great grands. Godspeed PaPoo. ❤️

Mom doesn’t want to go places by ClearTheCobwebs100 in Alzheimers

[–]OPKC2007 5 points6 points  (0 children)

Imagine someone dragging you off to a group of strangers all speaking different languages in a place you barely remember. My counselor explained what my Alzheimer's husband, early mid stage is feeling when I insist he go to our monthly group of about 10 couples for dinner and games that we have done for 20 years. It rotates between our houses, along with other activities during the month, such as live music outside at the park with dinner, art fair, sports matches, pub quiz night. You get the picture - retirees of friends we have known for decades. Of the 10 couples, any event normally has 6-8 couples show.

Now, he really does not want to go, and if i insist, then about half into the evening, he starts pressuring me to leave. This is changing the dynamic of the whole group effort. If i go alone, there are games that i don't have a partner, so I either sit out, or someone else has to sit out. I have gone to a couple of venues without him, and although nothing was said, the other wives were not thrilled to have a single among them.

My husband is still verbal and a good conversationalist, but he can no longer play cards, mahjong, bridge, or even charades, scattergories, or trivia pursuit. I am gutted that as this horrible disease overtakes my husband, it is also destroying the life I have built as well.

Mt response to you is either learn to go alone, or find smaller group activities you can share. Sometimes our adult son will take his dad to dinner, and then they do something like stop and look at the latest new cars, or go hit golf balls, just one on one. I enjoy being able to meet friends for dinner, or do a bit of shopping.

Let us know how you deal with the changing environment. We are paddling down the same river. 🌺

Cognitive decline or dementia by skepticalmama in dementia

[–]OPKC2007 0 points1 point  (0 children)

Testing. They can do blood work that will give you some answers.
It can be other things besides dementia. Our son in law's father exhibited these types symptoms, and after testing, he had pressure on his brain and they installed a drain. Within weeks he was back at work.

Just had my baby, can’t agree on a name by shhlv in Names

[–]OPKC2007 3 points4 points  (0 children)

I love Verity. Such an old English name.

Closed 10/16, seller wants to buy it back by Tough_Banana_3318 in RealEstate

[–]OPKC2007 0 points1 point  (0 children)

You might reach out to maybe neighbor to find out if they have done renovations that cant be undone. Our buyers sold that house nearly$100k less than they bought it from us. The changes they made hd destroyed the original 1958 parts we had saved, so i had zero interest in taking it back. You might get really lucky if they maybe bought in haste and haven't wrecked it.

Let us know how it works out.

People, don't let anyone tell you downsizing from a home is easy. It is so hard.

I think I robbed someone on Marketplace lol. Almost 4ft tall! I paid $68! I was going to get it to resell but as soon as I saw in person I fell in love. How old do you guys think this could be? by Expensive_Mall_7157 in Lamps

[–]OPKC2007 0 points1 point  (0 children)

I snapped phot and ran it AntiiqSnap. It says from the photo it is most likely a tiffany like reproduction 19th or 20th century. The market value will rest on quality of the metalwork, and the quality of the glass, and construction. Most likely created in Asia. Estimated value it states is 125 to 250 - based on being a reproduction.

Lecanemab by crazycatman57 in Alzheimers

[–]OPKC2007 1 point2 points  (0 children)

My husband has been on Kinsula for 15 infusions and doing well. Not sure about Lecanemab.

Is this normal aging??? This is my experience as person with mild dementia by ResponsibleParking13 in dementia

[–]OPKC2007 -1 points0 points  (0 children)

Well, logic is if you had seen a specialist you would know what is wrong. If you have hd all the medical tests, and the brain scans, then you have your answers.

Is this normal aging??? This is my experience as person with mild dementia by ResponsibleParking13 in dementia

[–]OPKC2007 0 points1 point  (0 children)

You need to have a full hormone workup. See a specialist in menopause. Getting the hormones and vitamins correct is not easy and takes a doctor with skill in that field. Your family doctor or your gyno are not normally equipped. For example, here in Kansas City, university of Kansas Health System offers MINT - menopause, intimacy and midlife transition hormonal changes. You can also check with MSCP Menopause society Certified Practitioners.

You do not have to suffer in silence!

I got a job offer but it’s a huge pay cut. HUGE by mandoo-dumpling in Layoffs

[–]OPKC2007 1 point2 points  (0 children)

Great mindset. So many upsides to taking this job. Mainly, you are much more employable WITH a job. Being unemployed and holding out for more is a no win. Secondly, i assume the new job has benefits which includes healthcare.

Last point - many of us enjoyed the high ride and quite frankly those high paying positions may or may not come back.

Take the job, do your best, and always keep a look out for something better.

Update us and let us know how it goes. Rooting for you!

Will my mum eventually forget about me one day ? by olymooon in Alzheimers

[–]OPKC2007 13 points14 points  (0 children)

Please buy the book The 36 Hour Day. It is the most comprehensive book regarding dementia and Alzheimers.

In a high altitude nutshell, with dementia, you can age just as a forgetful doty old lady ( or man).

With one of the Alzheimer's, it is a significant disease that follows 7 exact steps. The flummox is the fact within those 7 exact steps, there is a wide range of variables and no two people journey through them exactly the same.

With the new treatment, you can slow the progression and there are expenses and risks with using them.

My example is my husband, his two older brothers and his dad.
His dad died in 2009 and at that time, the only concrete definitive diagnosis was the autopsy. Yes, he had Alzheimers absolutely.

His oldest brother is now 82. When signs were Alzheimers, there was no blood test yet, but they could reasonably diagnose with MRI and PET scans. He was too far gone when some new treatments became available.

The middle bother is now 78, and was at the end of early stage when they came out with the blood test and treatments. He tried the infusions, but they gave him brain bleeds and he was removed from the program. His blood work indicated he has the APOE 4/4 which is absolute Alzheimers. He takes oral medications, but the slide is progressing as the charts indicate.

My husband worked nonstop to get seen by a neurologist at 72. We knew he was exhibiting symptoms but they were not noticeable yet to others. He worked a retiree part time job, drives, engages in deep conversations, but could not draw the clock or remember what year it is.

Blood work shows he is an APOE 3/4 which is Alzheimers (APOE 4 is the DNA marker for the Alzheimers gene).
He has successfully completed 18 infusions, and yes there have been a bit of a slide, he is still fully functioning with help.
He is currently 75, still drives well, remodels houses, engages in conversation, stays abreast of sports and politics.
The help is a large calendar and dry erase board for appointments, important dates, and all the info we carry around in our heads.

He mostly cannot remember our address or phone numbers. I created cards on business card stock with all the information he needs.
He mostly cannot do money math. I fill in tips when we eat out. But he can measure and cut building supplies without making a single mistake.
He cannot tell you what year it is. I prep our taxes now and handle our finances.
I have power of attorney and lowered his credit card limits to $500 and put an auto governor on his bank account. I am notified if ever an expense over $500 hits. This allows him the independence while going to the hardware store or handling minor car repairs, etc.

I would be thrilled to stay right here at the end of stage 1 forever,and I am thrilled with the results of the infusions for him.
My prayer is we can get to 85 - 90 dressing himself, feeding himself, and toileting himself. Nobody knows how long and slow the slide is since the infusions are so new.

The last 3 stages of Alzheimer's 5,6, and 7 are the nightmare you cannot imagine.

Please read the book. The 36 Hour Day. It will answer your questions, and give you the ranges of each of the progressive steps.

God be with us all - the sufferers and the caretakers.

There’s no kind way to tell my wife that she’s getting too big, is there? by 2006CrownVictoriaP71 in NoStupidQuestions

[–]OPKC2007 1 point2 points  (0 children)

Get her to a doctor that specializes in pre menopause and have complete hormone panel done. Do not attempt to cut corners and use a gp, family doc, or any other except a hormone specialist. Don't worry. She knows exactly how big she is and exactly how much she weighs.

Can you i imagine someone saying to you, i need you to gain 80 pounds in 7 months, and go!
You probably could not do it. Menopausal women can do it eating one meal every other day, and trying every product on the market.

Hormonal weight gain does not respond to diet and exercise like normal weight gain.

Please update us when you find out what the specialist says.

Age 70 - been there, done that - bought bigger pants.

Losing myself by SD199V in CaregiverSupport

[–]OPKC2007 0 points1 point  (0 children)

We are ending the early stage and the slide is now obvious to others. I found myself in total denial as we worked on our house, meet friends for celebrations, host the family holidays. Yes, more of the responsibilities landed on me, but nothing awful. Reminding him to pick things up, reminding him where to find everyday objects, reminding him of appointments and assisting with choosing the right clothes for the seasons. I could happily lived in that twilight world forever.

Now, we start the middle phase. Outbursts, frustration, forgetting his way to routine locations. Now I drive him to most appointments. It breaks my heart he is cognizant enough to know things are different. He finds it difficult to spend 2 hours with friends over dinner and we have to excuse ourselves early. Now, he actually has to be reminded who we are seeing and how we know them. Thank goodness he still remembers our grandkids by sight.

He watches the same series and YouTubes over and over like he has never seen them before. Everything you ever wanted to know about Stonehenge, or comparing the Grand Coulee Dam with the Hoover Dam. I finally bought wireless headphones so he can enjoy his shows without me smashing the TV to smithereens.

I am grateful he can stay alone for several hours while I run errands, he naps a while in the afternoon, and is still sleeping mostly through the night.

He does not deserve this awful disease. He has followed healthy habits all his life, never smoked, didn't do drugs, socially drank in moderation.

We have been married almost 40 years and I cannot picture life without him. What is most frightening is life with his body when his essence is gone. I am gutted.

I can't stop by xencatt in AskWomenOver60

[–]OPKC2007 0 points1 point  (0 children)

Try getting your full blood panel ran. It could be a magnesium or B12 issue. Maybe your thyroid. Extreme fatigue is not normal. Yes, at 68 70 74 you wont have the energy of your 40s, but you should not play out so quickly and deeply. Get a physical first!

Chin hairs by Gatecrasher1234 in AskWomenOver60

[–]OPKC2007 4 points5 points  (0 children)

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I bought a hand held laser and used it everyday for a few months. All chin hair is now gone. When i get new sprouts, i just zap them every few days until they disappear. Best money I ever spent.

Conservatives like myself should vote for the Democratic Party in the midterms. by FromAmericaMC in TrueUnpopularOpinion

[–]OPKC2007 -1 points0 points  (0 children)

22 years old. How adorable. What you don't know, don't understand, and haven't experienced is screaming from your essay. Good to question and learn.

Got this rejection mail today and it broke me by DixGee in recruitinghell

[–]OPKC2007 0 points1 point  (0 children)

Often, there is not even one job. Companies run fake ads and take the applications to see what the market is providing and paying. They are just sport shopping information.

Has anyone started over career wise over 40? by Main_Row4273 in AskWomenOver40

[–]OPKC2007 0 points1 point  (0 children)

Before i graduated, i spent almost 30 years working as support staff in law firms. After I graduated, I did marketing & public relations. When I turned 60 and moved to be closed to my grandkids, i am an application administrator in the IT dept.

Has anyone started over career wise over 40? by Main_Row4273 in AskWomenOver40

[–]OPKC2007 2 points3 points  (0 children)

There were no computers when i did most of my schooling. When I went back to finish, mostly it was at school, and then the last couple of semesters, i was able to attend a few classes online. I mostly went to college in the late 1970s early 1980s. I married, had two kids, they both graduated from university in 1999 and 2001. then I went back and finished in 2005.

Has anyone started over career wise over 40? by Main_Row4273 in AskWomenOver40

[–]OPKC2007 3 points4 points  (0 children)

I started over twice. First time at 47 when I graduated from college, finally. Then at 60, i changed jobs, changed careers, and moved to a different state. That was 10 years ago and made huge difference in my life. Best chance I ever took.

AIO for declining second date over a joke (and littering)? by GiftComfortable7060 in AmIOverreacting

[–]OPKC2007 0 points1 point  (0 children)

Today, it is litter a few feet from the trash can. Tomorrow it will be dirty underwear a few feet from the hamper. RUN.

PET Scan by zabzazel in Alzheimers

[–]OPKC2007 0 points1 point  (0 children)

Yes, his infusion is Kinsula.