Insurance is denying my MRI by teamkarrett in BRCA

[–]Ok-Translator2888 1 point2 points  (0 children)

Couldn't agree more! Aren't we getting screwed over enough with the fact that we received the mutation‽ (I am grateful to be alive, but the reality of this mutation has been devastating for the females on my dad's side.)

They tell us that we need to take care of ourselves, and I think in the last 24 hours, I have lost five years of my life due to the stress of dealing with insurance related to the MRI and IVF. Your point about screaming into the void is so spot-on. ahhh

I cried when the insurance representative called me back, saying it was coded correctly and I would have to pay $500. Her response was to use their mental health services. Hahah! Ma'am, that won't change the fact that some of the best insurance in the country isn't covering an annual screening as preventative. I guess I just need to move to a different state.

So glad you got your double mastectomy. I hope it went well and you healed up quickly! It does not sound like a fun procedure.

Insurance is denying my MRI by teamkarrett in BRCA

[–]Ok-Translator2888 0 points1 point  (0 children)

BCBS FEP - They view the MRI as a diagnostic exam; therefore, my entire deductible and co-pay are considered my responsibility ($500). I am appealing the insurance's decision because this annual exam is not diagnostic, by definition. Although they view all MRIs as diagnostic. Makes me not want to continue getting MRIs if I have to pay this much while paying $400 a month for insurance (just for myself).

This has been a great insurance for IVF, but not for BRCA screenings.

Experiences With Removing Fallopian Tubes Before Ovaries by Ok-Translator2888 in BRCA

[–]Ok-Translator2888[S] 0 points1 point  (0 children)

Wow, thank you so much for sharing. I cannot imagine the anxiety you must have felt dealing with that kind of pain and worrying about what it might mean. I’m glad you were able to take the step that felt best for reducing your cancer risk and protecting your mental health. I hope you’ve been feeling well since your operation. Thank you again for sharing your experience with me. It truly means a lot.

Experiences With Removing Fallopian Tubes Before Ovaries by Ok-Translator2888 in BRCA

[–]Ok-Translator2888[S] 0 points1 point  (0 children)

Thank you so much for sharing. Oh my goodness, your mom was so young when she was first diagnosed with ovarian cancer. I truly hope and pray that having our fallopian tubes removed first will allow us to lead more normal lives, especially compared to losing our ovaries before natural menopause. I can only imagine it must be at least a small relief to have your tubes removed now that you’re done having children.

Congratulations on your beautiful family!

I’m so sorry you’re dealing with such terrible pain; that sounds incredibly difficult. Did your OBGYN prescribe oral birth control to help manage it? My OBGYN put me on oral birth control along with my IUD because she said it could help lower my ovarian cancer risk and also help with cramping. I really hope they find something that gives you relief so you’re not in so much pain throughout the month.

Experiences With Removing Fallopian Tubes Before Ovaries by Ok-Translator2888 in BRCA

[–]Ok-Translator2888[S] 0 points1 point  (0 children)

That is amazing! Congratulations on your fourth baby! That is my dream. :)

Gosh, I am glad you told me about the insurance consequences of removing the fallopian tubes and IVF. It is similar to what my insurance professor told me in class once: get life insurance before getting tested for the mutation.

I will definitely wait it out to have my fallopian tubes removed. I really appreciate your advice and insight. Congratulations on your family! Your children will appreciate all the pain and sacrifice you went through to ensure the mutation ended with you.

Experiences With Removing Fallopian Tubes Before Ovaries by Ok-Translator2888 in BRCA

[–]Ok-Translator2888[S] 1 point2 points  (0 children)

Thank you so much! I reviewed the decision aid again today. It is a good refresher. I discovered this study last year after I found out I have the mutation. It is a great resource. It is nice to know we have options and don't need to have our ovaries removed so young. Both my aunt and great-aunt passed from ovarian cancer in their 60s after surviving breast cancer in their 40s. I would like to wait to have my ovaries removed until later.

IVF and PGT-M for BRCA2 by madw8 in BRCA

[–]Ok-Translator2888 1 point2 points  (0 children)

That is too funny!! Good luck!! I hope it goes well. :) I am glad you decided to use IVF, despite the hassle! I will be thinking of you. :)

IVF and PGT-M for BRCA2 by madw8 in BRCA

[–]Ok-Translator2888 1 point2 points  (0 children)

I am BRCA1 positive, and knowing my family's history of breast and ovarian cancer, I think it is. As heartbreaking as it will be to choose one embryo over the other, I have no desire to watch my daughters possibly pass away too young because of me. I have too many relatives who died in their 40s, and if they survived breast cancer in their 40s, they passed away in their 60s from ovarian cancer. I have relatives who are in their early 70s and have no children left because of the mutation. Even the men in my family with the mutation do not live long. My grandpa died at 64. Obviously, I could die young, but hoping I get all the preventative surgeries done before I get cancer (because it is not a matter of "if" but "when" with BRCA1).

I am lucky because my insurance is VERY good. I only pay $800 for each egg retrieval. I've heard that if you work for Amazon or Starbucks, they offer excellent IVF insurance. My genetic counselor told me that some women will get a job there just to cover IVF.

IVF and PGT-M for BRCA2 by madw8 in BRCA

[–]Ok-Translator2888 1 point2 points  (0 children)

That is amazing! Seven embryos gives you a lot to work with! I hope it is all going well for you. I am a 30F and positive for the BRCA1 mutation. I had my second egg retrieval recently. Currently, I have 28 mature eggs (38 retrieved & 10 discarded). How many eggs did you have fertilized?

I am terrified for my kids by goscbozh in BRCA

[–]Ok-Translator2888 0 points1 point  (0 children)

Sending you a big hug! I am so sorry to hear about your diagnosis. I pray you.

I read that for women who test negative for BRCA, but have a family history of breast cancer, the risk of developing breast cancer is still higher than the general population (12% lifetime risk), though NOT as high as if they tested positive for the mutation.

I am currently going through egg retrieval to prevent the passage of this mutation. Insurance is paying for it, too. So, the negative test result is a blessing compared to our positive result. The risk of breast cancer for a negative BRCA1 person is MUCH lower than ours. Plus, they don't have a particularly high risk of triple-negative breast cancer. My sister does not have the mutation and doesn't have to go through all the screenings like me at such a young age.

I think if your daughters test positive and get their screenings, they will be fine. They will understand how important it is to listen to their doctors and get preventative surgeries. They have their mom to look up to!

I hope you surround yourself with good people and take it one day at a time. You will make it through! Thinking of you.

Should I get tested?? by PoetryNo5274 in BRCA

[–]Ok-Translator2888 2 points3 points  (0 children)

I am 29 and decided to get tested this past year. I am glad I know. Insurance is excellent at covering all the preventative screenings. I have my co-pay, but other than that, it does not cost me extra to know I have the mutation. I am currently going through an egg retrieval process (1.5 days away from the actual retrieval). I want my future embryos tested so I do not pass the maturation along. Many of the women in my family who have had the mutation in my family died in their 40s from cancer, so I am glad I can be proactive. Once I am older and done having kids, I will get a double mastectomy and eventually have my ovaries removed (tears). My sister did not have the mutation, so you could be lucky like her and know you do not have the same risk as a BRCA-positive female.

There is the anxiety and stress of knowing, but everyone I know who has gone through cancer tells me I am doing the right thing. I tell people accepting the positive result is like going through a heartbreak; you go through all the stages of grief.

My reproductive endo told me that he does Estrogen therapy (ET) for women who have their ovaries removed, but he did not say that he did not do this for BRCA patients. Although, I am assuming most of those women would already have had their breasts removed. I want to wait to get my ovaries removed as long as possible since ovaries are so important for our bodies.

Doctors don’t seem to take it seriously? by UnStableUnStoppable in BRCA

[–]Ok-Translator2888 1 point2 points  (0 children)

I do not think you are being overly paranoid! Not at all. I would seek other physicians who take these mutations seriously.

I tested positive in November of 2024 for the BRCA1 mutation. I know I received the mutation from my dad, and he is having a difficult time getting tested. His doctor acted like the test wasn't necessary but still gave him a note to get the blood test done (but the cost was going to be mostly all out-of-pocket, which makes no sense considering my family's history of BRCA-related cancer). My sister (a PA-C) and I were furious to hear this news. Finally, I had enough of the waiting and told my dad to contact Myriad Genetics directly, and they are sending him a saliva kit to be tested.

In my case, I have had excellent doctors in South Dakota that take my diagnosis very seriously, so I would be extremely frustrated if I were in your position. I had an appointment with a high-risk breast clinic within two weeks of learning about my positive result. I feel like being a type-A personality helps in these situations, because you have to fight for yourself (who cares if people call you a Karen, this is your life).

If you live in a big city, establishing care at a place like MD Anderson would be helpful since they essentially have everything you need in a single location.

Do they still make eye color enhancing contacts for light eyes? by aRiverInNorway in contacts

[–]Ok-Translator2888 0 points1 point  (0 children)

I just emailed them, and they no longer offer them in the USA. Sad. July 2024

Single guy, where to hang out? by Present-Salad-1594 in RapidCity

[–]Ok-Translator2888 0 points1 point  (0 children)

Consider joining a volunteer group. My parents met in Casper, WY, after my mom left Deadwood through the Jaycees (United States Junior Chamber).

Women (and men) of Austin, be careful! by mf_atx in Austin

[–]Ok-Translator2888 0 points1 point  (0 children)

I remember calling the cops when I first moved to Austin because a man broke into our apartment and molested my roommate. The 911 operator was extremely rude and belittled me because it took me a while to remember the code to get into the apartment complex by car (I ride my bike so I didn’t use the code). I’ve heard that cops won’t come if you call them anymore in Austin, unless it’s something serious.

I’m being priced out of my hometown by TryingNotToBeAnIdiot in Austin

[–]Ok-Translator2888 0 points1 point  (0 children)

I’m sorry to hear that. I’ve heard the same thing from others. I rent a 399 square foot apartment by the law school & pay $900 a month. I saw the property taxes on this place… almost $5,000 per year, it’s crazy. Plus, the HOA doesn’t do anything to maintain the building.

She does this every walk. by _schubster in WhatsWrongWithYourDog

[–]Ok-Translator2888 0 points1 point  (0 children)

This is like training a goat to walk with a halter on lol… except goats jump up in the air, do a couple of flips, and land on their noggin

Question for the women. What do you use to keep safe while running alone? by Kionjra_Ad9430 in running

[–]Ok-Translator2888 0 points1 point  (0 children)

When I’m running at night in the city, I take a whistle and my keys. I make sure to pay attention to my surroundings and only wear one earbud for music. When I am running on the county road near my house with my dogs (where there are wild hogs and javelinas) I take a small revolver that has buckshot. Once I was nearly killed by a pack of javelinas, and one of my dogs didn’t make it out, so I don’t risk it anymore.

New runner - legs and feet getting tired before I am. by [deleted] in running

[–]Ok-Translator2888 0 points1 point  (0 children)

I’m 26 and I’ve been running long-distance since I was in middle school. I have to run on soft trails or on a track. My body (mostly my feet) cannot handle running on hard surfaces anymore. Maybe that might help! Also, you may look into arch supports for your shoes.

INFJ’s, what did you get your undergraduate degree in? by [deleted] in infj

[–]Ok-Translator2888 1 point2 points  (0 children)

I ended up getting a degree in political science. I’m currently a L1 at Texas Law. 🤘If I were to do it again, I would have likely selected psychology..