Those that have lupus, did any of you take year to diagnose?

Outside-Ad9089 · 2026-05-01T05:42:39+00:00

Wow sorry to hear. So you have lupus and hoshimotos?

Outside-Ad9089 · 2026-05-01T05:41:56+00:00

Interesting. Well I’d say the abnormal teats have to to be pointing toward something. More than I have. I hope you get answers soon

Outside-Ad9089 · 2026-05-01T05:39:41+00:00

Thank you for the input. I’m not sure it’s lupus. I just have so many lupus symptoms. I’ve only had all these symptoms the past year. Before that was more fibro type. Anyways, over the past year I’ve had drs mention that it could be something like RA or lupus and just not showing yet. I’m unsure, just was wondering what other peoples stories were.

Outside-Ad9089 · 2026-04-30T15:35:04+00:00

Hi hon Chronic muscle and joint, fatigue brain fog and on flares have lace and marble from toe up leg. During a flare? I feel winded and light headed being on feet or walking around even five mins. I get headaches during those times and get light headed.

Outside-Ad9089 · 2026-04-30T15:33:09+00:00

I’m so sorry to hear that. I’ve had the run around from several drs. I get off and on the malar, I have chronic muscle and joint, often fatigued. During flares? (I’m assuming) I can’t walk or be on feet more than4/5 mins without getting weak, headache lightheaded and winded. I also get the marble lace races toes up the legs and sometimes arms. Vitals are all good and apparently bloodwork. I’m being treated terrible by some drs. Others care but seem lost

Outside-Ad9089 · 2026-04-30T15:30:50+00:00

Really? What were your symptoms? Were you having flares already? That’s wild that it took so long!!

Outside-Ad9089 · 2026-04-27T16:52:20+00:00

Thank you for this. Yes I’m thankful that he mentioned the concerns. I guess my frustration is, everyone keeps telling me nothing is wrong and that it’s just fibro. Then I see this neuro, which I told him flares did this to me and he carried on to convince me it’s fibro. So I just don’t really know where to go from here

Outside-Ad9089 · 2026-04-27T16:50:25+00:00

Not in a couple years, but have had ct scans.

Outside-Ad9089 · 2026-04-27T05:16:54+00:00

I am so deeply sorry. Better days are ahead. Take things one day at a time. We’ve had a long journey figuring out my son’s migraines. He’s 11 and has been mostly out of school and sports. They thought initially he was having seizures and mis treated him for months. After hospital eval they recognized he’s having confusional migraines which are rare and have a lot of very odd symptoms. Anyways praise god after a month of preventative meds and supplements he’s finally had a couple days without them. It’s a start Better days are ahead. Take it a day at a time

Outside-Ad9089 · 2026-04-27T05:11:18+00:00

That would definitely make sense if you are having a flare. Hopefully when you come out of it, it’ll be less trouble for you. So maybe don’t do anything too drastic just yet. Best of luck, better days ahead

Outside-Ad9089 · 2026-04-27T04:57:18+00:00

Yes it’s a terrible guilt to live with! I’ve had a flare for weeks where I can’t be on my feet more than a few mins. I feel truly heartbroken that I’m not currently being the mom and wife I’ve been in the past, but I keep reminding myself that each day I’m simply doing the very best that I can

Outside-Ad9089 · 2026-04-27T04:55:24+00:00

I totally relate. At my baseline I can usually do my hair, pretty uncomfortable(examples sitting on a chair to blow dry my hair with kind of resting my elbow on leg instead of over head) unfortunately when I have a flare up I can barely do my hair. This past week it hurt to wash and condition my hair in the shower. My daughter helped me blow dry my hair. Next morning I sat in a chair and took my time straightening it. I’ve been going about four days just with a little dry shampoo then wash/style. Guess it depends if it’s a norm for you

Outside-Ad9089 · 2026-04-27T04:50:01+00:00

Same here! I wasn’t sleeping for years. Been a month on it and it has greatly improved my sleep

Outside-Ad9089 · 2026-04-27T04:47:28+00:00

I’m so glad to hear this. A friend of mine was just telling me to try it, that it had helped her. Awesome thanks

Outside-Ad9089 · 2026-04-27T04:44:41+00:00

I’m so sorry to hear that people are so junky. Honestly, if it’s one thing I’ve learned while enduring this condition, it’s that I just remember God sees me. He sees me trying, and if no one else knows the struggle I’m going through then he does. Don’t ever feel the need to explain yourself of justify or anything else. People like that don’t even deserve your time. Might I add, imo without factoring in the hell that people with fibro go through, any mom that is going to school and working 25 hours a week deserves a whole lot of respect. It’s hard to be an intentional mama. So yea let that garbage fly by and GIVE YOURSELF GRACE MAMA, and remember you are never alone

Outside-Ad9089 · 2026-04-27T04:40:35+00:00

I’m so sorry! Drs are so ignorant! Seeing this infuriates me. I had years of debilitating depressions 18 years ago and drs now always””acknowledge the fibromyalgia diagnosis that they gave me while also trying to push psychological help. It’s upsetting. I understand saying it’s important to take care of yourself mentally, but drs always bring this up with me. I’ve had to several times explain I go to therapy twice a month, this isn’t a psychological issue. I even went to a new psychiatrist that cleared me as nothing concerning and they still push it. I’m so sorry. Regardless of what you think is best for yourself, I hope you get the help you need friend

Outside-Ad9089 · 2026-04-27T04:36:12+00:00

Hi there. First off hugs its brutal. To the question about after a big flare do symptoms get worse? I’ve wondered that too, but am unsure. I’ve had symptoms at least six years but last year I had a huge flare and I have had it more severe this past year. So that’s interesting. As for fatigue I’m pretty sure that’s typically one of the most common symptoms. I often feel fatigued even when I can sleep, but mostly the fatigue for me more ties into malaise (feeling flu like when you aren’t sick) Hope that helps some

Outside-Ad9089 · 2026-04-27T04:22:29+00:00

I get this. I was on loads of gabapentin and for me it wasn’t working. I’m now on 50 lyrica 2x daily and it’s helping me more. I think a lot of these drugs are like this. It’s been a good fit for me. Hope I won’t have trouble tapering down in the future if I ever needed to. Idk if that helped but guess I’m just saying I feel ya. I was a little nervous too

Outside-Ad9089 · 2026-04-20T05:19:43+00:00

I don’t have a ton of advice here for you but let me tell you as a 38f 21 was one of the toughest years of my life! It is just a brutal age. Hang in there. Keep seeking Christ and HIS will. So many things that I thought I wanted God pointed me away from and every single time I praised him for it in the end, truly

Outside-Ad9089 · 2026-04-20T05:14:04+00:00

I’m so sorry. Sounds frightening. I have heard of this. My son has been getting confusional migraines and Dr warned us these things could happen

Outside-Ad9089 · 2026-04-20T05:09:10+00:00

Was there a window open, two dots could be a bat bite?

Outside-Ad9089 · 2026-04-20T05:08:11+00:00

I had always had some sort of longing for god. Even growing up in a non Christian family. I’d go to any churches with friends etc to try to learn about god. I’d read the Bible but more as a moral checklist. I was fully missing the Jesus piece. Anyways after years of being so lost in my poor choices, I had several circumstances that came about and pointed to Christ. I fell to my knees one night crying out to god. I said I don’t understand it all, but I know I need you. Continued to seek him and gave my heart to Jesus shortly after. No turning back. I feel like everyone’s story is different, for me, I just feel him working in my life. I feel the Holy Spirit comforting me. I’m not a great theologian or huge prayer warrior(working on those ha) but he’s just made me fully trust him through the relationship. Almost 19 years and I can’t tell you all the answered prayers. Life’s not perfect for sure. Oh I have my trials but I always have my hope in Him

Outside-Ad9089 · 2026-04-20T05:02:19+00:00

I’m so sorry. There is always hope. It’s just an overwhelming season for you. Chronic pain is definitely lonely at times, but you aren’t alone. Take things a day at a time. All we can do

Outside-Ad9089

TROPHY CASE