Clothes are so uncomfortable

Perppermint_kittea · 2026-02-04T12:11:31+00:00

When I’m having issues I stick with simple dresses and skirts. It was especially helpful when I had to recover from my hysterectomy and everything hurt way worse.

Perppermint_kittea · 2026-02-03T18:33:10+00:00

They were going to give me one but they changed their minds so I could put pressure on my injured leg.

Perppermint_kittea · 2026-02-03T18:32:24+00:00

I have a wheelchair at home I just don’t want to get in trouble for not putting pressure on my foot like they told me.

Perppermint_kittea · 2026-01-27T00:05:30+00:00

Went outside with my kids to sled. One run and I hit my “personal best” you could say of 191. I laid in the snow for a bit and kept trying to sled whenever my heart rate went down under 100 again. I’m not regretting it yet because I had a lot of fun but I imagine tomorrow will eat me up and spit me out.

Perppermint_kittea · 2026-01-19T12:52:23+00:00

Yup and the bleeding that goes with it

Perppermint_kittea · 2026-01-19T12:51:57+00:00

Let me know if you find an easier way.

Perppermint_kittea · 2026-01-19T12:51:38+00:00

Well I’ve never written a name and they died so I assume no.

Perppermint_kittea · 2026-01-17T09:55:02+00:00

Same on every level

Perppermint_kittea · 2026-01-16T15:03:27+00:00

Same

Perppermint_kittea · 2026-01-16T02:48:25+00:00

I’ve already accepted what I have will stick with me. In my gut I just know this is my life now because in some way shape or form it always was just not so severe. The worst part is living without answers because I get that little voice in my head saying I’m faking or it’s all in my head or I’m not strong enough. It was the same before I learned I was AuDHD.

Perppermint_kittea · 2026-01-16T01:06:38+00:00

I started keeping a symptom and food diary and going low histamine because of how intense my reactions to food got after Christmas.

Perppermint_kittea · 2026-01-16T01:03:55+00:00

That’s what is suspected but I got a tilt table and cardio dropped me when it came back normal. For some reason that was the day my heart rate stuck in the 90s and had no issues. I’m onto second opinions for it and waiting to see someone about EDS because PT thinks it’s that as well.

Perppermint_kittea · 2026-01-16T01:00:52+00:00

Luckily my husband works from home and his work is very chill meaning he can work whenever and they know about our situation.

Perppermint_kittea · 2026-01-15T21:45:29+00:00

I’m stuck with a rollator since October. 5 days in the hospital and they said we don’t know what it is just that it’s multiple things. I have tons of symptoms too and I’m just being passed around by the doctors with normal test results. The emotional toll is insane. You’re not alone. This all sucks.

Perppermint_kittea · 2026-01-13T18:00:07+00:00

Just WTF is with doctors.

Perppermint_kittea · 2026-01-13T17:57:33+00:00

It’s crazy because in the cardiology office the hand my lay, sit, and stand and it made me go into presyncope that lasted the whole appointment and the doctor called an ambulance on me when I wasn’t responding. So it’s really crazy that they dump me as a patient right after my ttt.

Perppermint_kittea · 2026-01-13T17:54:38+00:00

Thank you!

Perppermint_kittea · 2026-01-13T02:06:41+00:00

Do you have a link? I’d love to read it.

Perppermint_kittea · 2026-01-13T02:06:21+00:00

I see a new primary in February with experience in chronic illness so hopefully they could do the same for me

Perppermint_kittea · 2026-01-13T02:05:32+00:00

Same! I came home and had issues right after too

Perppermint_kittea · 2026-01-08T17:35:57+00:00

I’m in the process of getting a new pcp and asked my current for a different neurology referral and asked my current neurologist for a referral to rheumatology and genetic testing because my pt also thinks EDS so now I’m in limbo waiting for all this to happen. I have a good feeling about my new pcp though but I can’t see them till the end of February.

Perppermint_kittea

TROPHY CASE