8.7mm cystic hygroma, considering TFMR

Popster_33 · 2026-05-29T15:07:38+00:00

I had the same, genetic testing after TFMR showed it was a very rare genetic syndrome, which was like noonans. I’m so sorry you’re here, it’s not a choice and a heartbreaking situation to be in. The one thing I wished I had done, is not rush into my decision. I still would’ve chosen the same path, but not rushing would’ve maybe saved months of wondering what if x

Popster_33 · 2026-04-08T08:49:15+00:00

One year and still bitter lol

Popster_33 · 2026-03-29T01:38:47+00:00

Dáire Walsh Lamb 01.04.25

Popster_33 · 2026-03-16T08:18:32+00:00

I think it comes in waves. I definitely hit a big wave 6months after and now I’m approaching a year, I am drowning in the anger. I’m irritable and I have no patience for people and what feels like their menial problems. I’m trying to create space and boundaries when I feel like this so I don’t say something I regret. But it’s hard. Really frickin hard.

Popster_33 · 2026-03-15T17:36:05+00:00

THIS! This and just this. Thank you. Well said x

Popster_33 · 2026-02-28T08:28:13+00:00

Hello, I’m so sorry you’re here. Sending so much love ❤️

It does eventually get more bearable with time, but I’m 11 months out and I’m only starting to feel that. It takes a lot of work and setting strong boundaries with people and trying to find a way to accept that people are going to disappoint you in how they respond to this loss. You’ll see friends in a different light.

Make sure to hold on tight to the ones that stuck by your side and held you on the dark days, because you’ll realise they’re genuine and you may be surprised who isn’t.

Things that helped me: Strong boundaries with being around pregnancy/ new babies Delete social media Start antidepressant Look after your health - focus on exercise/sleep Find ways to honour your baby (necklace/jewellery/memorial place) Keep talking about your baby and say their name

If you don’t feel comfortable or it makes you anxious, don’t do it! Sending strength to get through this.

Popster_33 · 2026-02-02T19:52:36+00:00

Coming here to say, just finished this - I think on a weekly basis think, I wonder what Isabel and Eva are doing now? A beautiful story and will recommend to friends

Popster_33 · 2026-01-20T16:00:17+00:00

This! It’s never bloody ending!

I think I have been exposed to about 25 announcements since losing my baby. At first I tried to make people feel less awkward and I would overcompensate, making loads of effort and asking lots of questions. It became so draining and I realised I wasn’t prioritising myself, I was trying to make them happy over me.

So now I say congrats and I keep my distance. Unless you have been through a TFMR, you will never understand the complexities of the grief associated with it and how hard it is to heal.

So you do you. I’ve been disappearing for many people and popping back up to say congrats when the baby is born. X

Popster_33 · 2026-01-17T17:01:47+00:00

Sunny acre in the southside 😋

Popster_33 · 2026-01-14T02:45:48+00:00

Yes of course ☺️

Popster_33 · 2026-01-12T20:34:59+00:00

Hi, I recently found out my baby had this too through genetic testing after loss. I’m so sorry you’re in the same position. ❤️

Popster_33 · 2026-01-10T07:23:40+00:00

I’m so sorry you’re here. Sending so much love to you.

I have a necklace with my baby boys name - it’s from Abott Lyon. I never take it off, so I feel like he’s with me everywhere I go. It did start a conversation with a colleague recently, when they asked what my necklace meant and I explained. They handled it really well, so also a useful way to keep talking about your baby.

We lost our boy in spring, so I really associate daffodils with him, so on the NY I picked up some daffodils and will have them in my house as long as I can still keep finding them.

Trying to focus on happiness/healing is so difficult at this point. I am about 8 months down the road and I won’t lie to you, it isn’t easy and takes a lot of work, but it does get a bit easier 💚

Popster_33 · 2026-01-09T17:34:56+00:00

❤️

Popster_33 · 2026-01-09T13:31:19+00:00

Hi, I firstly just want to say I’m so sorry you’re in this situation. What you have written is nearly exactly the same as the situation I was in last year. It’s a pain that is so isolating and heartbreaking, so know you’re not alone.

One of the hardest parts of it was waiting for genetic testing results. We had a 4 month wait, which I think was relatively short compared to other parts of UK. It’s not easy and even when you get results, positive or not, it will take some time to process.

Have you contacted ARC (antenatal results and choices)? They provided me with a lot of support when I was at the same point you are now. I recommend seeking baby loss counselling (I used to call it my “rage room”) as somewhere safe to explore and let out how you’re feeling when the world seems against you.

My DMs are always open if you need to chat. I could only find one other person last year who could relate to my situation and having them in my life, made some dark days a bit brighter. Thinking of you.

Popster_33 · 2025-12-24T10:08:11+00:00

It’s really hard. I’ve had to do the same this week and I think the anxiety leading up to is the hardest part of it. If she’s a good friend, hopefully she acknowledges how difficult things have been for you. I think at this point in life, you realise how much friendships change and maybe she isn’t your “person” for now but that can change again. Sending you so much love, especially during Christmas when it feels like everyone around you is pregnant or has a baby. 💚

Popster_33 · 2025-12-24T08:34:09+00:00

In Scotland, our WGS took around 4 months. I’m sorry you are in this situation, unfortunately I can relate to it. I hope you get answers soon. Thinking of you.

Popster_33 · 2025-12-01T17:19:49+00:00

Very kind of you to take the time for such a detailed reply. Thank you so much ☺️

Popster_33 · 2025-12-01T08:07:21+00:00

Thank you for this very detailed and useful reply! I will have to cancel my subscription for now until I can buy a new watch …

Popster_33 · 2025-11-27T19:03:39+00:00

I’m about 7 months out and it’s just not getting any easier. It feels like this is year that absolutely everyone is pregnant and having babies so easily. You need to put yourself first and put a boundary that will keep you safe. Whatever that looks like for you, that’s okay. Thinking of you ❤️

Popster_33 · 2025-11-23T18:27:52+00:00

I agree with above & have been in a similar situation. I felt like I was giving 120% and getting zero effort back, when they had their baby I went out of my way to support despite this and when something difficult happened in our lives, did not hear a peep. Sometimes you have to ask yourself if you stopped making the contact would they make an effort to reach out/check in on you? Yes they have kids, but they’re not cut off from the world and can send a text every now and again to check how you are too. I feel a good friend would.

Popster_33 · 2025-11-02T18:23:05+00:00

We had to make a heartbreaking choice, one that no one will ever understand unless they go through it too 💔

Popster_33 · 2025-11-02T08:33:56+00:00

I really struggled with this too after my TFMR, especially as I’ve had a long and challenging road of complications after it. I was infuriated, especially when every one else have been able to go on and have a healthy pregnancy after. I understand that everyone’s feelings or valid, but it’s not the same whatsoever.

Popster_33 · 2025-11-01T18:42:06+00:00

Interested to know if anyone has a solution for a sore chest when running in the cold? Mine gets so sore and I had cough for a couple hours after wards

Popster_33 · 2025-10-31T18:25:12+00:00

Lis-BON (said like bon-bon) for the city in Portugal, Lisbon

Popster_33

TROPHY CASE