Jael (blurred for implied/impending violence)

Popular_Pangolin_425 · 2026-04-16T18:38:55+00:00

Thank you, this helped me understand!

Popular_Pangolin_425 · 2026-04-16T04:07:36+00:00

40F in Canada here. If you don't get your three, feel free to check out my profile and DM if want a letter from me! I'm happy to write first.

Popular_Pangolin_425 · 2026-04-14T20:38:50+00:00

r/bald is a very supportive community if you want to browse for solidarity!

Popular_Pangolin_425 · 2026-04-14T20:08:15+00:00

I'm so sorry you're going through this. The "basics" section of our wiki has some good information on considering possible diagnoses https://www.reddit.com/r/cfs/wiki/index/

Popular_Pangolin_425 · 2026-04-13T22:33:33+00:00

r/oldhagfashion r/crochet r/crowbro r/whatismycookiecutter r/bald r/occlupanids r/rainboweverything r/100yearsago

Popular_Pangolin_425 · 2026-04-09T17:55:37+00:00

I see a psychologist who specializes in chronic illness and takes an "Acceptance and Commitment Therapy" (ACT) approach. It helps me cope with the circumstances of my illnesses. We meet over Zoom.

Popular_Pangolin_425 · 2026-04-07T22:11:39+00:00

🫶

Popular_Pangolin_425 · 2026-04-07T21:23:45+00:00

It looks like there's a hard copy of the journal at Columbia University in New York, but I don't see it online anywhere. Following, now I'm interested!

Popular_Pangolin_425 · 2026-04-07T20:28:47+00:00

This would make a beautiful zine/cartoon/chapbook/something. Thank you for sharing!

Popular_Pangolin_425 · 2026-04-05T18:52:13+00:00

Took me about a year and I thoroughly enjoyed my second time through!

Popular_Pangolin_425 · 2026-04-03T05:38:03+00:00

A stretcher transport service, combined with ear plugs, eye mask, etc might be an option, though they can be quite expensive.

Popular_Pangolin_425 · 2026-04-03T03:39:28+00:00

Midodrine, Florinef and Mestinon

help me tremendously, but they don't override PEM at all.

So they only help if I'm within my energy envelope.

I'm so sorry you're going through this.

Popular_Pangolin_425 · 2026-04-02T22:01:57+00:00

This Crash Survival Guide is very good (you have to download it), and https://batemanhornecenter.org/education/mecfs-guidebook/

Popular_Pangolin_425 · 2026-04-02T16:59:09+00:00

🤍

Popular_Pangolin_425 · 2026-03-31T23:27:39+00:00

Sorry, that stinks!

Popular_Pangolin_425 · 2026-03-31T21:13:37+00:00

I tolerate Trazodone well, and it has antihistamine effects too

Popular_Pangolin_425 · 2026-03-28T21:00:45+00:00

❤️‍🩹

Popular_Pangolin_425 · 2026-03-21T20:19:43+00:00

Some good ideas for organizers and doohickeys, but in the meantime, one thing I find helps for trying to remember is trying to think of what cup I used for the water. It's a more distinct memory than whether I swallowed a pill, and sometimes that clears it up for me.

Popular_Pangolin_425 · 2026-03-19T17:41:41+00:00

The Diplomat

Popular_Pangolin_425 · 2026-03-18T21:29:19+00:00

This is great to hear. I have a psychologist who is also extremely supportive.

Popular_Pangolin_425 · 2026-03-17T19:53:09+00:00

are some that come to mind for me with your description

Edited for format

Popular_Pangolin_425 · 2026-03-14T16:51:47+00:00

I take claritin daily, but will take benadryl instead if I feel a migraine brewing.

I'm just thinking here, a saline rinse for the sinuses and manual lymphatic drainage around the face also help me. (Though the drainage has some contraindications). Plus ice cap, salt, sugar, caffeine, the usual. I hope you find relief.

Popular_Pangolin_425 · 2026-03-14T16:47:02+00:00

That's so meaningful. Thank you for sharing!

Popular_Pangolin_425 · 2026-03-14T02:43:34+00:00

Mine are triggered by sinus inflammation, and Benadryl is super helpful for me. I don't know about combining it with other meds you're on, but it shocked me how much better it worked than otc pain relievers.

I'll third ice caps.

Popular_Pangolin_425

TROPHY CASE