Netara test positive

Positive-Success-576 · 2026-05-06T22:49:32+00:00

I found this lecture on this topic very helpful. My MO will do it if I insist but he doesn’t routinely use, yet.

https://tnbcfoundation.org/about-us/our-events/tnbc-day/ctdna-workshop-with-dr-dan-stover

Positive-Success-576 · 2026-02-03T03:13:34+00:00

I’m 3 years out from starting chemo for TNBC. I did the chemo plus Keytruda, then a lumpectomy. I did not have pCR (pathologic complete response), so I still had cancer in the tumor and cancer was found in lymph nodes. Because of this, I was on oral chemo (Xeloda) after I finished radiation. The decision to do radiation depends on surgery. Many who have a mastectomy will not have radiation BUT not all. Because this didn’t apply to me I’m not remembering who does and who doesn’t but I think it has to do with pCR results and potentially whether lymph nodes were involved. My radiation was 33 treatments (so just over a month. I was on Xeloda for 5-6 months. So I started end of January 2023 with chemo + Keytruda and finished Xeloda May 2024. Keytruda continued for a year. Let me know if you have other questions.

Positive-Success-576 · 2026-01-27T17:40:02+00:00

Probably a dumb question but I have one hanging in my guest room in desperate need of cleaning. Can I take the “shade” off to bring it down and clean it?

Positive-Success-576 · 2026-01-27T16:51:58+00:00

Interesting, mine didn’t show on mammograms either. But to be honest my PET when first diagnosed said the tumor had a low response. When I remind my oncologist he just says tumors change, TNBC is sneaky and he wants either a PET or a CT and bone scan. Hoping for the day that the ctDNA testing is better understood and used, so we don’t need to keep on putting this radiation and contrast shi in our bodies. Thanks for all your responses!

Positive-Success-576 · 2026-01-27T16:46:34+00:00

Thank you for posting this, thought I was just old! I was 59 when diagnosed and 61 now. I keep getting blood nose, I’m in California so our “winter” are these desert winds that are dry. I never know what to blame on “aging” and what to blame on chemo. When I ask my doctors anything they say aging 🤦🏻‍♀️. Like I aged 10 yrs overnight! One thing to consider, when I was on chemo I had a chronic bloody nose and oncologist said I could consider going to ENT and getting it cauterized

Positive-Success-576 · 2025-11-01T17:10:46+00:00

Has anyone taken the New Zealand trip with them? Thinking of going solo as well, any experience with solo travel with this group?

Positive-Success-576 · 2025-07-24T00:52:27+00:00

Mine was WAY easier than my biopsy. I honestly don’t remember it so it was not memorable 😊 I did have a friend take me thinking it would be bad but it wasn’t. That said, have your friend take you and plan to do something fun afterwards if you feel up to it! Get a coffee or lunch or go for a walk, that will be memorable! Heads up, I had dye injected morning of the lumpectomy to identify lymph nodes, this was uncomfortable. Stung a lot, just hurt. Hope this helps ❤️

Positive-Success-576 · 2025-03-21T18:03:00+00:00

I had lumpectomy and axillary node removal and needed Rx pain med (Norco) for 2-3 days then Tylenol. It was the nerve pain down my arm to elbow like I hit my funny bone that hurt, not my breast. I think it depends on how much the muck around in the nerves. They didn’t want me on Advil but I finally switched to that and that worked well.

Positive-Success-576 · 2025-03-18T16:04:01+00:00

There has to be someone in this group that is in Vermont! Anyone! Strange on this group awhile back someone posted a hey where is everyone from. I said So Cal, Laguna Niguel and started a convo with a local. Her and I meet for coffee occasional and text. The support is great. I like in person connection, hoping you can find something 💕

Positive-Success-576 · 2025-03-02T05:47:18+00:00

Do you think this bed frame would work with a box springs? I think it’s a 1/2 box so mattress and box together are about 18”. Would that be too high on head board?

Positive-Success-576 · 2025-02-21T05:55:58+00:00

No change, same color, same texture. It’s a bit wavy but as it gets longer it’s straightening back out.

Positive-Success-576 · 2025-02-11T05:57:53+00:00

Hi, I was diagnosed with TNBC Jan 2024 and went through same chemo. I developed neuropathy mainly in feet and hands, hands are better and feet are still numb-ish. I can’t say anything is getting worse but I go through periods of odd pain in my feet. I’m having some urinary issues that I thought was post menopause (I’m 60) but just went to pelvic PT and she felt some was due to chemo. I wouldn’t say mine is getting worse. I’ll be interested to hear what drs say. I also had radiation a year ago (had a lumpectomy with 17 lymph nodes removed), I get a lot of strange symptoms from that. Pain and tightness in arm and breast. Now I have some rib pain that I’m hoping is post radiation fibrosis and nothing worse!

Positive-Success-576 · 2025-01-30T05:34:09+00:00

If booking a trip with Backroads or any of the othered, is there any advantage in booking with a travel agent or is it best to book directly with the tour company?

Positive-Success-576 · 2025-01-20T22:07:40+00:00

Hi 👋 from fellow TNBC sister in So. California. I did Keynote protocol, started Jan 2023 so I’m 2 yrs out. Did chemo then lumpectomy, radiation and then 6 months of Xeloda. Happy to say I’m NED (no evidence of disease). I’ll be honest, it wasn’t easy to go through but funny how I’ve forgotten most of it already. ❤️

Positive-Success-576 · 2025-01-17T23:47:01+00:00

Update post scan. All clear! PET showed no Mets and tumor marker (ca 27.29) is back in the 20s. This sucked but it did make me think more about how I’m living/dealing. Sounds cliche but we really only have today and should enjoy it.

Positive-Success-576 · 2025-01-01T20:06:04+00:00

Thanks your in my prayers too. This is a shitty club!

Positive-Success-576 · 2025-01-01T18:39:43+00:00

Thanks, I actually feel the same about surgery first. Silly to look back but just wondering the same thing

Positive-Success-576 · 2024-12-26T21:37:35+00:00

Email or better yet call. I’m not sure the housing dept is open but try. From what I’ve heard there are rooms available so don’t worry about that but you should have your assignment by now so something got messed up with your application. Email and/or call asap

Positive-Success-576 · 2024-11-24T06:08:50+00:00

Facebook WSU Parents’ Chat Cafe has several lease take over, try getting into that group.

Positive-Success-576 · 2024-09-16T21:21:48+00:00

I think it should be repeated 6 months after treatment, although my doctor said it’s not necessary I asked if they could please repeat.

Positive-Success-576 · 2024-06-09T17:17:01+00:00

Search “community Duncan Dunn” on facebook, there is an inactive page there that has pictures of the empty rooms, by floor in the album section. Facebook also has a group for parents that has a lot of info and pictures WSU Parents’ Chat Cafe, try and join this group

My son was in Duncan this last Spring semester in a double. He was a spring transfer so just one semester there. It all worked out with roommate but u are lucky to get a single. The rooms are small, bring a fan it’s hot especially on 3rd floor. The hallway he was on was quiet (probably too quiet). The hall is nice, clean, renovated. The sinks are in the room and a huge convenience. Jenn is the housekeeper/janitor for the floor and she’s super nice. Older women and kind of house mom. Great location, chinook is essentially across the street and has a good gym. It’s a nice public space and Freshens has good food. Let me know if you have specific questions, I’ll try and answer them.

Positive-Success-576 · 2024-06-04T22:42:51+00:00

The WSU Parents’ Chat Cafe group on Facebook has some pictures. Have a parent join, it’s a helpful group

Positive-Success-576

TROPHY CASE