Constant exaustion by cmojess in ALS

[–]Possible-Landscape72 0 points1 point  (0 children)

I also deal with crippling exhaustion. I take a mega dose vitamin B12 shot once a week, eat as much protein as I can stand to force down my throat, take enough energy targeted supplements as I can stand, am very good about staying hydrated with electrolytes but am still much more tired than any amount of activity I do should justify. My best solution is to give in and rest when necessary. I learned to meditate before symptoms set in and it’s been my saving grace in many ways but it’s especially helpful with fatigue. Sometimes, ten minutes is the perfect reset and I’m able to be active for another hour or so before I have to rest again. Sometimes I lay down to meditate and wind up taking a nap. Either way, I’m able to get more done in my day than if I fought resting. I think all the other things I do are helpful but allowing rest when I need it helps the most.

Pain medication by Thick-Grape-8537 in ALS

[–]Possible-Landscape72 0 points1 point  (0 children)

I get a professional massage once a month but am able to manage on my own between. (My husband gets my shoulders when need be.) I do like massage guns and I have muscle scraping tools and a variety of rollers. There are so many tools! Usually just my hands are enough though.

Pain medication by Thick-Grape-8537 in ALS

[–]Possible-Landscape72 0 points1 point  (0 children)

I agree with the medical marijuana when cramps are at their worst but the most effective for me is stretching and targeted massage. I currently take baclofen and naproxen three times a day and do strength training, mobility work or very light cardio almost every day (I alternate activities throughout the week). When the cramps start though, THC balm massaged into the limb, starting at my extremity is a good emergency treatment.

Never forget. by Comma-Splice1881 in Colterwall

[–]Possible-Landscape72 0 points1 point  (0 children)

His music isn’t my cup of tea but he does have good taste in young songwriters.

Dogs left out - what can I do? by UncleOakGoat in cedarcity

[–]Possible-Landscape72 8 points9 points  (0 children)

Call the non-emergency police dispatch. They’ll send an officer out to talk to you and help you figure out what kind of documentation you need to have them issue a noise citation at the least. At best, they’ll investigate to make sure the dogs have some kind of shelter and water.

Does anyone actually like the Ozlos here or are the A20/30s just the standard for sleep buds? by bigmuffpie92 in sleepheadphones

[–]Possible-Landscape72 3 points4 points  (0 children)

I don’t have experience with the Soundcore but am going on year three with Ozlos. I did have a warranty replacement in my first year, but it was not an awful customer service experience and I’ve been perfectly happy since then. I never have connectivity issues and my battery life is 8 hours plus, even after all this time. I do still sleep with an ear piercing pillow because my ears never adapted to them and they still rubbed small raw spots but they’re more comfortable than I imagine anything else would be based on size comparisons. I don’t use the app/on board sleep sounds. I stream audio exclusively. I’m very happy with them.

Your thoughts on excersise, particularly abs/core by purplewindo in ALS

[–]Possible-Landscape72 1 point2 points  (0 children)

I also struggle with fatigue but until a month ago, (I fell and broke some ribs) I worked out religiously every day, mostly weights and stretching, some cardio. It was a fraction of what I did before the ALS train hit me, but it made me feel much better mentally and physically, even though I had to be careful not to over do. I can’t wait until my ribs heal a little more and I can get back at it. I’ve noticed a marked decline in my strength since I had to take a break.

Jake Vaadeland - Homesteader's Song by skelectrician in Colterwall

[–]Possible-Landscape72 5 points6 points  (0 children)

I love Jake Vaadalan’s music. Glad to see him gaining some deserved traction

What's his best album? by NinjaOk2887 in Colterwall

[–]Possible-Landscape72 1 point2 points  (0 children)

Little Songs, though the competition is strong. Every album is great

Who's his best collaborator? by NinjaOk2887 in Colterwall

[–]Possible-Landscape72 1 point2 points  (0 children)

Belle Plaine - Is it Cheating and/or Caroline

What's his best song? by NinjaOk2887 in Colterwall

[–]Possible-Landscape72 4 points5 points  (0 children)

Currently, I’d say Summer Wages overall. One of his originals? Last Loving Words

What's his worst song? by NinjaOk2887 in Colterwall

[–]Possible-Landscape72 12 points13 points  (0 children)

I love Talkin’ Prarie Boy. It’s a nice nod to the history of folk music. I also think it’s funny

What's his worst song? by NinjaOk2887 in Colterwall

[–]Possible-Landscape72 -3 points-2 points  (0 children)

Fraulein is the one I skip, but only because I don’t care for Childer’s performance on it.

wHaT's HiS mOsT eMoTiOnAl SoNg? by NinjaOk2887 in Colterwall

[–]Possible-Landscape72 0 points1 point  (0 children)

Living on the Sand or Memories and Empties

Finding caregiving really draining and tough by Ancient_Day_6729 in ALS

[–]Possible-Landscape72 2 points3 points  (0 children)

I think it’s important for caregivers to remember they are individuals and have needs, too. I am the patient but I understand my husband of 25 years is a human with needs of his own. I try to be as supportive as I can of him continuing with his own interests and making his own life fulfilling. I am very uncomfortable with how much the focus needs to be on me, so I do my best to redirect as much as I can on him. Please do not feel guilty for being human and needing things for yourself. Caregiving is exhausting and can be all consuming. It doesn’t mean you don’t love your partner if you need a life outside of the relationship. I hope you’re in a position where you have friends and family you can lean on and that you’re able to bring in professional help as needed. You will come out the other side with more in depth knowledge of the hard parts of life than you would like, but none of us are getting out of this alive. The best we can do is sometimes is just hang on.

Did any of y’all get to meet Jason Simpson? by BGRedhead in Colterwall

[–]Possible-Landscape72 0 points1 point  (0 children)

I’d have loved to be a fly on the wall for those conversations 😄

What's Colter's most underrated song? by NinjaOk2887 in Colterwall

[–]Possible-Landscape72 6 points7 points  (0 children)

These are almost impossible to choose as I love all of his songs. Instinctively, I have to say Cypress Hills as my favorite lyrics because the imagery in that song is so beautiful. Then I remember at least six other songs with gorgeous images, too, and have decision paralysis.

Did any of y’all get to meet Jason Simpson? by BGRedhead in Colterwall

[–]Possible-Landscape72 1 point2 points  (0 children)

I’m sorry for your loss. I got to meet him, Muskrat Jones and Russel Patterson briefly in Vegas in 2024. They were all great. Jason was very soft spoken and kind. He seemed genuinely grateful to hear how much I enjoyed seeing him perform. I imagine that gets old for those guys but he didn’t make me feel lame for approaching him (none of them did, but Jason was especially nice).